| | pamela mae
2/3/2010
11:51:55 AM
| Sarah and Debra,
On my way out walking but skimmed through and saw this - briefly.
What about Compounding Pharmacies? I now get my 'Hard to get' armour thyroid compounded there and they can formulate many things.I will check but I think they may be an answer to some things. So do not despair.
Blessings
Pamela mae | Debra
2/3/2010
11:43:44 AM
| Sarah,
Thank you for that warning. I will at least stock up on everything I need. | sarah brown
2/3/2010
1:12:17 AM
| You know of course that the FDA is going to change the classification of vitamens and other health related things, tonics, essential oils to the classification of drugs. As drugs the FDA will have the power to sieze vitamins and other health related
things,as illegal drugs. Manufacturers would be forced to conform to FDA standard or be closed down.
You will have to go to a doctor to get a perscription for a vitamen you now buy ooverhecounter. Many, like the ones we use may disappear alotogether
This has happened in europe already and has quietly slipped under the radar to become the law in Canada. It is going to become the law after April 30 of this year. The supplements you depend on may become illegal. Type it into your computer and see what comes up 'FDA regulation of vitamens and supplements and see what comes up. Now is the time to write and email congressmen and the president that you do not want this change.
fd
f | mel
11/17/2009
10:52:27 AM
| Hiya Rick,
Welcome as always;
I could NEVER say THANK YOU enough,
you always have been My friend and
I know you always Will be my friend.
I thank God for your friendship!
God bless you and your family,
mel | Deb2
11/17/2009
9:53:24 AM
| Susanne,
Even if you do not have insurance, I believe great plains can put you on some kind of payment plan. they might have a doctor to refer you to as well. Instead of guessing what anti-biotic will work for you, have the comprehensive stool test done and it will tell you EXACTLY which anti biotics will help and which anti=fungal/yeasts will help. Just do it! The longer you wait, the harder it will be to get better.
deb2 | Susanne
11/17/2009
3:56:08 AM
| HI Carol
Yes, we have all had problems with doctors. I still do not have one, I believe I have had this (visual noticeably) for 2 years. The nutritional supplements are really helpful.
I live in So. Florida, I dont know where you live but you are welcome to email me anytime. All the symptoms you are explaining esp the fatigue and eyes seem like morgellons.
Susanne letsbwell@gmail.com
Deb2, what state are you living in now since you have left Florida. It seems like you have a great doctor there, even doubling up on the probiotics.
I want to do testing so bad, I am wondering if Bactrim is the right antibiotic for me. you have such strong results and you say you are 90% cured.
of course Deb2 you are welcome to email me as well. | Deb2
11/14/2009
10:16:16 AM
| Carol,
You are not alone in the doctor issue. It is a problem for all of us, it took me four years to finally find one that would help. What area do you live in and do you have insurance? Pamela Mae seems to be able to find doctors for people. go to her web site www.morgellonsfocus.com. and send her a message. | Carol
11/14/2009
2:42:05 AM
| I am so envious! Where do you all find physicians that are actually even listening to you, or even trying to help you to treat these symptoms? I have had these symptoms since April 2006, and since then I have been seen by seven doctors. I have had four different diagnosis, and I think none of them are correct. And,I have received no prescriptions for anti-biotics. And, I still have this mess on my skin. After dealing with this stuff for almost four years, I knew I had to do some research on my own. I have gone through all of my IRAs, savings, and have absolutely no extra money left per month to pay for anything very pricey. I am retired, and unable to go back to work, as I have constant fatigue, am going blind in my right eye, and fall asleep, sort of like narcolepsy, often. I tried Carnivora, but it is pricey. I have read your protocal for cure, and will try it when I can get some money ahead.
This is a devestating set of symptoms, and like everyone else with 'Morgellons', I have thought that this is a never-ending battle that I cannot win. Things that help me are pineapple juice, no sugar, the store brand will do, just no added sugar in it. I drink it and use it on my skin. I found that the stringy-like worms or fibers hate it and will quickly expose themselves. Also, apple-cider vinegar, used as a body rinse, (hurts.) DEET, in a spray is good. These are the only things that I can afford at this point. How much are the products that you tell us about?
| Pamela Mae
11/13/2009
2:36:24 PM
| Dear Rick,,HEY HI! ! There you are !
I thought you floated down a river or something?
I remember back at the beginning when I used to talk with you and Mel.
Because you are a progressive (and what I consider highly intelligent man) I am sure you are blown away at all we have learned while dealing with this disease ,and all because of mels encouragement to jump into other peoples morgellons journeys.
You origionally encouraged him to stand,and he did-we are so grateful for that. Thank you,and you know mel man- - -bonded.
I so appreciate you as a humanitarian who leapt in (Barfooted N all) and not only stood beside your friend but also crawled over the wall to help.
Many of us have had friends just walk away.
Thanks for doing that for mel.
I personally(for what its worth ) do not find it odd that main stream medicine does not have an interest.
There is so much weirdness about all this on the net that the medical profession often looks at it as sensationalism and hype.
I find that mainstream medicine is driven by insurance companies 90% of the time.
Anything outside the text book takes too much research and time out of daily income.
I believe that the Media would probably hype it up as far as everyone would be willing to be exploited,that media is not controllable unless done by ones self.
Most sufferers are humiliated and do not even use their own names.
Many fear they could be fired from an already hard to come by job.
You know in your own life that the journey is more important than an instant fix.
Meaning- I am not sure labeling this with one patent is the key.
We have learned many things far more encompassing than 1 pill.
We have learned the multifaceted approach needed for this disease.
Between us, the things we have learned, and have put into a summation of the whole can be life changing.
What I believe we now need to do is our homework in documenting results,patiently.
I believe we need to combine our process and results (kinda like the vulcan mind melt) we can write them up and then maybe have mel present in an audio visual with written easily understood defined, step by step process.
We need it simple,we don't need to depend on what media is doing but to be faithful to our own part.
I believe we need to be diligent where the light has gone on in research to do our homework.
I believe we need to use our findings in efforts of educating the medical profession,and those who are interested.
When needed moving for ward, even if it is inch by inch finding intelligent resolutions to the road blocks.
On the most part,maybe half of my day is spent in speaking with practitioners,professionals,and morgellons sufferers explaining and educating.
The first real step in education was coming here.After I had been out on the net and seen all the ways people were being exploited and the horror things,this site was a breath of fresh air.
Sorry so wordy here,I am truly glad you are back ,mel has the deepest respect for you and I see your heart as well.
Please don't give up on us hey Rick man?
God Bless
Pamela Mae
| rick
11/12/2009
10:22:08 AM
| I appreciate everyone appreciating my humor. I have been watching the whole Morgellons thing ever since I heard a Jeff Rense program talking about it several years ago. Shortly thereafter, I met Mel and he had similar symptoms to those people on Jeff Rense, so I told him to look it up on the internet- and he did and confirmed that was what he had. Since I spend a lot of time on the internet, I suggested to Mel that he ought to try the Abodenzol that everyone was raving about. It was from that point that Mel began his journey.
For some reason, I have a lifelong interest in alternative medicine. I am not a health practitioner, just a nutcase (as my wife suggests). I am 54 years old and for my age, in perfect health- yet I am drawn to alternatives. I try to stay as far away from Allopathic medicine as I can. If I get a medical issue, I use my bevy of devices first (Colloidal Silver, QXCI, Scenars, Cold Lasers, Etc) and if those don't have an impact, I take some aspirin.
I tried all my trusted devices on Mel, to no avail (he was a willing "victim" of my mad science).
As soon as Mel noted the sores were healed, I went out to a bunch of yahoo Morgellon's forums and posted his results. I took great effort to make the posts not to appear as sales pitches on the forums, yet all my enthusiasm did was get me banned from most of the big ones. I've been emailing the Rense people about Mel to get him on, but I never get a reply.
I find it quite odd that mainstream medicine and the media have no interest in Mel's successes. In my clouded opinion, I feel it is because - unless the cure is patentable, and huge profits can be made by the patent, no one in the mainstream cares about Mel's success.
It is my own gut feeling that Morgellon's may be the body's response to people ingesting years and years worth of pharmaceutical drugs and toxic food- and the combined toxicity of all the drugs building up within the body. I have no scientific basis for my opinion, other than a gut feeling.
I think if anyone is waiting for the mainstream medical establishment to come out with a cure, don't hold your breath. And maybe when they do, the cure will be as "successful" as chemotherapy is to cancer.
Good luck you guys. You are in good hands with Mel. He is as wonderful of a guy in person as he is online. You have no idea the amount of love that exudes from his pores. He wants to make the world a better place and I think he has a good start. | deb2
11/12/2009
9:26:54 AM
| Rick, LOL!!!!! Humor is something all morgellons suffers need (good for the immune system). Obviously your intentions were honorable and sincere.
thank you for that and being a non morgellons sufferer that cares! | Auntie M
11/11/2009
9:49:11 PM
| Thank you all for your respectful and thoughtful replies. I am praying we all get well together. | Susanne
11/11/2009
8:12:44 PM
| NO Rick . . . dont go back in the cave !!
:)
we are just crawling out of ours.. . come back.
j-k, I like humor ..
In all due respect. . it was nice hearing from you Rick | Rick
11/11/2009
3:36:06 PM
| Everyone has good points and I think that Mel ought to take advantage of Auntie M's offer to consolidate the primary and good info into a separate part of the website.
Deb2 you make a good point, and now I will crawl back into my cave again. Keep up the good work. | John B
11/11/2009
1:24:57 PM
| Wow! What an awesome post... all of you.
We are definitely learning from each other, and that is why this website is so important.
Thanks again Mel for your unconditional love and desire to serve. It is truly humbling to be a part of this community. | mel
11/11/2009
12:11:17 PM
| Hiya All,
Welcome as Always.
I am so glad this post was made because it gives us the perfect opportunity to revisit why this website is here.
As Rick mentioned, he encouraged me to publish my story and my protocol because he believed as I do that this disease is pandemic, and people who are struggling with it desperately need a place to find encouragement, hope and real answers in a caring and respectful environment.
My protocol has worked for me, and I believe it will work for many others if they will commit 90 to 180 days to follow it closely. In my opinion, this has not yet happened, but we have consistently seen improvement in those who have taken the entire protocol faithfully... at least during the time that they did so.
I believe in my heart that the nutritional support offered in the Burgstiner Wellness Protocol is foundational to overcoming any form of illness and to establishing and maintaining excellent health.
I believe that MMS and Molecula Silver are indispensable to anyone dealing with the multiple infections/infestations involved with Morgellons, and that Bactrim may be very important in dealing with reproduction cycles of some of the pests.
As I have said many times in the past, I recognize that we are not all the same. Although there are similarities in the nature of our struggle, each of us got to this place along our own peculiar path.
One of the providential blessings that Pam has brought forth to help shed light on each person's particular set of challenges is the metabolic testing services offered on her website. It can help you identify the nature and intensity of your infections, and in certain cases, additional strategies for improvement.
Topicals are fine, but if you want to beat this, you cannot neglect the terrain. I do not mind you sharing what has helped you personally to safely alleviate symptoms, but the following rule must be followed:
First do no harm.
My greatest desire is that you all get better. If my protocol requires some tweaking for you, so be it, but it is very important that you choose a path and stick with it.
Blessings to All,
mel
| deb2
11/11/2009
10:09:05 AM
| Hey rick, I think you opened a can of worms...lol I am going tobet this comment is deleted, but I will write it anyway.
So far, no one has become symptom free from Mel's protocol, except Mel. What is obvious is the fact that everyone's body is different and needs different things...auntie M is right. I believe the basic structure of the protocol is sound, but not complete. I am personally 80-90% symptom free, but I did not follow Mel's protocol completelyand I have had this alot longer than Mel. I have 'other' things that have helped me tremendously | Auntie M
11/11/2009
3:16:50 AM
| Thanks for your input. There are aspects of this disease that Mel has not addressed and is not treating for because there are aspects of this disease that he did and has not experienced. He has expressed this to me personally. He continues to be extraordinarily supportive and available. For this, I am grateful.
Mel's protocol is excellent. His health history previous to getting this disease is different from anyone else who has contracted this disease. We each have our own set of personal health circumstances and deficits and our own manifestations of this disease. Some we share. Some are unique. I think it is important that if someone, for example, has found something topically that works to relieve symptoms, which can be excrutiating, that they post it here to help others. Whether Mel personally used that treatment or not as part of his protocol should not determine whether it gets posted. The info could help someone in terrible distress. Someone who is manifesting the disease differently than Mel did.
As far as sticking to the absolute amounts of what Mel is taking of the logosnutritionals.com Wellness Protocol, I have decided, for example, as of today, to increase the THYMIC FORMULA to 6 a day, instead of the 3 that Mel posted on his daily protocol because the daily dosage on the bottle is 6, not 3. I most likely weigh 2 times that of Mel, so most probably my body NEEDS higher nutritional amounts than he does or did to get well. Saying this is NOT to criticize Mel or his protocol. I am grateful he has experimented over the years to find an outstanding nutritional protocol. And to find pharmaceuticals that have helped him get well.
Also, my lab test results show how my gut flora has been severely and specifically compromised. Whether this was the condition BEFORE I caught this disease or not, these lab results reflect a significant risk in taking a prescription antibiotic at this time, which I learned after starting on Mel's protocol. I am working with my doctor, who is talking to other Morgellons specialists, to find what is the right combination of medicinals for me. For others to read this and reflect upon their own possible specific treatment perimeters, I think is important. We are learning from one another. None of this diminishes Mel or his protocol.
I believe these variables should be discussed here, publically. I also think it is important that as a new person joins the forum for the first time, they be advised to go to the SEARCH link, and put in key words to get the basic info about different aspects of this illness and what is working. I have even thought it would be worthwhile for someone to go through ALL the posts from the beginning and write up a short summary, by category, of information posted that is helping, such as DIET, TOPICAL APPLICATIONS FOR VARIOUS SKIN SYMPTOMS, etc. so it is much easier for a new person to get the essential information right away. As a professional writer, I could do this with Mel's permission and willingness to review this work prior to posting it publically. There is SO MUCH valuable information in the history of the forum, which is so difficult to wade through now. This is nobody's fault; it is the nature of the beast.
I believe the more info that can be shared, the better. If the decision is made to suppress valuable information, that will be sad indeed. I like Mel, his website and the forum. I don't want to go somewhere else to post. | Rick **
11/10/2009
7:59:36 PM | Hi everyone, I am a friend of Mel's and I helped him set up this website and tried to help him battle Morgellons. But I am also somewhat of a loose cannon too.
Periodically I stop by the forum to check out what the conversations are about and I am noticing that the discussions are veering off track of Mel's protocol. Lot's of people are coming on asking 'have you tried this' or 'I've tried that and it has done this for me'. Personally I think open discourse is a good thing, but maybe the conversations outside of the actual protocol discussions may actually confuse people who need to use the simple and inexpensive protocol noted here. This isn't my website, so basically Mel can do what he wants here, but if I were the owner of this website, I'd be more inclined to limit the discussions noted here to just aspects of the original protocol. There are other general Morgellons forums located all over the internet where people can exchange their other techniques, but in all honesty- since Mel's protocol is only one of two that that works- I think Mel ought to keep the discussion focused on his specific protocol.
Mel will probably be angry about this post, but if I understand correctly Morgellons scrambles your thinking somewhat- so I'd be inclined to keep the discussions to a more basic and on-topic level.
Rick | | |
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