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| 9/24/2009 3:26:02 AM I would like to post the positives about my experience while being on this journey with all of you here. 1.I found for the first time that their was hope for this disease.The hope keeps rekindling with friends,intelligent advice and constant refocusing on 'I can get well,I can do this,I can I can I can' 2.I found a community of people I can talk to about Morgellons.I am a bit private sometimes so its been very healing to be able to share in this way. 3. I found I do not need to be humiliated any more by doctors and I can help others in the direction of finding Morgellons friendly practitioners for themselves(good feeling) 3.I found a sound definition of Morgellons and it reaffirmed that this multifaceted disease was not all in my mind. 4. Inch by inch I have slowly been reclaiming bits of my life. I have been loosing weight and feeling a little stronger every day. 5.I found sound scientifically valid research on the things involved with Morgellons.This took me out of the fearful frenzied pictures on the internet and the wild theories about space aliens in my blood.Please. I have also learned SO SO much . So much. Don't you think when we are learning from scientifically sound data that we grow incredibility ? 6.For the first time in 15 years I can sleep at night.This is an extreme miracle. 7. I found growth as a person in being a determined advocate for all of us with this disease. This by watching the sheer determination of mel and seeing Johns kind and merciful steadfastness. And by joining in the lives of you here and feeling what you feel -crying with some,praying,and sometimes just a good laugh. Thank you all for adding to my life and enlarging my sometimes selfish vision. Thank you mel for hanging in there with the good and the bad. Thanks John B. for all the research and commitment Thanks to all of you with your sweet voices ..I think of you last thing at night and first thing in the morning... Blessings my brothers and sisters - I hope this is all right- and in some small way in the days to come I can serve and bless you. Because of Jesus great love, Pamela Mae |
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