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Hilary
2/16/2010
6:45:54 PM
| hi Mr common Sense,
I don't know if I talked to you . I don't think so. I talked on the phone to some people who went onto the lymebusters site. I did talk to someone but he called himself Mikey. I think he lived in Indiana. The name Optimistic sounds familiar though. I talked quite a few times to the person named Mikey. He asked me for my address to send me something but he never did and then he changed his email address and I didn't see him on lymebusters anymore. So who knows. Maybe we did talk. Wish I could figure it out. Whatever the case may be I'm glad you're doing well. I looked at you site and your utube video. Sounds like you're getting better and better. Oh well Now it's going to bug me as to who you might be... ;-) TC Hilary |
Mr. Common Sense
2/15/2010
9:38:35 AM
| Hilary, are you the same person that used to write to me? I went by Grady or possibly "Optimistic" back then, we spoke on the phone once when you were really down. If not forgive me, but if so, I'm very glad to hear from you. |
gigi22
2/14/2010
4:10:05 PM
| Hilary -
It's quite possible that your burning skin sensations may be caused by a severe deficiency in vitamin b12. Alot of us have infections in our guts which affect absorption of vitamins and minerals... can you get tested for this? When my doc looked at my blood results, my homocysteine levels kept going up .. I had some burning skin sensations and a weird numbness sensation on my skin when I would scratch it. Otherwise, I had no idea I was suffering from a b12 deficiency. I have always had great fatigue and depression (other symptoms of a b12 deficiency).
When we did a heavy metal challenge test, there was no b12 detected from my body tissues (it was measured in urine). Since then, I have been taking b12 shots, and I'm going through a healing crisis. It's doing something, but it's taking some time for my body to repair itself. You can also try taking some b12 tablets that will dissolve in the mouth. This could help. Could you look into this?
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hilary
2/14/2010
12:23:04 PM
| hi Deb2,
Thank you for posting and your offer. Mel has my phone # and address. If you want you can email me at `cantalopeh@aol.com. Try and have a nice Valetines day. love, h |
hilary
2/14/2010
12:20:24 PM
| Mel,
I just read your post to me. Thank you so much for eing so compassionate. Don't wory about your spelling. I noticed that this Morgellons has had an effect on my brain as well as other parts of me and I have trouble spelling too . Feels like my Iqa has gone down 30 points! I'm sure alot of people who have this feel that way. I'm going to try to find a way to send that post about the person disability due to this to my sister as you suggested. Maybe she will stop thinking I'm delusional. Have a great VALENTINES DAY. Bye H |
Deb2
2/14/2010
9:48:07 AM
| Hilary,
I have been exactly where you are and actually worse, I am almost completely cured now. I have extra MMS, citric acid and Molecular silver I can send to you. Let Mel know your address if you want it and I can contacct him and send it to you.
This IS beatable! It takes fortitude, but you CAN do it! |
mel
2/13/2010
9:15:33 PM
| Hiya hilary,
Welcome as always;
First let me thank all of you that have responded to
our sister hilary. When you have this disease there is a bond not that many will understand. In my mind that makes us brothers and sisters.
Second I am sorry that it takes me a day or two to respond, I like to think about how I felt when I might have been in the place you were at when you posted.It allows me the chance to best answer someone with feelings that they hopefully will understand.
Most importantly is I am Living Proof that there is Hope!!! I had been told twice I was going to die.
Here I am today cured of our dreaded disease! Trying to instill Hope in others.
What I have learned in the past year about our disease with the help of others such as John B and
Pam C,with her lab testing is more than was learned in the previous four or five years.
The fact they we beleive that there is even more than one way to fight and beat morgellons is truly amazing. As we continue our research with the help of others we will continue to update everyone as the imformation becomes available and is proven that it works.
Today a amazing thing happened to me. A friend who I have not seen for two or more years called and asked if he could stop by my house. I live in a apt. but it has always felt like home, therfore I call it a house.
When I first got ill in 2006,I stopped spendin time with my friends.kevin and his lovely wife were starting there family, I would not risk hurting the people I most cared about.I Spent most of the next two years isolated.
I went broke, I'm still broke, BUT I NEVER GAVE UP HOPE! I NEVER WILL. there was no web sites to go to back then,there was no one to talk to back then. We know so more more now.
PLEASE BE BRAVE HANG IN THERE!
when kevin browse our web site he just looked at me with a tear in his eye,he asked how can I helped and I suggested he donate money, so that I could buy
Your medications for three months to help get you started on the road to recovery. He happily agreed.
You have my phone# hilary and have had my permission to call me when you need to talk. Use the #
Now please no more talk about leaving.
this is the longest post I have ever made, forgive me for any spelling errors in advance.
God bless you hilary, NEVER GIVE UP HOPE!
I will call you sunday AM.
Mel |
Robin
2/13/2010
6:03:45 PM
| Hi Hilary,
I figured I'd tell you...he is John Burgsteiner from LOGOSnutritionals.com. He makes the vitamins. So far, the silvadene cream is OK but not a cure. It's prescription, anyway. There's other stuff for relief: I like the coconut oil, there's pure shea butter. One day my abdomen was burning and I was having bites and it was hellacious. Anyway, I stood in front of this cheap farinfrared heater and smeared coconut oil. It took about a half hour but all of a sudden the pain abated. Here's my email too - tigatail@netzero.net WOW - that was great of Kevin A. Darby to pay for your 3 months of vitamins. Very cool ! I have an extra bottle of MMS and acid that I can send you if you want it. |
hilary
2/13/2010
4:59:57 PM
| hi again,
I made another post but it didn't show up so I'll try again. Kevin I wanted to thank you so so much for what you are doing for me. There are still some decent people left on the planet!. also Suzanne I emailed you. Just wanted to say thanks again and god bless all of you.. h |
Hilary
2/13/2010
4:17:13 PM
| hi,
Thank you all for your kind words. It was helpful to hear I'm not the only one experiencing the burning.I have never used silverdine but if it works can you let me know,Robin? I have started to buy things on Mel's site. can't do it all at once. Also, John I would love to go on your site but I don't know who you are or the name of the site. can you please let me know? Thank you all again H |
Kevin A. Darby, Esq.
2/13/2010
3:42:01 PM
| Hilary:
I am a friend of Mel Friedman's and he told me your story. I have donted funds directly to Mel to cover your first 3-months of the supplements and medications.
Please keep fighing! Please do not give up!
-Kevin A. Darby, Esq. |
Susanne
2/13/2010
3:28:10 PM
| HI Hilary,
Its been awhile since I've written on here because I've been busy fighting this thing. Just so you know, my email address is letsbwell@gmail.com - pls write me.
I want to answer your email in yes, that I share alot of your same symptoms. First of all, I get 'random' scratches all over. . skinny ones, some long, some short . . they just show up out of nowhere . .and I thought these may be the track lines which they speak about.. . however all are ABOVE my skin.
When I first showed symptoms and for quite a while my skin looked like it had ulcers everywhere .. it burned .. to take showers were painful! Every cream the dermatologist gave me made it worsen and get raw.
I am not cured, but the skin is 50% better, doesnt hurt much, rarely burns or itches. .(still get small bites) . .but now can sleep at night.
Will write more later, hope this helps.
again you are welcome to write. . hope to hear from you . .
God be with you
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John B
2/13/2010
1:36:17 PM
| Hillary,
Make no mistake... we all reap what we sew. Those who take advantage of the suffering of others, who "feed upon the flesh of others" will one day face the eternal wrath of God.
We are praying for you. Please contact me through my website at your convenience. I have a couple of questions and a suggestion to discuss with you.
Blessings,
John |
Sylvia
2/13/2010
5:45:47 AM
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Robin
2/12/2010
10:29:39 PM
| Hi. First that cream you are thinking of is silvadene cream. My mother puts it on her lesions. I was just telling someone that my skin feels like someone took a blow torch to it and scorched me. Especially my forearms for some reason. Then the neck. I still work and all day at work it feels like I am wearing an itchy steelwool suit. Hilary, you say you have tried everything? But maybe there is something that will bring you relief. The people on this site know alot about trying to get better. Are you on the protocol? Did you try smearing up with coconut oil? Have you done a sauna? Some dry heat is good and especially a Far infrared sauna. I know someone who is having great results with that. We (me and my mother have this)have good results with the barley treatment and also mix it with the Diatomacious earth and add a few drops of tea tree oil and lemon. I have the scratches too. Treat them like lesions with the treatment and leave it on over night. Hang in. |
Jocelyn
2/12/2010
8:46:09 PM
| Hilary
I know exactly what you are going through! In '07 my lesions were so out of control I felt as if I had third degree burns all over me, I even went to the emergency room one night because I couldn't bear it,and I had been crying and in agony for three days. I had pain medication but it still didn't help the burning sensation. The doctor at the e.r. gave me a shot of pain med. but I told him I needed something for burns. He woudn't treat me for burns because 'they weren't burns'. I went to the my doctor 2 days later and he gave me a prescription for a cream called silva...something. I will find out the exact name on Monday for you, this is Fri.One thing I did do that gave me some relief was cold wet towels on the areas that were burning. It is my experience that heat makes me break out and I had been working in a very hot atmosphere, plus having hot flashes as well.
My quality of life has been reduced to day after day of nothingness, most of the time never leaving my home unless I have to. Last year I did attempt suicide, but it was more of a cry for help than really wanting to do it, I am still here. I just keep telling myself that one day this will be over and I have to believe it on some days it's all I have. Hang in there and keep looking for answers such as this protocol. I have been on it for about 6mo. now and am doing better than I have since I first got it, in '05, like you.
Changing my diet to high alkaline seemed to make a big difference in the last 3 mo.
By the way, everything others used for relief burned me as well, I couldn't shower for many different long time periods, the water pressure burned me.
Take as much info. as you can print out about Morgellons and go to a regular G.P. Ask for pain medication, there are just times in life when we need help. Chronic pain can make anyone insane.
May God bless you.
Jocelyn |
Jocelyn
2/12/2010
8:12:57 PM
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Hilary **
2/12/2010
5:18:45 PM | Hello,
I just wanted to ask others if they have experienced this symptom;For about 2 wks now I have felt as if I have a bad sunburn all over my body. Nothing I do makes it feel better. My 'lesions'seem to look more like scrathes than sores. I have tiny ones and long ones all over . On another site *That shall remain unnamed) they suggested taking long bathes in epsom salts a few drops of tee tree oil and some sea salt. I thought maybe thisw was causing this problem but I started eimiminating each ingredient every time I bathed and it made no difference. even in water alone the lesions are unbearble and noting I put on them matters. My face is on fire too although I don;t see scaratches there. There are olaces where I can only feel the scratches but not see them;.I feel like I just want to rip my skin off. I don't know how much longer I can stand all this. I've had this since 2005 I know many of you have had this longer and are in pain too. I just am not able to deal with it. I can't move or afford any doctors or lab tests. I have ben scammed (as I'm sure alot of you were) by so many people. I have a son in his 20's and I try to explain to him what is happening to me because i want to prepare him. I am not trying to be dramatic here. I don't want to live this way anymore. I am a virtual hermit in my apt. If I had cancer or some other KNOWN disease no one would question my reasoning for wanting to not be on this earth any longer. My quality of life is zero. The suffereing just gets worse no matter what I do and how many vitamins creams etc I try. Nothing works.It's disgusting the way so many are taking advantage of people like us who are so desperate. I do believe in Karma and eventually they will pay for their greed . I just want to go to sleep and never wake up.. |
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