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Linda

12/30/2018
4:07:34 PM
Our man Nick reminds me of the little engine that Could!

Hi Nick,

Actually I thought this was your journey and it isn't too late to start one if you want to. You have a wonderful way with words.

I am a single parent to my granddaughter. It isn't easy being alone and doing everything but I consider her a blessing to me. You are lucky to have your little guy as I feel they keep us going.

It sounds like you are doing really well considering how sick you were. I also went back and read Ellen of Troy as well. It is great that you are able to work an easier job. I had to retire early and couldn't work for two years but in order to move to a better place, I had to get a part time job for now and probably until my granddaughter is old enough to be on her own.

I don't trust anyone enough to talk about this affliction. It is hard to be so isolated but I am so thankful to be back here with this sweet group of people. It is probably another reason for my getting sicker because I isolated so much.

Anyway, best wishes for a happy and healthy New Year.

Linda
Cheryl

12/28/2018
8:18:09 PM

Hi Nicholas,

Your post contains so much hope and optimism. It was a pleasure to read it and see how far you have come.

The fact that your symptoms practically all went away for a period of time is such a positive sign. Don't get discouraged that some feelings of movement on your scalp and feet have returned. This disease goes in cycles and you might have some more of those before you are well. The well periods will last longer and longer, and then the day will come when you will be doing the Happy Dance :-)

Most of us have probably told people that we had this disease and then wished we wouldn't have. It is easy to think that we know a person well enough that we are sure of a supportive and understanding outcome. Not necessarily so. No one can really predict the reactions of somebody else.

I remember once finally getting up the nerve to tell a good friend of mine about this disease. Do you know what she thought? She thought that I had made up some strange disease because I didn't want her to hug me. What?!? Who would make up a disease to avoid being hugged?

So it is always best to have forgiveness in our hearts for those who didn't understand, and have thankfulness in our hearts for being part of such a great community of people, who do understand and want to give encouragement and help as we recover our health.

I'm glad that you have rekindled your relationship with God. He is loving, wise, and all-knowing and we need Him more than anything.

It's great that you were able to move to a less stressful position at work. I like the expression you used, "do right by yourself". We all need to learn to do that.

Thank you for bringing up Ellen of Troy's journey. I went back and read it again. I am so happy for her. Her journey is a light of hope for all toxic disease sufferers.

God bless.

Cheryl





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