As a newcomer, I thank you for your welcoming words.
I accept your challenge and am actively taking your advice.
Stay tuned because I want to be Well Like Mel (and also like you Kelly.)
Thank you for this heartfelt post. I am deeply moved by it, for I too was lost, and am now found. You have declared for all that read this, that it is truly by God's grace that we are led to this place of healing. And it is with a warriors heart that we commit here to the work of healing.
Many will benefit from what you have written. I pray that God bless you abundantly for this, just as you have blessed so many through this.
In His Love,
Thank you for this encouraging, truthful post!
This truly is the place we can all be cured. Thank you for helping those behind you.
It was very nice to have talked to you on the conference call. Congratulations on how well you are feeling!
Keep up the good work!
I love you,
It's comment's like yours that make it all worth it!!!
It looks like you never gave up HOPE!
Thank you and God bless,
To all newcomers,
To have found yourself on this site tells me that you have become sick with this horrible illness and you are afraid and trying to find answers and help.
Lucky you, because THIS IS THE SITE THAT WILL LEAD YOU TO A CURE!
I know because I was were you are, but with guidance from the people on this site, I am living a happy, healthy life again, while I continue healing. I'm just a normal person. I have a husband and two daughters, and I was able to continue working my part-time job in the medical field while I healed.
Back in May, 2015 I became infected with Morgellons, of course I did not know what it was at the time. Like so many before me, I spent too much time and money going to different doctors looking for an answer and begging for help, only to be insulted and humiliated by their rude, close-minded answers.
I truly believed I was being eaten alive, I was in pain and terrified, and I saw no end to this but death. I found so many different websites that talked about my symptoms and different treatments, and I tried them all. My symptoms would slightly improve, but then get worse.
None of it made sense to me....THEN I FOUND MEL'S SITE.
I advise you to do what I did, READ, READ, READ everything you can on this site.
Read about the Protocol and why it works and why it is so important to follow it exactly, and DON'T QUIT IF THINGS START GOING BAD FOR A WHILE, THAT IS ALL PART OF BATTLING THE MORGELLONS. QUITTING WILL ONLY SET YOU BACK AND GIVE THE DISEASE A CHANCE TO RE-GROUP.
Read the Forum posts of people who came here before you, and read about the Journeys that other people just like you have been on, so you can learn about the strict diet, as well as how to clean your environment, how to clean your clothes, and how to heal the outside of your body while the protocol heals the inside.
There are so many success stories of people just like you, who are now cured or almost cured. Read about Mel, our Lead Warrior, who had none of this help when he was sick, but got well, with the help of his friend John from Logos Nutritionals.
They put together a protocol that works to heal and cure this cruel and ugly disease and rebuild your body.
I owe them my life....they are my "Saving Grace".
"Amazing Grace how sweet the sound
that saved a wretch like me
I once was lost, but now am found
T'was blind but now I see."
"T'was Grace that taught my heart to fear
And Grace, my fears relieved
How precious did that Grace appear
The hour I first believed."
Stick to Mel's Protocol
Learn about the diet and stick to it (as you heal it gets better)
Learn about how to clean your environment and your clothes
Learn about how to heal your skin while the protocol heals your insides
*Most of all, keep in touch. Ask questions. You are not alone. You WILL find your way back home!!!
"Through many changes, toils and snares
We have already come
T'was Grace that brought us safe thus far
And Grace will lead us home
And Grace will lead us home."
Love and strength to all!
Reading your journey was so inspirational and answered so many questions I had in the beginning.
I am so happy for you that you have completely healed.
Thank you for all your sharing.
I wish you continued good health!
To hear from you is like a breath of fresh air! I know your heart, and I know that you have been busy enjoying the fullness of life fulfilled through your continued remission. This brings great joy.
I hope those of you reading this understand what it means for you. Ellen is further living proof that you can get completely well when you commit to this protocol.
We love you!
I'm so happy to hear from you!! You don't know me, but your journey encouraged me so much! I often asked Mel about you. You did leave an impact on this site. I'm so joyful to hear, that you as Mel, you are maintaining your health and that Morgellon is a thing of the past for you!
Yes never take our health for granted again.
You still have a lot on your plate, please take time out for yourself, have some mental health days. They're great in rejuvenate us.
Please always once in awhile drop back and let us know how you are doing. You are a delight!
I want to be one of the 100% recovered group!
I have been MIA the last year and feel compelled to reconnect with everyone on this site.
If you read any of my posts back to 2012, I got better very quickly – almost faster than anyone, and I am so grateful for my healing.
I work every day now, have two amazing grandchildren, ailing parents, a sister who is a quadreplegic, and other issues consuming my time. But I hope I never take my health for granted. I am blessed!
I plan to donate to the Go Fund Me page, and although my finances are not great, I know we all can contribute something to keep this mission going. And it IS a mission, run by Mel, but it takes a village as we all know. And I vowed never to drift off once I got well.
Anyone can get this disease, and anyone can contribute something.
God bless you Mel.
Its great that you've found this website which will be a big help and support to you. Its a scary time not knowing what's going on or how to get help and so difficult when doctors don't believe what we say.
If you read the protocol page and the FAQs that's a great place to start. After that reading through the forum pages and articles and listening to the conference calls will give lots of useful information.
Keep in touch and let us know how things are going for you.
If you want to read bits of my story I have posted in the thread Welcome to the UK and Europe. You start at the bottom of the thread and then work your way upwards.
1) MD (+ possible coinfections) are real.
2) You are not delusional.
3) The fact that those who are supposed to be a source of support (i.e. practitioners) betray your trust and send you off, says more about them & their inability to face their egoistic fears, rigidity, apathy and ineptitude.
4) You are afraid, and rightfully so, because you know darn well something's up.
5) Dermatologists are a joke. MD is way out of their league as MD is systemic, and not merely dermatological.
6) As for your family and entourage... point nr. 3 applies here as well.
7) Your rheumatologist seems like the brightest of the lot you've dealt with so far.
7) I'm in a similar situation, so I understand your position (and I'm sure many others here can relate to you as well).
8) WEEEEEELCOME! Enjoy your stay :).
9) MD is some serious doodoo, but there is hope!
10) As Mel would say: NEVER GIVE UP HOPE! ? ¤
I am going through a terrible time of my family believing that something ,such as morgellons is wrong with me..I cannot talk to my doctor for fear of disbelief..I have been to 3 dermatologist. ..plus one that was about to escort me out of his office..my rheumatologist seems more concerned than anyone..I am going to keep reading and see what I need to do...
Welcome as always.
Let me first thank John for his kind words and continued support.
Had I started this post, I would have named it "Family Matters".
Thank you Peter for sharing your brilliant insight about the nature of our loved ones' perception of our disease.
Over the past four years, I have talked with thousands of people who are affected by Morgellons,both personally and indirectly. I am keenly aware of the challenges and concerns of spouses, children and other family members, and I have seen first hand the tragic ripping apart of families due to their ignorance of the illness.
It is so sad that it actually takes getting well for us to prove to others that we were sick, but the good news is that our disease is beatable!
I would hope that this thread would now be a vehicle for others who have positive stories and information in regards to interaction with their family members for all others to utilize in communicating with their loved ones.
God Bless; Never give up Hope!
John Burgstiner **
I was blown away when I read Peter's recent post in the "How Lucky Can You Get" thread in which he stated:
"My family is finally endorsing the effective nature of Mel's treatment protocol and, remarkably, now acknowledge that I do indeed have a real disease that is treatable. I find it amazing that it took a noticeable healing and reduction of symptoms to create this acknowledgement on their part!!!
GO FIGURE! Human nature can sometimes be hard to wrap your arms around."
Morgellons was wrongly and tragically labeled as a delusional disease out of ignorance and convenience; ignorance of the people and convenience of the commercial interests and powers from which it sprang. The delusional diagnosis is made even more convenient by the debilitating nature of the disease which takes a terrible toll on physical and mental health.
Family members of Morgellons patients are totally unaware of the underlying errors of metabolism that combined with the terror of Morgellons symptoms, often lead to bizarre or obsessive behavior. So when the medical community writes their loved one off as delusional, it is all too easy to accept their misdiagnosis.
How ironic it is that when a person such as Peter embraces Mel's protocol and takes the steps to rehabilitate his bioterrain and reduce further exposures to toxic influences, his symptoms go away, his mind clears and his family says "Oh, look - Peter is Peter again. Maybe there was something wrong with him after all."
We sometimes see a similar sense of denial even in Morgellons sufferers themselves, who after regaining their health and productivity forget how far they have come. The life transformations that are taking place before our eyes here are all the evidence you need to see that Morgellons is real, that it compromises multiple organ systems and cellular vitality, but that the conditions it causes in the body may be reversible.
I thank God for the light and hope that is evident in this website, and ask His blessings on all who come here to seek assistance.
In His Love,
Thanks John and Linn! I've been reading here and will start listening to the conference call archives as well.
God bless you all.
Canaanite woman, Mary. Please read her post!
Another success story :)
Keep reading sweetheart. All that you are looking for is here in this place of hope and encouragement. You are literally surrounded with success stories, and that you were led here is no accident.
Please know that you and your family are in our prayers. We look forward to rejoicing with you as you experience your own transformation and return to health.
I've posted a hand full of times but realized I hadn't introduced myself. I'm a mom of two young girls, recently moved to CA and coming to grips with the fact I may have morgellons. I don't see any fibers, at least not the way I see in he pictures online. The crawling and itching, GI issues, and sand like particles are all there, along with what look like tiny dead worms at times. I also see tracks in my skin, and I have muscle twitching and spasms. I was diagnosed with anaplasmosis a few weeks ago by my LLMD, which is a tick borne disease. I was hoping the antibiotics would take care of my symptoms but t didn't.
I ordered the protocol and am anxious to start. I also looked into a Dr in Arizona who thinks Morgellons in linked to toxicity to dental materials. Anyone else look into that or have experience with it?
To me it feels like I am infected with some type of tissue dwelling worm that is systemic, not just skin related.
Anyhow, I'm feeling super scared and lonely today and would love to hear some succes stories from others. At times I'm just not sure how to make it through another day like this. I know we have so much to be thankful for, but I'm having a hard time seeing that. I'd love to hear of big wins little wins, any thing you think would give hope.
Thanks for listening. With love,
Thank you so very much Lady T! I greatly appreciate your help. You have answered many of my questions. I will look into all of your suggestions.
May you be blessed. :-)
Be sure to use enough fiber in your diet to help move along the clay- and while I have tried a few powdered bentonite clay versions - the sonnes #7 is s special formula because they "use a special process to refine raw bentonite clay to remove mica, dirt, and other impurities in order to concentrate the active detoxifying ingredient, montmoriillionite. This procdure places montmoriillionite into a collodial suspension land retains the innate negative charge.this allows the absorption (physical binding) of positive charged metabolic, environmental, and.chemical wastes! It powerfully sweeps through to absorb stuff in the alimentary canal - has the ability to absorb 40 times its weight in positively charged substances. It is not digested and it has physical properties that tightly bind the bad gunk to be excreted" -
and it is superior to any other purified bentonite clay and only about 20 bucks - and a bottle lasts me a month -
But taking the fiber with clay is key in order to move out that gunk.
Look up P & B shakes (psyllium and benronite shakes) which are just fiber and clay - but it is the gentlest and safest cleanse I know - and I have been in groups where folks passed super long tapeworms after months on just P & B shakes - and I know it really helped me many years ago pass some stuff - but back then I did not know how to rebuild the terrain and I barely took the greens and beets that I had - but now I know about rebuilding.
So be sure to take fiber with clay (and trust me you need to move out the stuff that is absorbed) - and sonnes sells a fiber to go with it - the intestinal cleanse #9 - but i used big container of psyllium powder (I like yerba prima brand for powder fiber) but in addition to this -another option Is the super colon cleanse from health plus inc. - doing this on and off will also clean small intestine.
Another Imprtant thing is to not interfere with the logos supplements
make sure you take the bentonite clay at different times from all supplements because it will interfere with absorption.
The clay will also later help you absorb more from stuff (as it wipes away Mucoid buildup and pathogens) so I took mine in middle of night with water and then sometimes during the day way in between stuff (took a swig without water) cos the bottle says to do it this way - once a day with water and once a day straight! and this was powerful for me years ago and recently with MD.
Regarding the profession you are in - I have heard that nurses have a very high incidence of MD- it could be numerous things - but I think MD has no respect for profession (ha) and I think those who get it have had flora issues inside - and then candidiasis and a mix of toxins that allowed MD to survive.
IN my informal opinion on the handwashing - (others here might have more to share) but I have have heard some people say we do not absorb with our hands as much as people think - God made us with a nice barrier to keep things out- and the reason transplants are possible is because of DMSO - and horse owners I know use DMSO to deliver needed stuff through muscle - and so some believe that the hands are not as absorbing of these soaps - even tho Skin is an organ and is still a part of us. I tend to agree right now (but still learning with everyone here) -
In my very humble opinion, I think that stuff in the small intestine (and large) is a key root cause - and stuff throughout the GI is covered with the fungal form of candidia - then the biofilm and parasites that should be removed or lie dormant - are able to live in a new way - which wreaks havoc inside.
Fungal candida can actually change the way heavy metals function - so while a bit of some heavy metals might be okay - the candida can make them morph and change in certain ways - so stuff like this reminds me that it is less about external exposure to things like hands and most about the entire GI.
And later I still want to come back and reply to a post question about dr. Amin and the parasite center in AZ-
Because while I do think folks need to address dental work - I think many folks can overcome MD without it - I know I did - I almost had my porcelain crowns removed - so glad I did not - but later I might have my one root canal taken out.
Some dentists have shown with research (and I can send names later) that so many toxins in the body accumulate from root canals and fillings - !
but in the dental world most dentists are taught that root canals and fillings are fine - and for some people they might not cause overt issues - but some very legit studies show otherwise - some show they can be nests of bacteria -and lead to CFS and MS- etc.
I think dental work can trigger or Leave people vulnerable to MD - but if it was just from dental work - why do kids and pets get it too? Because you see - dental work might play a role, but it is from a burdened immune system - and immunity is related to the many feet of intestines and all the systems firing together - I am sure as a nurse you know all this - but I know for me I had to relearn much stuff .
And so with hand washing - I am not sure if you can use lotion or not - but if it were me - I would try and counterbalance the washing with a thin layer of castor oil, lanolin, or jojoba oil (non greasy and does not stain)- this will feed your hands and replenish. Not sure if this would work in a hospital - but I know some folks who Bring their own soap to use at work. Either way - I think the toxins inside you are what need to be addressed and just keep doing what your doing with the minimizing exposures while washing up. And side note - thanks for being a nurse - it is such a special profession with caring for others -
Lastly - I used the premixed CDS for a while and it was a nice treat and seemed to be effective - but it was really nice to have it premixed.
Hwoever - I went back to the other because it was cheaper and I did not want to have keep ordering from Australia
I also liked the other mix better - but I think ithe mixed one is a good option as you heal up - and get more into the protocol - but please let all of us know how the CDS works for you - I wonder about it too.
Okay - just my thoughts - oh and when you eat out - make sure to stay away from sugar - Bread - and processed carbs - and take your supplements as planned - ;)
There are some amazing people here! Although I rarely respond, your posts are encouraging and I thank you. Especially all of you who are healed and keep giving us hope. Mel, thank you for your uplifting words- every time I feel wimpy and want to quit, I think about what you said and how you love life. I want to be that way. Live and love to the fullest - so I must get well. Peter, you are very much like Simon Peter. You support us and guide us with your wisdom. We are so blessed.
John B, the Logos supplements really work. my hair and nails grow like never before. It also helps with my sugar cravings. I know that my inner terrain was really messed up.
Diet is the hardest. I work full time and my husband does not cook and is a fussy eater. I either cook separate foods or eat out. Which isn't good. But cooking takes energy.
I wonder, does anyone here with M work in the medical field and use ethyl alcohol hand wash? We actually have spies who will write down whether or not we washed before and after entering a patients room. I have used it a minimum of 20 times a day and usually a lot more. I wonder if there is a connection. I have started using gloves and then foaming my hands. I only wash with soap and water now.
I started taking Bentonite Clay supplements that a doctor gave me. At first, I felt terrible and thought that I was getting the flu because my husband had it, but then yesterday I felt amazing. I had energy! I have had thick sputum from the clay but my siuses are very clear.
I have had problems with MMS causing burning in my esophagus. I am now taking the premixed CDS. I hope that this is as effective as the other.
I will continue to post because I need the accountability and because some days I have felt so low I know I need support from others who understand. Thanks for letting me ramble in this post!
I too want to thank you for your journey, and the two conference calls you were on. They're very encouraging. Even just yesterday I listened to the Ellen of Troy conference calls three consecutive times throughout the day, it truly gave me hope.
I agree this disease challenges us in every aspects of life, and it definitely require spiritual strength to combat this war.
I believe the same 1 Corinthians 10:13 if God permits it we can handle it because 2 Corinthians 4:7 he provides us the power beyond what is normal.
Thank you once again, you truly made a great contribution to this fight. Many of us have benefited from your example, meanwhile you humbly went through this experience.
This reminds me of 1 Peter 5:6, one of my favorites "humble yourselves, therefore, under the mighty hand of God, so that he may exalt you in due time."
Dear Ellen, you've done it and he did do what he's promised.
Love with appreciation,
I just read your story. My story is so similar to yours. I got infected in May 2015. I consider myself so lucky that this site was available to me by the Mel and the other warriors like yourself who paved the way for the rest of us so we could combat our disease sooner. I consider myself "almost cured". The only symptoms I still get are burning scalp (especially in the back, where it ALL STARTED last May), and my forehead gets burning and prickly every once in a while. Like you, I believe it happens from something I ate.
Thank you so much for your story, it gives me hope!
Hello Nan, (and Peter)
Thank you for your post. I think you are right that if you were sick for a year, you may not get well as soon as those of us who started the protocol sooner. I can usually tell when someone has the strength to follow the plan and get well, and it sounds like you are well on your way!
To answer your questions:
I got these symmetrical large bruises, only in the beginning. They went away after the first few months. They weren't typical because I had no pain when I touched them. That's why I was frightened. I knew it was not like any bruise I ever had.
For tests – I went to my doctor with the page on this site that recommends the tests needed. I just printed it out and gave it to my doctor. When the results came back, she dismissed anything odd, saying the results were still within the normal range. For example, my body temperature was low, even though normal for me was 98.6 my entire life. My white cell count was high, my vitamin D was very low.
I lost 15 lbs in one month, a lot for someone 5'. My test for Lyme was negative and my thyroid level was ok, but I think better testing from another doctor might have produced different results.
What I decided to do was not fight the medical establishment any more because I was too tired to keep trying to find a sympathetic doctor.
I just followed the diet and protocol and got results pretty much from the start. It's not easy, but I always felt that the plan I was following would be a healthy way to live and that by following the diet, I would be prolonging my life.
Keep up what you are doing, and continue to reach out.
Best to you,
Hey Ellen...Hey Nan
I have no doubt that "others are following you closely here." This is how you make this site flourish! Love you guys!
Thank you for this post. It provides the steps for hope and healing. I am so thrilled you are healthy and cured of this disease. I have listened to your conference calls several times and they have been so helpful as well. One of your conference call was the first one I listened to. I was so sick and wonder how am I going to do all this stuff. I did as you suggested and asked for help from neighbors, co-workers, friends and strangers. I looked pretty bad and even the manager at the drug store helped by ordering extra tea tree oil, and anything I needed. I did not like to drive when I was really sick and could walk to this store so her help with supplies was so great. Also, like you, I was concerned about the MMS in the protocol, but knew that this is the critical part in order to regain one’s health.
I have been on the full protocol for about 9 months. I had been ill about 1 year prior to finding this website so thought it may take more time to get my health back, but I am at the stage now where I wash my sheets 2 times a week and clean the house weekly with vac and mop with non toxic items. I found my head still itches and my theory is it is caused when I eat something that my body is not ready for (i.e. berries and kind bars). I just use the lint brush on my head & body and stop eating that item then try it again next month. I may have to do a little spray of Kleen Green mixture on my crotch which stops the head itch. It sounds funny, but effective. This disease likes warm areas and one’s crotch is probably one of the warmest areas on the body. I have some static electricity return this last week, but checking the weather channel I found that we have had a lot of thunder storms lately in the surrounding areas and my guess is that has contributed to this returning symptom. Again, I take the lint brush many times across my whole body and it seems to go away. If not to humid outside standing in the sun helps too. My biggest issue is lack of focus and fatigue at this time. I thought it was over, but has returned these last few weeks. It is bad where I have to set a buzzer to take my vitamins (protocol) since I space out sometimes. I think I am ready now to try to see a doctor again, and get some test to see if any other issues may surface. Mel agrees and suggested I make my place colder since this disease does not like cold and also, as you mentioned, it should help with dehumidifying. Now, I will look at switching to cheaper electric company to see if I can keep cost down. Mel’s other idea was go to kosher butcher and have a hamburger. I thought that was funny suggestion at first, but my thought is I may have iron issue so a friend suggested kosher restaurant that is open 24/7 in the city so getting hungry thinking about it. I do appreciate the help provided by you, Mel and others.
In this journey I must say I agree with your post about one’s spirit and will to win; I think it is 80% of this battle. Do as much as you can and keep trying. Keep good thoughts forefront is critical to moving forward. You must follow a plan and believe you can do it. A plan can be found thru out this website, like your post below; follow the protocol as it is documented, have a clean diet, drink lots of water, clean your environment, strong spirit, community that can help, research and learn, document your journey to note if need to ask for help or make adjustments, manage your budget, exercise, rest, give yourself a break if not perfect, be mindful, slow and steady, stay calm, stay strong, and keep doing it. You did it! Awesome!
I do have a couple of questions.
1. You documented that you had large round bruises. I have some on my legs. I thought it was from moving furniture while cleaning so thought it was interesting when you mentioned it. Have your bruises gone away like the rashes and other symptoms?
2. Also, you mentioned you went to the doctor for all the test; blood work, heavy metals, metabolic series. If you have any more specifics on what test let me know. Per Mel’s input I have asked Bill for Lyme doctor, but think I better have some more understanding of these other test as well.
Thanks again for sharing and caring.
My name is Ellen. I post on various threads on Mel’s site and on my thread, "A New Warrior from MA".
After getting very sick with Morgellons in August/ September of 2012 and after a year on Mel’s protocol, I can confidently report that I am cured. Others new to this disease need to hear stories with a positive outcome to give them hope to push on. I have said this repeatedly - there is nothing special about me. If I can get better, I believe anyone can. Everyone's body is different, so it will take different amounts of time for each of us, but believe that you will get well too. Curing myself of this disease wasn’t easy, but now that I have been through hell, I think I can tackle any health issue that comes along. I'm a different person today – hopefully a better, stronger, wiser person.
I don’t know what initially infected me, but in July of 2012 I got some bites that were very large and itchy, and after spending thousands on pest companies trying to rid my house of insects, I slowly cleaned my environment on my own. I took out my carpeting and now have just tile and wood. In the beginning I washed my clothes, sheets, floors and surfaces every day. I assume that I killed every living thing in my house except for me. Now I can do sheets once a week and can clean the house less often to maintain it. I also ran a dehumidifier and set it at 46 %. Supposedly mold and some bugs don’t thrive unless the air is more humid than that.
My daughter, who is a scientist with a PHD from Columbia University, found Mel’s site while researching my condition. My symptoms included: lots of black specks, white, salt-like specks, some crazy colored fibers, low body temperature, a horrible red rash on my neck and chest, tiny, scaly bumps on my legs and ankles, terrible head itching, cuts that wouldn’t heal, large, round bruises and a constant feeling of being nauseous and dizzy. We were both looking at bird mite sites, bed bug forums, everything - but never got to the cause of the infestation. The only thing I found in my house was fungal gnats (identified by one of the pest companies.) I will never forget when she said, “Mom, I think you have this thing called Morgellons." I had come to the same conclusion from my searching online and was terrified. I began to get my documents in order for my family in case I got any sicker.
Armed with information and encouragement from Mel’s site and the community surrounding his protocol, I now had a plan. I went cold turkey and eliminated all sugars, flour, dairy and acidic foods, felt better within a few weeks and dramatically better after starting the Logos Nutritionals supplements and MMS. The reason I started on the protocol and stuck with it religiously was because I was feeling like I was living a nightmare and I had nothing to lose. I knew I couldn't continue the way I was. I stayed close to my loved ones if only by email and phone, and came to a better appreciation of life. I didn’t know, and still don’t know if I was contagious, but I spent a lot of time by myself that Fall. Now I realize it gave me the opportunity to rest, which is vital to getting your health back.
I was lucky I could keep my part-time job, and to have supportive family and friends. I was also careful, however, who I chose to confide in. My PCP doctor did all the tests (blood work, heavy metals, metabolic series) I requested, but then asked that I see a psychiatrist. As a professional in Human Services, I was angry and insulted, but replied in a cheerful voice, "Sure!" I have since changed doctors.
This disease taught me to be patient with others, and we need go easy on ourselves too. To think we have brought this on because of something we did is pointless. I have no idea how I got sick, but because of unknown parasites, and the toxins in our food and environment, I believe everyone is at risk. I was not sick with any other disease or with a weakened immune system, but I did have to go on two rounds of antibiotics that summer for an infection.
I couldn’t sleep in the beginning due to the fear and also due to the constant itching. I got a prescription for Ambien which gave me terrible side effects. I weaned myself off of it after two months, and by that point the itching had subsided, so I was able to fall asleep.
Some things that helped me . . .
For breakfast I have an egg with an English muffin (Ezekiel flourless) with organic butter and either a detox tea or Red Rooibus tea. I sometimes make omelettes with 2 eggs and add vegetables and a nondairy/non-soy cheese. I alternate that with Ezekiel cereal with almond/coconut milk, unsweetened coconut, ground flax, chia seeds, and cinnamon and Stevia to taste. Sometimes I add berries. Or make a smoothie with those ingredients and add organic spinach or kale.
For lunch I have a salad and I try to put 5 items in each time as well as a protein. So that may be lettuce, peppers, tomato, cucumber, red onion, cabbage, broccoli, avocado, or whatever veggies I have. I add cooked chicken, quinoa, or an egg on top. My favorite dressing is lemon juice, olive oil, salt and pepper. Minute Maid makes a lemon juice with nothing added, in the freezer section of stores and it saves money.
For dinner I have soups or fish, chicken or once in a while grass-fed beef. I like to roast a variety of vegetables with olive oil. I use a lot of onion, garlic, cayenne, curry powder, cinnamon and other spices. I never felt I had to eat raw everything, and I got better with a variety of cooking and preparing. I do try to get everything organic and local, but I'm not obsessive about it. I just do the best I can. I'm kind of an ADD cook, so I never follow recipes but just try to prepare foods I like and adapt them to the protocol. Not always easy, but doable. I have used coconut flour, almond flour and brown rice flour in recipes as well as pastas made from brown rice and quinoa. I think the most important thing is to avoid white flours, white rice or anything that we convert into sugar.
I never used coconut oil in my cooking because I couldn't get used to the taste, but I do use it on my face every day. Mostly I use olive oil to cook with. When I wanted a treat I ate Kind bars - the dark chocolate and sea salt have only 5 grams of sugar and I felt like I was eating a candy bar. In between meals, I snacked on almonds, too. Nuts are very filling. And for more calories, I made guacamole and ate it with chips called Beanitos, also available everywhere. They are made with lentils and black beans, are GMO free and really tasty. I also try to have hummus and tabouli on hand to snack on. When I started to add fruit to my diet I relied on berries and apples. I bake apples with cinnamon and have that for dessert.
I know the foods and supplements can be costly, but here's what I did. I paid the bills I had to pay and got behind in others. I got a loan from a family member. I am still in debt but now I have my health back. Please don't let finances keep you from getting what you need to get well. Think about who in your life can help you, then make a plan to pay them back later when you can. For me, financial support from the He Cures All Foundation was not an option (although I certainly received a lot of loving assistance from Mel), but there is always a way if we are determined enough.
I took the supplements and MMS EXACTLY as described in the protocol page. For the record, I NEVER mixed protocols. If you do, there is no way to know what is helping and what is not. As for the MMS, I never got the nausea and GI herx. What did happen to me is that at 15 drops I got a terrible headache and dizzy and felt like I had to lie down. The feeling that it was unbearable passed after a little while. I was keeping a diary so I was pretty tuned in to my body at that point. I knew I was at my max. So even though the MMS seems scary, I think it is absolutely key to getting rid of this disease. I was fearful of it, but now I know that I didn't need to be.
As for cleaning, I used Borax, Arm and Hammer laundry detergent, and Kleen Green in my laundry and dried everything on high heat for a long time. I sprayed Kleen Green in my car, my boots and shoes, on the insides of my coats until I felt that I had that under control (after a few months). I washed my floor with a Swiffer and some type of cleaner that was non-toxic. I changed these periodically. I showered with Dr.Bonner’s soap and washed my hair with peppermint or tea tree products found in my health food store. After showering, I used unscented mineral oil with a few drops of tea tree, lavender, peppermint or neem oil on my skin.
These are things that worked for me, and I am not suggesting they should be followed by everyone, but I did spend a lot of time and money on a lot of products before I eliminated stuff that didn’t work. I never used Diatomaceous Earth, and think it could do harm.
In one of my first posts I wrote the following quote . . .
'We should ready ourselves to meet trials: the small and big ones of each day. They are the trials which we cannot help but encounter from one day to the next. It is a matter of realizing that God permits them not to discourage us, but so we can grow spiritually as we overcome them. There are two temptations to which we are vulnerable in these moments. One is to think we can go it alone. The other is the opposite, that is the fear of not making it, as if the trial were greater than our strength.'
I am grateful to all of you for your stories. I still read every single post on Mel’s forum, every day. If you don't have the caring support you need from people in your life, know that it is here in this online community.
Hello Everyone and Welcome,
Four months ago when we started the Coffee, Tea with Me morning conference calls we also offered another venue of communication using Skype. Recently, not only am I Skyping with more people but others are Skyping with each other, which leads to more communication, companionship, less fear and most of all friendship. Those who are Skyping with one another all tell me me they no longer feel alone.
As I had mentioned in an earlier post those who wish to Skype with me, send me your Skype address and I will contact you on a Wednesday or Thursday morning. Those who wish to Skype with one another, join us at Coffee, Tea with Me every Friday or Saturday morning to meet new people, make new friends and share your Skype address.
Hope to speak with most of you soon.
God Bless, those who did not give up HOPE got WELL
There is one other consideration in diet. Based on insulin sensitivity, I incline myself to not only look to what I am eating, but also the time of day that I am eating it.
As I understand it, the body is generally least insulin sensitive in the morning. That means that the body is least prepared to draw upon insulin to metabolize carbohydrates and sugars. It is most insulin sensitive later in the afternoon.
So, In my opinion, understanding this equates to viewing the traditional breakfast of oat meal, toast, or other healthy grains, cereals, or fruits is all wrong. I believe carbohydrates should come later in the day when I am most insulin sensitive.
So,I begin my day with protein. Eggs or a Renaissance protein shake with a small amount of low glycemic fruit like blueberries or an avocado better fits this insulin sensitivity profile. I save my carbohydrates for the afternoon, or early evening, when I am more insulin sensitive.
There is a good article on the Logos Nutritionals web site that explains different body types and aligning foods to each type. This is also useful to understand and an important read.
Hope this helps and becomes useful to you.
I just wanted to chime in about the morning o's cereal - in my experience all cereal was off limits for me- i tried it again as I got healthier and it just was not life giving for me.
I also know many folks from Lyme forums and many there stay away from all grains while the lining of the stomach heals -
I also used eggs a lot during my first few months of healing!
Have them less now - but They are a multivitamin for sure -
I could list a bunch of my favorite foods - but you would still have to see what works for you - and I still tru and watch how much almond milk I have because the sugar adds up!
Many times when we are hungry we are actually Feeding the parasites - or we are dehydrated - or we are nutritionally lacking!
Because of the fungal load with Morgs - I believe many people start off with some level of malabsorption and have a very nutrient deficient body! And I live that the logos supplements are so bioavailable that they start feeding and nourishing -I hate promoting a brand like this - but it is the truth!
During my healing -
I also supplemented with beet powder - and powdered greens - and very early on I bought liver powder from now foods and put it in capsules with HCL! Wonderful! Wonderful!!
But the logos vitamins feed your cells and in hindsight I see this more / and the protocol reduces parasites and helps your body resist better
So for me at least - the appetite really became satiated -
Never was a big eater - but I was a grazer - always snacked - but I see now I was likely needing to chew because of parasites. But that is for another post!
Some top foods for me early on - were trader joes brown rice bread - thanks to Peter for that suggestion in a call archive! Toast and bread was a staple for me before I got sick (stupid that I would have toast as a meal - but I used to think fat free was good too - but now I eat healthy fats!!!)
and so having brown rice bread early on really helped me change my habits- I eventually moved away from needing to have any toast and I eat more paleo style. Yeah - I think I am more paleo for sure now that things inside can process better and all that!
But early on I also lived off of trader joes soy protein shakes - soy never bothers me and this low sugar organic non-gmo powder mixed with water and tasted fine! Not like cake batter - ha! The logos protein is super great -but was too expensive for me- I also bought whey isolate tablets online about five dollars from good n natural - and had some after yoga or when I needed them.
Trader joes slow cooking grits were a nice option- I would make a supply for three days.
Cottage cheese is a special item for me! And as you know there are many recipes here in the site!
Oh - also -
I made soups (lentil esp.) and drank kefir everyday- still do! Sometimes a whole jug - or just a few sips.
I know most carbs should be off limits - but potatoes seemed to work with my body - sliced wedges baked - or mashed with butter -
And I made trader joes organic popcorn with olive oil - and then added salt and butter - this was a dense meal for. Long time! Good snack for teens too - the butter and sea salt has many benefits - mmmm
We have a homemade chili that I also enjoyed - but I also adjusted my life to calorie reduction and times of light fasting for things to work better - but it was amazing how cravings dissipated and how satiation sets in!
I still get hungry, and have times I need to chow - but I am no longer a grazer -and one nice outcome of morgellons has been this contentment I feel!
Back in 1993 I was trying to cleanse with Apple cider vinegar and thought I knew so much- ha! But it took me getting this horrid disease to really "see" that supplements are needed for most people - especially those with candida fungal issues - and to see that the small intestine is where so much immune function is based from-
Our culture eats way too much sugar and most cereal is processed carb with little nutrients - it fills you up but does not give life!
And so we all need to keep that in mind with the protocol costs - it feeds the cells and supplements meals and you slowly feel more satisfied!
for me I ended up eating less because I was finally really getting nutrition!
I also suggest following a candida-rid diet- look online for tips on that'-
Hope that helps and hope you have a good week! Stay strong in your fight with this illness and when you are healed there will be many people you will share tips with- so as you explore new things each week - stay strong and may God bless you and your family - I know this is a nightmare - but it is not a death sentence and people do get healed - and you can too! It takes a while - it does require major life changes - but it is worth it!
I haven't posted in a while as I needed to concentrate on my protocol, family and work and found it difficult to find time to write an update.
I now realize that staying in communication with the forum is therapeutic in addition to being informative.
As for my update, I was doing much better until the start of the year when I seemed to have regressed. In talking to John this morning, he feels this is related to having metal fillings removed at the end of the year. I am now having more crawling on my scalp and also seeing flies which I hadn't seen since I started the protocol. Hopefully this is a short setback.
I do have a question that I'm hoping Peter or someone else can answer regarding diet. I follow the diet as best I can since I'm working full time and have two young kids to contend with but I eat quite a bit of Morning O's cereal, almond milk and almond tortillas. Morning O's is made with Oat and rice flour but I'm wondering if it is ok to eat often.
Other than those, I also quite a lot of eggs and avocados. I love avocados so I'm so happy they are part of the diet.
As I mentioned in another post, I did manage to make the coffee, tea breakfast call on Saturday morning. It was very informative and comforting and I plan to make more of those as I can.
I'll post again soon and hopefully my healing will be back on track then.
Just wanted to mention for those who are dealing with anxiety issues that restoring the gut with probiotics, enzymes, fiber and the cleansing nutrients and clean diet promoted in Mel's protocol will inevitably help promote hormonal balance and healthy brain chemistry.
In the meantime, we do have a supplement that helps lower cortisol levels and lessen anxiety called Anxietame. It works really well, especially in conjunction with MagnifiCal which contains magnesium, God's muscle relaxer.
Those of you who are familiar with our Sleep Advance will notice that Anxietame is the exact same formula, just taken differently. It is not designed to be strongly sedative, just relaxing. And either way you take it will promote deep, restful sleep.
Over the years we had so many people share with us that taking Sleep Advance helped resolve their anxiety issues that we decided to offer the formulation to anxiety sufferers as well. We offer both formulas at the same price, but I point this out to prevent people from ordering both products separately.
I hope this is helpful information for those suffering with anxiety. Please know that we are praying for your perfect peace.
Thank you for your posts letting us know how things are going for you. You are about a month ahead of me I think and I have found it so helpful to follow your journey as its so close to mine.
I know that feeling of anxiety about am I doing enough, or is there something I'm doing wrong. And its such a long journey to be on in such tough circumstances. I feel that it is probably a common anxiety for folks here and all we can is just stick at it knowing that we are doing our best to do everything right. I often ask God if I am missing anything or doing something not quite right and trust that He'll show me if that's the case. I try to take notice of what people say here about what helps them and add it in if I can.
You are doing so well sticking to everything and doing your best to protect your family even though its so hard for you.
I had a recurrence of skin rashes, on a smaller scale several days ago, like you not as I might expect during the full moon. Its faded now as I hope yours is doing.
I wanted to respond to your post to lower your anxiety and calm any fear. Sometime around 8 months into my recovery I was doing really well. Then, out of nowhere, I was revisited with symptoms just as you are describing. I did not understand it then as I do now. It seems that many go through this.
I liken it to the 9th round of a 10 round boxing bout where your opponent has lost every round. His corner is telling him he has to knock you out to win. So, he comes out and throws everything he has left at you, in a last ditch effort to win. Of course, however, it is not enough to overcome you. He burns out quickly and surrenders the fight. That is a good analogy to describe what you are experiencing. It is what Mel means when he says you will get more sick before you get better.
Try to not be alarmed when symptoms return in this way. Instead, look for the symptoms to subside more quickly with each new episode. My journals tell me this happens every six months or so, maybe two or three times before reaching remission. The body is merely adjusting immune response as it evolves so that it can completely take over again. Stay the course. Even though it may not appear this way, you are actually winning!
I've been wanting to get on and update my progress but work and the kids have kept me really busy. Anyway, I reached my max at 21 drops but my stomach became so upset I wasn't able to resume my drops at the lower dosage until about 5 days later. I was doing really well until about 10 days ago when the itching and crawling came back strong. I expected that might happen with the full moon but this time it has been different. I seem to have regressed as I now have bite marks on my neck and chest and extreme itchyness on my neck and legs as well as a burning feeling over a lot of my body. I hadn't experienced those symptoms since I started the protocol 6 months ago. It's gotten me really down as I am having a very difficult time not being able to hug and play with my kids or sleep in the same bed with my wife. The isolation necessary to deal with this disease is very difficult. I'm starting to wonder if there is something that I've missed or done wrong. I'm following the protocol, not eating sugar and following the diet like I'm supposed to though I have been working 45 to 50 hours per week at my job. I'm hoping someone can let me know if what I'm experiencing is a normal progression of the recovery or if there is something I should do differently. I need to convince my wife that I'm progressing to keep her spirits up as well as she is having a difficult time with this too. I pray and give thanks to GOD everyday that my wife and kids have not gotten this. That alone gives me comfort but I'm still afraid that as long as I'm sick they are at risk. I still try to read the forum and it gives me comfort reading and learning from others.
Thank you for posting. Very therapeutic! You are providing important testimony for others behind you, because you are getting well.
Tolerating 19 drops MMS with no serious herxheimer reaction clearly means low die off. Low die off means lower infection load that is less system wide. "A very good thing."
Your testimony supports that Kleen Green does keep the fungal sludge from reloading into scalp. This does help make hair care more manageable. And the things that are working for you will generate added certainty for others. Again, they persuade us that Mel's protocol delivers the science, and the science is sound.
You are doing everything right! What a blessing to see you take your health back. Welcome home, brother.
I haven't posted in a while but just like most everyone here, I've been very busy. I am now up to 19 drops of MMS and still no herxheimer reaction though I was getting a bit of a stomach ache until I talked to Mel and he said to increase the amount of water in the mix to 16 oz. That helped quite a bit. I was doing really well until about 4 weeks ago when some symptoms returned including the head crawling and things popping from my face. I read on the site that some have used Kleen Green as a leave-in conditioner I started goind that and it has helped a lot with the head crawling. So much so that I don't feel it very much at all during the day and none at night. I'm also putting vick's menthol rub on my face at night and that has helped as well. I'm not sure how safe it is to do that but I haven't had any adverse reaction to it after a couple of weeks. Finally, I was also having the nose drip and for that I started rinsing with a NeilMed Sinus Rinse twice a day and that also has helped remove the issue with my sinuses almost entirely. I am grateful others have posted about what has worked for them as I've had success using similar remedies. I've been able to continue working full time without missing any days though I do get tired toward the end of the day and at night as I have to also frequently work at night. I feel fortunate that I am at the stage where I'm at after four and a half months on the protocol and hope that my progress continues as it has been. It hasn't been easy to stick with the protocol and the diet but I feel it has made a dramatic difference in my health. My wife and I have progressively change out kids diet removing as much sugar and gluten as possible. We are still letting them have dairy as we feel at their age they still need it but we are supplementing with colostrum. We shop quite a bit at Costco and get organic eggs, organic milk, gluten free bread and many organic fruits and vegetables. We try to limit their fruit to strawberries, blueberries and grapes at this time. Overall, the kids are doing well. I've started to do more cooking for them as well and hope to try the almond cookies soon. I did make them almond waffles and they loved them as did I. Here is the recipe I used. It is pretty easy and the waffles were really good.
I encourage everyone to conference in to the prayer meetings on Sunday as I've found them very helpful getting positive encouragement and also being able to ask questions from others who have a lot of experience in dealing with our disease. I hope more of you are able to connect in soon. This is all for now but I'll try to post again before the New Year. I hope everyone is enjoying a good holiday season. God Bless.
Paul it is so great to hear not only have you found this site. Life is calling you back to your relationship with God. That divine inner power will carry you through. I I completely understand what it feels like to have a new appreciation of life. I try to focus on my blessings, I believe that positive mindset and faith can really bring the fourth miraculous outcomes . Sending my prayers to you and your family.
So glad to hear you are progressing so nicely. I agree that everything happens for a reason, and He works even through the trials we face to grow us and bring us closer to Him. I can't wait to see what He has in store for you on the other side of this challenge.
Our prayers are with you and your family.
I am in Texas too. I am in the southeast part of Houston. When I reached out to God I found this website as well. I am so happy your are here and improving so much. I am happy you got on the protocol and diet quickly. One of the doctors, I saw, did not tell me I was crazy. He just ran out of the room and said he could not help me. He ran pretty fast. The look on his face showed complete fear. I knew then I better go to higher source. Thanks for sharing your journey.
Peace and Strength.
Before you know it, a sense of God's wholeness, everything coming together for good, will come and settle you down. It's wonderful what happens when Christ displaces worry at the center of your life - Philippians 4:7
Lean on, trust in, and be confident in the Lord with all your heart and mind and do not rely on your own insight or understanding. In all your ways know, recognize, and acknowledge Him, and He will direct and make straight and plain your paths - Proverbs 3:5-6
I am touched by your post. I know first hand what you have experienced and how hard it is and will be...
I am grateful as I am sure (looking back) Peter must have been when he read my early posts, that this experience IS bringing you closer to God.
What I have found with this illness Paul (after having lost most of my material possessions and lifestyle) is that NOTHING in our lives is actually more important than that. Coming into relationship with our Creator.
You will find as everyone (imperfect) lets you down, as your life changes around you (get jobs/ lose jobs, gain homes/lose homes, get money/lose money, gain friends/lose friends), as people you love may shun you, and as hopeless as these cycling M symptoms seem to be, esp in the future when it comes that time that you feel you felt great and then it feels like now you will never get better, that GOD is STILL there with you. Blessing you in small ways. Pleading with you to still trust in Him, not what you see. To stay close and to keep your eyes on Jesus. The words of Jesus (and others if you dare to read far into "that Bible book") will offer you comfort as you come to understand the intense emotional abuse and physical abuse Jesus suffered at the hands of those who "did not know what they were doing" and "who hated him" and his Father's ways.
God was with him then in his suffering, even as he is with us now in ours. God did not want for us to be under his wrath. He did not want a life of sin for us. He righteously righted our wrongs and STILL offers to do so! He knows our end story. He knows our macro (human) and micro (individual) paths and has it fully marked out for us should we so choose to "follow" that path instead of our own selfish, ungrateful, confused, angry ways.
I am glad to hear that you are still able to work, and you still have your wife and children at your side. I greatly look forward to hearing about your healing journey and hope for you to find the support and information here that you need to get well and to get closer to God.
May God Bless You,
"And what do you benefit if you gain the whole world but lose your own soul? Is anything worth more than your soul?" Matt 16:26
Well, I'm up to 11 drops of MMS now. I've been very fortunate that I’ve not had any adverse reactions to the MMS so far. It is starting to smell bad but I don’t mind the taste at all. I was lucky to have found this site after a little over two months of dealing with Morgellons symptoms. I am a research nut and spent countless hours on the internet looking for answers until I found this site and things finally began to make sense. I had the usual biting and crawling sensations and initially thought I had a mite infestation but three visits by an entomologist produced no physical evidence. The entomologist did ask me if I was under a lot of stress and suggested it could be delusional. An explanation that my wife was also considering as she had no symptoms and couldn’t see anything on me that could account for my symptoms. It wasn’t until I bought a microscope and was able to visually confirm the fibers coming in and out of my skin that I knew for sure that I had Morgellons. As most everyone does once they realize what they have, I panicked and stressed myself and my wife to no end. I tried different home remedies that I won’t go into detail on but nothing worked for long. I also went to Dr. after Dr. without success and received suggestions that it was all in my head too many times. When I finally found the site and ordered my protocol, I was having dizzy spells, fatigue and severe brain fog. My wife noticed my brain fog symptoms and began to realize something was very wrong. It was at this point that Mel contacted me and assured me that if I followed the protocol and diet, that I WOULD GET BETTER. I wasn’t totally convinced initially but I felt so much better having talked to someone who understood what I was going through and who had conquered it. It wasn’t long after that, probably about three weeks, of being on the initial protocol that all of my dizziness and brain fog went away. I also had a bad case of stinky breath that had developed two weeks before starting the protocol that went away within two weeks of being on the protocol. I was so amazed how quickly I had started to get better. I still had the skin issues to deal with but at least I was getting better. I felt I was on the right road to recovery and the results made me more determined to follow the diet and protocol without fail.
There is a common saying that everyone I’m sure has heard that goes like this, “Things always happen for a reason”. As bad as this experience has been, the one good thing about this disease is that it has been brought me back to God. I grew up in a religious family but slowly drifted away from GOD after graduating from college. I’ve had so much success in my life both financially and with my beautiful wife and children and I don’t think I fully appreciated what GOD had given me and how I took everything for granted. Having this disease can make you feel so alone but once I reached out to GOD I knew that I was not alone. GOD led me to this site and working through Mel and everyone here has put me back on the road to recovery. I now pray every day as does my sweet, sweet son for my speedy recovery for both my family’s sake and mine. I have put my life in GOD’s hands and know that whatever is to come is his plan.
Good to hear from you Paul! Glad you're feeling better already and look forward to hearing your about your healing journey as it unfolds!
Thanks for sharing with us! I'm so happy to hear of yet another person having good results with the protocol. It's so important to share this kind of news because it really helps to bring hope to others.
I always wonder myself how Mel keeps up with all of it. He has seen me through some rough times as well, even beyond M. You have a good support through the website, we are here for you. I look forward to hearing about your healing journey.
I'm a very private person by nature so writing on this website about my experience isn't something that I would normally do but I promised Mel that I would talk about my experience in the hope that reading my journey may help others as reading about others has helped me. I'm on my tenth week and am now taking 9 MMS drops every night. I started to feel better after a few weeks on the protocol as I was suffering from brain fog and dizziness right before I went on the protocol. After three weeks, the dizziness and brain fog completely disappeared and I knew then that following the protocol was the right thing to do and something I had to do. I have posted a couple of times asking questions of others and everyone here has been so helpful as has Mel, who I still don't understand how he finds time to help all those who are contacting him for help like me. I pray every night and thank God that I found this site and for leading me to Mel who cares so much to help so many people that he doesn't initially know. I just finished listening to the last conference call and it was wonderful listening to everyone, especially those who have already conquered M. I'll fill in my first nine weeks in my next post but for now, it is late and I have to get ready for a big day at work tomorrow.
How are you doing Molly? I was thinking of you throughout the day, and I'm hoping you're doing well.
Psalms 41:3 "Jehovah will sustain him on his sickbed; During his sickness you will completely change his bed".
God is that caring Father, when a child is sick let's say in a hospital, the loving parents stay next to that child's bed until that child heals completely. God will continuously be next to our sickbed everyday, stays so close to our bed.
May he cuddle you like the great shepherd Isaiah 40:11 "Like a shepherd...With his arm he will collect the lambs; and in his bosom he will carry them."
(in his bosom)
I prayed for you yesterday and today!
I also try and say a blanket prayer for those afflicted with this and right now I pray in Jesus name for strength, hope, wisdom, and inner peace to flood all on this healing journey!
May God's peace that passes understanding, fill us up!
I'm pretty new at this, I start to think about what helped me in the beginning. Today I remembered by listening to the conference archives helped a lot, they're comforting, encouraging, informative. I sometimes even listen to it while falling asleep. They calm me down. I hope it'll support you too.
I agree with Mary, this protocol will Heal you
I believe on one of the archive Monica said,"once you find this website, don't have to fear anymore." When I heard that it comforted,especially she had such conviction in her voice. That helped me.
Thinking of and praying for you,
I want to welcome you and assure you that you have found a place where people are coming together and getting well. If you remain here, you will find everything you need to take your health back.
There are many loving, kind, and knowledgeable spirits here to support you with this terrible disease. And there is great hope for recovery here. I got well here.
Here, we focus only on the cure. Here is how you begin. Read the FAQ page. Then read Mel's story. Then visit the protocol page. Then you can begin to read the numerous posts and listen to the conference calls. We have regular prayer meetings every Sunday. Mel has regular morning calls every Friday and Saturday to talk and share.
I hope my response persuades you to look deeper here. There is much truth to find, and the best chance for reaching remission.
Strength and Love,
It has been a while since I heard from you, last December. I see the MMS dosing is changed so the full moon notice should not be necessary.
I would appreciate a time that I may speak to you other than the coffee,tea, etc days. Please let me what time I may call you or what time you may call me. I am feeling very uncertain about what to do.
I'm praying for you also! For strength and courage and faith as all 3 are needed in addition to the treatment protocol described in Mels Protocol link at top of the page. The sooner you can get started, the sooner you will be healed and healthy again.
I'm sorry for you're going through.
I agree with you.
Yes I will specifically keep you in my prayers
Right now is hard for us suffering(ers), but God has our backing!
He's got this!
What has helped me out is what Isaiah 41:10. Especially when I make it personal to me. " Do not be afraid. For I am with you (Molly). Do not be anxious, for I am your (Molly's) God. I will fortify you (Molly) yes, I will help you (Molly). I will really hold on to you (Molly) with my right hand of righteousness”
And when we do cry, please remember Psalms 56:8, that God values our tears, King David asked God to collect his tears in his skin bottle. God knows this is hard, he knows our tears demonstrate our endurance. He values our integrity to him. You have maintained your faith and love for him even under hard times. I can tell because you believe in prayers and you're seeking his assistance . Please know you have the endurance of Job, That's beautiful!
One day this will be an event in the past. There are many ahead of us have done it, so we can too! Often this scripture comes to my head, In Ecclesiastes 7: 8 says, "Better is the end of a matter than the beginning..." And when we look back to this time, this trial we can say that we are victorious!
Actually, You ARE victorious everyday while going through this trial! It's a hard trial but you are doing it!
Again I know what you're saying about being normal
Hello Sarah and Welcome,
To avoid the appearance of practicing medicine, may I suggest you join me for the Coffee, Tea with Me Breakfast Conference Call either Friday or Saturday mornings!
So I may respond to your inquiry.
Never, Ever Give up HOPE!
Would it be possible to post the recipe here for the lemon water and cayenne pepper cleanse that people have mentioned helps with the crawling symptoms?
I know it has been a while but I wanted to reply and say that I found great hope in what you wrote. Thank you for sharing your wisdom and words.
I love what you said about the potential for joy existing side by side with suffering. This is the hardest thing I have ever been through, but it has taught me a lot and I have faith that it will not last forever, that I will come out the other side and be a better person for it.
Thank you for sharing the verse. I highlighted it in my bible and over the past month it has given me hope and strength.
Gale - Thanks for your forgiveness and kind thoughts. I also hope and pray that you are able to find the strength to fight this each day until you are better.
Lady T - Not a problem! I am just as bad obviously haha. Thanks for your response and for sharing your wisdom as well. I have gained so much from what you have shared. It is definitely a marathon but nice to stand in the faith that it will end.
Hi Gale! Thanks for the reply.
the online course sounds very helpful for coping and stress release! Also sounds great for personal growth in general!.'Please keep us posted!
sorry about the current breakout on the face - good thing you can pull back - also I hope they are healed by the time you interview -
And best wishes with the job interview - I think it was a wise move to opt for part-time!
I just read where Mel was REMINDING someone how crucial the sleep and rest is (vs. cleaning- ha!)
We both know this sleep time is when our body heals and repairs! It was hard for me at some phases to devote so much time to sleep - but my symptoms were always calmer after a good night's sleep and things always just felt better!
I once had family in for the weekend and set my alarm to get up and cook brunch for them - but when it went off I turned it off and slept til noon! They all went out to eat and I apologized and just said I really needed to sleep in- it was terrible in one way - not my hospitality style - lol - but in another way it was just what I had to do that day. I had t selfishly pull back and fight to not get off track. I still
don't regret it - ha! I could have pushed and got away with it - but I just started realizing how "pushing it" only delayed healing! And I will have plenty of other times to be the better hostess.
....rest is a huge part of the healing pie! -because it is our immune system that heals us! The MMS, herbs, HCL, silver, and other things attack the pathogens (fungi, parasites, bacteria, etc,) while the logos items slowly feed our cells, feed the glands, and give nutritional support (life giving fortification) to the body systems. But it is our immune system that allows our skin (and gut and organs) to heal and repair etc etc
Okay - I don't want to hijack this thread either - but if you want to email offline - please get my email from Mel!
Hi Lady T,
Thanks for asking about me! I have enjoyed our exchanges too. I'll will try to keep things brief so as to not hijack this thread on fear & anxiety but on that note, I found a free course here in Australia which is run online over 8 weeks for anxiety & depression so I have started doing this & am finding it is giving me some useful skills to practice. Maybe others will have a government initiative like this in their areas too. It's worth investigating.
I still have not found a job but I must admit, the last month has been a bit challenging physically & mentally so I have not given 100% on my search... maybe 70% but I do have an interview next week which is great.
I have decided to only work part time for a while as this will give me more of a chance to focus on getting well and whilst things will be tough financially, I think the reduced pressure of not needing to maintain appearances 5 days a week will do me some good. I also decided I want to work towards getting a degree and have started a course in Health Science majoring in Nutrition. This too will be done with a 'slow & steady' mentality but I am looking forward to starting it next week. I have the option to do it online if I struggle to make it in to class physically which is great.
I am still having bad hair issues (hair loss & moving hair) but I think it may have slowed a little. I thought my skin was improving last week, which it definitely IS on my lower right leg (previously full of lesions for last 9 months) but this week I had a mass outbreak on my face (of all places) so I look like I have a serious case of chicken pox and have been hiding out at home. I am at least grateful I haven't had to make any appearances at work looking like this!! I have sat for hours at a time rubbing coconut oil into my face and extracting HUNDREDS of 'bits'... it was a non stop stream of them! I believe this has helped and I am hoping this is a final purge.. maybe :) (wishful thinking, I know).
Other than these issues mentioned, I guess I could say things are going OK. I have enough energy to continue with yoga and have even managed a few ocean swims before summer finished. It was so good for my whole being to do that :)
Again, thanks for checking in and I do hope you are doing well too.
Hello everyone on this site and especially to those in this thread!
First of all - Sarah - I apologize for only now getting back to your reply. I am bad with following threads and I know I have missed other comments! However, I was also fasting from some online outlets!! But tonight I felt led to come back - and wow! I really really soaked up every word in the various recent pists! So thanks for that to those who shared.
Sarah, I will look up your suggestion and get back with you. ;)
Second, I was digging through the current posts tonight to see how Gale was dong!! I enjoyed sharing with you in January and I am sorry about your job loss and hope things are working out! Remember that God is Jehovah jireh - our provider - and I have seen time and time again how he provides - how he makes the crooked way straight - how he meets our needs and in the bleakest of times He provides!!
I am sure you have seen this too - but even with this times can grate and it can really pull and get heavy!
Gale - I see that the post with the job new was from a while ago so I am not sure how it is going - but I pray for you right now - and in Jesus name pray that God would provide every single thing and that no weapon formed against you will prosper
I pray that for everyone on this forum! That no weapon formed against us will prosper! I pray that these afflictions and trials will run the course while we anchor in the Lord! That we will be empowered as we fix our eyes on the prize -
That we will see how healthy we will be when done and health is priceless - and worth more than any possession or job.
And so in Jesus name I pray that we all will stay strong in the lord and in the power of his might - that we will be rooted and firmly grounded in him - as HE is the author and finisher of our faith!
It is in and through him the we succeed and as we learn more about how this plays out - as we learn more about how he is strong when we are weak - and as we rest in him and grow in our intimacy with Him - may we find comfort in this all! Let us embrace the loving almighty God of the universe - may we celebrate his awesomeness and smile because of the gift of life!
One day we will go to heaven and meet our maker face to face - we will be welcomed by our welcome team in heaven and oh the joy with no more crying - no pain - and ahhhhh!!!
But in the meantime, God has left us here for a reason! God could have taken us home in an accident or with cancer - but instead we get this crazy misdiagnosed condition !! But it is.
God has made a way and this protocol is part of it!
In my case, healing from morgs has extended my life and has given me a better quality!
It has given me the quality of health I prayed about for decades! I am mostly symptom free, but had a small relapse last fall when I worked around mold and bad indoor air - anyhow - later I plan to share more of my journey more formally- but hang in there if you are in the valley with this! It takes time, but restoration comes.
I am also someone that prays for people with this ailment! Sometimes while making tea Or just while driving!
Thanks so much to those of u that pray for all of us too -
too many to mention by name! But I really thank you! I know what it does in the spiritual realm ;)
And coming to the forum tonight was such a God appointment for me!
Peter's sharing about the things he was grateful for was a chilling post!! And Linn, thank you my friend for the word of God you Inserted into your posts- from the Corinthians verse to the rest I found the powerful majestic wonder that comes with the word of God! It is something not everyone gets- but the word of God is truly ointment for the soul! I have been heavy hearted this week and as I was digging through posts (to see how Gale was doing and to maybe see how her yoga was going....) well as I read and skimmed - I was flooded with this encouragement and it was unexpected - so thanks to Linn- and Margo! And thanks again Sarah and all of the ladies here in this thread (((heart))) - and super grateful for the three musketeers (Mel, Peter, and John) -
i feel so blessed right now and I am actually kind of speechless. I wanted to comment on a few other threads here, but might just have to come back later - because for now I soak up and feel the ecnouragement that came oozing my way (sorry - only word that came to mind)!
Hang in there to all of you because this morgs healing is a marathon and not a sprint! This morgs thing is a horrid systemic ailment - but healing is possible and this protocol works - it just takes time......
Be encouraged and be strong in the lord!
In reading these posts, I can definitely relate. The fear and anxiety of not knowing from day to day and moment to moment what is going on with our bodies is sometimes almost impossible to deal with. It seems like our bodies have been taken over and we have no control over what is going on. At least, that's how I've felt a lot of the time. In dealing with my situation, I have become more in tune with my body, emotions, surroundings, energy and intuition. I have slowed down a lot and take my time doing things, which I like. I have also become more aware of other people's actions and realize that a lot of people are afflicted with either Morgellons or other conditions that are related to this and they don't even know it. I have become more compassionate and my goals and values have changed a lot.
At one point a couple of years ago, I gave up my struggle to God and Jesus, realizing this battle was too big for me alone, that I needed spiritual help. Right after I did that, Jesus came to me in a vision and said, "Let me take this burden from you. This is My Battle." I immediately felt a deep peace come over me and a heavy weight being lifted from me. It was at that point that my battle with the intestinal worms was the hardest, but I started seeing improvement. I absolutely believe in the power of prayer. We must remember that we are Spiritual beings here inhabiting these human bodies that can be attacked, become disease ridden, crippled and a myriad of things. But, WE ARE NOT OUR BODIES! I also believe this world is pretty dark and there is a Great Battle going on for our souls. We have to stay strong and persevere, whatever it is we have to endure as we also pray and search for answers.
Healing comes in many forms - not only physical, but also emotional and psychological. I realized a while back that I may never be 100% again physically, but as long as I'm improving and have my spiritual connection with God, that's the most important thing. I concentrate on what I CAN DO, not on what I CAN'T DO. That helps too. We must never give up hope, like Mel says. There is a difference between surrender to God for help and giving up. Once you understand that, it becomes easier too.
I feel like I'm coming know many of the people here just from reading the posts and from some of the conference calls I've attended. We are all struggling and this is a wonderful place to know that YOU ARE NOT ALONE.
May God Bless us all and guide us in our individual healings and together, we create a great force of Light in the darkness.
Thank you for your nice reply and of course I forgive you :) I know that there is so much to deal with in having this affliction and we can become time poor.
I think we all have differing experiences of M and not everybody has all the same symptoms, it's just how your particular bodily terrain deals with it.
I am glad to hear that you have found some help from the posts made by everyone and sometimes, you just have to get through the day and deal with tomorrow tomorrow. Hoping you continue to find the strength to get through one more day until the day when you are symptom free.
Dear Sarah, Gail, Martha Mary and Ruth.
Life operates in cycles of darkness and light, of cold and warmth, of death and new growth. Nothing remains stagnant forever, and the potential for joy always exists side by side with suffering. Morgellons instructed me deeply in this.
Your posts are powerful to read. Why? Because they demonstrate a greater intimacy that is growing between each of you. And because I see that together, you are treating spirit. And this is more important than people may realize. I believe that the Holy Spirit is working greater healing in each of you through this thread.
I remember when there were times when I felt I could not bear to make it through the night. The darkness and despair was overwhelming. But when things were bleak and tough, I found here, a reason to be hopeful, and in my heart refused to give up and give in.
Keep reaching out to one another! In doing so, you renew your spirits and create a freshness of mind that gives each the courage to face whatever challenges that may come. Let tomorrow bring new found faith.
1st Corinthians 10:13....
No testing has overtaken you that is not common to everyone. God is faithful, and he will not let you be tested beyond your strength....but with the testing he will always provide the way out so that you may be able to endure it.
Let your sharing here continue...remain mindful to treat your spirit through extending grace to others... and then "refuse to quit." If you do these things, with devotion for receiving God's grace, with time, the disease will surrender.
Again, "thank you for this thread." I commend you!
In His Love,
Thank you. It is very true. I have some days where my faith is strong, but others when it is hard to find hope. Reading everyone's advice here helps me to have faith.
I am still battling along but all have hope that this will end soon.
Thanks for the advice on Kleen Green. Will do some more research.
I hope you are doing well in your fight.
Thank you for taking the time to respond to my post and I also apologise for the time it has taken me to respond. I am still struggling but your words have helped me.
I am not as religious with the protocol as I should be. I don't eat sugar generally, but will have something from time to time. The supplements I have been on and off with because of money and shipping times. I take 20 drops of MMS every day and have been at this level for a while.
I followed everything extremely strictly for 3 months but didn't notice any changes so it is hard to continue being strict when I lose faith that things are working. Given my symptoms aren't the same as everyone here it's hard to know exactly what I am dealing with.
I am trying to rely more on God. My friend (who knows that I am sick but doesn't know exactly what I'm dealing with) had a spiritual experience at a church conference. The speaker asked if anyone knew of someone who was dealing with an impossible situation and my friend said I immediately popped into her mind. She said she was crying uncontrollably for my soul and a great peace came over her and she knew that I was going to get better, that the impossible could be made possible and this will end. That experience has given me a lot of faith that I will get better. It's hard because I've been dealing with this for 7 years. It started with my scalp being itchy and slowly progressed. It's hard to have faith for a long time when you can't always see the progress.
Thank for your tips about prayer. I have been praying more regularly and your advice is helpful.
I hope that you are doing well, wherever you are in your journey and try to keep all those who are suffering with this in my prayers.
Thank you again!
Firstly I want to sincerely apologise for the delay in my response. I had so many responses and planned to reply to everyone, but got tired after writing out the first block and planned to reply to the rest later on. Unfortunately later on turned out to be a lot later on. I only like to visit this site from time to time because sometimes I don't want to think about the fact that this is what I'm dealing with. I've been super depressed and don't always have to energy to deal with the reality of this. In saying that my delay in responding was very selfish of me. I didn't think about how you would feel. I do appreciate what you wrote and your words really helped me, particularly at a time when I needed to hear them. I'm sorry that I never validated them with a response. I hope you can forgive me. I also agree that what you wrote will help a lot of people, not just me.
I'm sorry that you were dealing with such terrible anxiety. It is not easy. But glad you have found ways which help with this. Thank you for sharing what has helps.
I have been itchy on different parts of my body for about 7 years, constantly looking for answers. But in the last two years I moved home and devoted my whole life to finding a solution. Things have improved in certain ways, but still suffering.
I'm not sure I have morgellons because I don't have all the symptoms. The main ones are being itchy on my head, in my ears and nose and also on my bottom. I feel like things are crawling on me. In the past I had aching muscles, weird indent lines on my skin, fatigue and small papercut marks that would randomly appear. I find white seems to be small white eggs in my hair and also when I brush my hair it seems that I have fluff in it. Those are my symptons.
I have been taking MMS for about 9 months and also taking the supplements, but that has been on and offer due to money and shipping to where I live. I also changed my diet. Cutting out sugar, gluten etc.
My doctor believes it is in my head, although she has tried to help me but nothing has really worked. I gave up going to her.
Meditation is something I feel I should do. When the fear takes over it is very hard for me to deal with and I'm sure this would help.
Thank you for all your tips and advice. I am sincerely sorry it took me so long to reply. I hope that you are doing well and that your health is improving each day.
Hi Mel, thanks for your message, I certainly don't always expect a reply or comment from you in person to everything I post but it's very nice of you to do so on this occasion. I guess I was really only looking for a comment or ackowledgment to the person I wrote to but I understand that doesn't need to happen. As you and Peter have reminded me, the words are there for all to read an I do hope that they are found useful by someone, at some stage.
Personally right now I have a lot on my plate, dealing with this disease & all it entails, and now having lost my job 2 weeks ago plus stress relating to my dad having a stroke earlier in the week. So much going on so haven't been sharing much due to my stress. I don't know what the future is going to hold for me now.
Anyway, thanks again for your kind message.
Hello Gale and Welcome,
Nothing on the website ever gets published that we don't feel will benefit the majority of people. The fact that you were not personally acknowledged is not unusual as most people that read here never say a word. Suffice to say that I have at least 400 emails, in the seven years of the website, from people thanking me for helping them restore their health who have never once posted on our website. Everything we do here is for the future of others.
I assure you that in coming year, thousands of people will read your comments and find what applies to them to be very beneficial.
Understand that if I were not so busy I would have replied to you sooner, but the higher power knows your heart, and isn't that what really matters?
Please keep us posted during your journey of restoring your health.
God Bless You, I Know You will Never Give up Hope!
Thank you for your kind words Peter :)
I want you to feel validated, and loved. "I think the world of you," because of how you gave of yourself in your last post here in this thread.
Don't be disappointed. You gave your all in your response and there are many who will find their way to it in the future. And so they will gain from it, no? Don't lose sight of that.
Everything is a gift. And the Father sees....and knows your heart. You are a blessing!
I guess my words weren't helpful or worthy of acknowledging. Not sure why but I wrote with the best of intentions and took time from my own very busy\stressful schedule whilst dealing with this awful disease myself to write. I was trying to help... but it would appear my words weren't received well. If someone else commented on my own post, I would always acknowledge them, but that's just me.
Thank you for posting again, so lovely to hear from you and hoping and praying that you are continuing to feel more hopeful. It is really hard work fighting off the anxiety and keeping positive, trusting God, refusing to accept the negative thoughts when they come so praying that we can all stick at it!
I live in the UK and order Kleen Green from a UK company which imports it from the US so you might find you have a supplier where you live.
It would be lovely to hear from you again - please let us know how things are for you.
Lots of love Ruth x
Thank you for your kind words and help. I can tell you that by writing here and reading the responses I do feel less alone in my struggle so thank you for the part you've played in that. Thank you for your prayers. I will also pray for you.
Thank you for sharing your experiences and it helps to know what other people have done/ are doing to get through this.
I went through a period of desperately trying to find the bugs that were causing the itching. I put what I thought samples were on tape and paid a lot of money to go to a specialist to get them tested. They came back as nothing but this is an experience that a lot of people here can relate to I'm sure. I haven't been able to order Kleen Green because I'm not in the US. I do use Dr Bronner peppermint soap on my skin and I think that may help somewhat.
Cleaning up my diet has definitely made me feel healthier. I lost about 10kg in the last year through eating healthier and agree that eating healthier is a positive by-product of going through something as hard as this.
I love your thoughts on how although getting this was a shock to you it wasn't a shock to God. That he knew that this was coming but that he also wants us to know that we can trust him, that everything is going to be alright. I definitely struggle with this because I felt like there was a period that I had great hope that this would end soon and then soon became so incredibly long that my hope got weaker. But reading all the comments here and also talking with some people who love me, this has recently helped me to strengthen my belief again. You tips to ask out loud and to open the door of possibility through prayer is extremely helpful. Thank you. I will use your advice. Listening to the conference calls at night is definitely a good idea. I will do that if I can't sleep as well.
Thank you for reaching out and for offering your email address to keep in touch. I will keep that in mind and want you to know how much your words have helped me.
Thank you for your response and for praying for me. It means a lot to me.
Thank you for the long list of tips! I know that would have taken a while to type and I truly appreciate it.
I am beginning to believe in the power of prayer. I grew up in a religious family and have been told my whole life that prayer is powerful. It can be hard to keep the faith when it seems that your prayers are not being answered. But just today my best friend told me that she was at a prayer conference where the speaker was talking about the power of prayer and how impossible things can happen as a result of prayer. They were asked to stand if they had someone who was struggling and she said that I was the one person that came to mind. That she knew that I was struggling but felt a great sense of peace that I was going to get through this and get better. The awesome thing is that I have not even told her exactly what is going on or the extent of which I am struggling. So I believe that God will get me through this and I will come out the other side. I will continue to pray, but not just for myself. I will pray for you and the other people going through this. Thank you.
I do at times listen to Joyce Myers, but I had not listened to Andy Stanley. Thank you for that. I do enjoy listening to inspirational and spiritual talks but could definitely listen to more and perhaps especially at night time when I can't sleep due to fear. I love podcasts so will search for some uplifting ones.
I have a hobby. I make animation videos and I have a blog. So I do take time to do stuff for that and it helps me to have a purpose, to keep pushing towards my goals and to not let my struggle define me. I also do a lot of reading. I love what you wrote here: "Oh my gosh a good dose of Calvin and Hobbes is like a shot of b12 for me!" Love it! I will have to check that out. I am also a lover of music and listening to inspirational and hopeful music helps me. I really like Brooke Fraser. I also use the Five Minute Journal, which I recommend. In it you write down the things you're grateful for, affirmations, and reflect on your day.
I love how you say that all things work out FOR good, not that they are good, but that they work out. Thank you for sharing that with me.
Thanks for the tip about the yoga instructor. I have a yoga mat but never use it. I will look her up.
I also appreciate the advice about physical healing. I have an enema bag and have down them from time to time, but it is something I would like do be better with. And also the foot baths. Had not read about this so good to know that it can assist healing.
I am going to take the words you have given me and say them daily to help me stay positive and make sure that I am living with intention for good things to happen. I cannot thank you enough for your kindness and for your words of wisdom.
Firstly, thank you for taking the time to respond to my comment. For sharing your experiences and offering your tips. I do find the isolation side of it to be perhaps the worst to deal with.
My doctor also think I'm nuts but she is as understanding as she can be really, without experiencing this, afterall we are a product of our experiences. I was prescribed drugs to relieve the itching, but it didn't seem to have an impact. I was also prescribed sleeping pills at one point but I did not want to keep taking them as they also effected my state of mind during the day. I try to stay away from drugs if I can. But I have considered if this gets worse that I will look at going on anti-depressants. It is the night time that I struggle with the most. But reading all the comments here from those who have responded is really helping me.
After reading your tips I have decided to up my garlic intake. I have clove oil so I will try rubbing that on my feet. I try to incorporate exercise and I am taking supplements and doing my best to heal the inner terrain of my body.
I am so sorry that you lost your son. Life can be a hard battle. It's so easy to let the darkness take over your mind but I have many reasons to live and would not want to cause any pain to the people I love, especially my mum who is a beautiful person. I am sorry for the pain that you have lived through and that you too are dealing with this illness. I will also pray for you and want you to know that it means a lot that you would pray for me. Your words have brought me comfort. Thank you.
I'm hoping you're feeling a little better today. I also wanted to reply to your post and I'm glad many others did as well.
I am curious first about how well you are sticking to the diet portion and the protocol. You say you are at 6 months and can't tell if you are improving. Are you sticking firmly to the diet of no sugar/low glycemic foods and alkaline forming foods? Also are you taking all the supplement protocol (Logos, MSM and Silver) and lastly, have you reached your maintenance dose of MMS or are you still increasing by one drop each week? If you could provide this level of detail, then I think we could all know a little better where you are at and if we can provide more information to help guide you. At 6 months you should be noticing improvements if you are following the protocol exactly. It is the Sum of the parts that is healing and not some of the parts.
Then, regarding how I coped with my anxiety, I definitely listened to the conference calls and they calmed me to hear the happy voices of fellow sufferers and their stories of wellness and their faith in God. My faith in God was the cornerstone for me. When I would be literally trembling uncontrollably all night long feeling freezing when it wasn't cold, I knew it was severe anxiety/fear. I would pray intently to God and ask certain saints special to me to intercede (pray) for me (if you ever get a chance to read the lives of the saints, it is inspirational). Some, like St. Bernadette of Lourdes, France is a patron saint of those with illness. Many saints were very sickly in their own lives, but they were so strong in their faith. They offered up their suffering to God for Him to use it for good for others. We can do the same. We are all called to be saints (which means to be in Heaven) afterall. Many feel that God allows suffering to help us become closer with Him, to love Him and give Him Glory and see it as a gift that the Lord is working some great good in us, transforming us, and a gift that we can have the opportunity to offer up something great to God. Suffering also is a test of our faith, it is also to help us reach a place of humility and trust in Him. Life has much suffering and we can't avoid it. Sadly for us men, if all was good all the time, many may never turn to God or feel that He is needed. So, I viewed it in these ways and it comforted me that it was being used to make me a better person and I was being able to do something useful while I suffered. I viewed it as an opportunity for as long as God wanted me to have it. Of course, I also asked God for strength and courage to endure it. And, I asked Him to take the cross of the illness from me as soon as He saw fit. So, try to stay faithful and know that He is always with us and He will reward us for our faith in Him. I always pray that it be His will just as Jesus prayed to our Heavenly Father in the Garden of Gethsemane, "Not my will, but yours be done". I know it is scary to give it up to God's will but we must trust Him. Boy, does this put things into perspective, huh?! I pray for you as do many others here for your healing and we ask it in Jesus' name that His perfect will be done for all of us. So have faith, it will be answered. God seems to be healing all of us as long as we stick to this protocol He has provided through Mel and John.
The 23rd Psalm was also one of my regular comforting scripture passages, The Lord is my Shepherd...
I look forward to hearing about your progress and also finding out the details about your actual practice of the protocol.
With warmth, comfort and joy,
I read your post yesterday & ran out of time to reply but I couldn’t stop thinking about what you wrote today. I do understand the anxiety and know how debilitating it can be and I want you to know you are not alone in this.
I too, was suffering from anxiety. My severe panic attacks became more & more frequent & starting occurring twice a week (besides my every day anxiousness). I would get so bad that I couldn’t feel my limbs & my fingers & toes would go into spasm & completely lock up. It was terrifying.
What I would like to share is what helped me, and from what you have written I believe it is timely.
You have stated that you aren’t sure you have Morgellons although you are on this forum and have been suffering for years. I am wondering if you have any other plausible diagnosis or plan of attack? What are your doctors saying about your illness?
Let’s say for the sake of this question, that you do not have Morgellon’s. The protocol mentioned in these pages will still benefit you anyway as it focuses on rebuilding your inner terrain. Cleaning you up from the inside, out. Treating the very core of the issues and helping your bodily systems to function at their optimum so you can heal - not just putting a bandaid over the symptoms. This is why it takes time to recover fully. But you must still follow it very strictly, especially the diet if you can’t afford the full protocol, and absolutely NO SUGAR. You must make this commitment to yourself as your diet is completely in your control right now!
If you do have Morgellons, well….. it’s best you get started on the protocol as soon as possible, and keep reading the forums and staying in touch so we can follow your progress too.
I was a little like you in that I did not full accept that I had this disease. I was so focused on what I was robbed of, the life I had that was taken from me… my social life, work opportunities, love life etc and I was just mad, and so very scared. Once I learnt to ACCEPT COMPLETELLY that this is my current reality, I HAVE MORGELLONS and it’s going to mean I am in for the fight of my life. It is from this point that I took back my power because I could then make choices and decisions to support me on my healing journey. And as the saying goes.. ‘What you resist, persists’ – so in accepting this tough reality, you can make room for the solutions to come & start moving forward. Until then, there will be blockages to healing.
The second thing I did was LET GO of all the other stuff I thought was so important (as mentioned above). NOTHING else matters right now than to get well, nothing. So in letting the other things go, again I made room for time, focus & full commitment to the cause. I tell myself that this reality is only temporary (this too, shall pass) and that when I get well, hopefully all the things I want for my life can enter into it again, although I have the feeling that I will be such a different person by the end of all this that my wants will have changed, and that’s OK. Because by the time I (and you) have come out the other end of this mammoth (but do-able) challenge in front of us, we will be stronger & better people for it because look at the enormity of what we would have overcome!
The third thing that has worked for me specifically for helping my anxiety is to do devote time to a yoga practice (you can start out gently), meditation, & positive affirmations. These will help to find you inner calm, peace & strength. These things, along with owning your mind & learning to control your fears will surely help you on your journey.
I also took up doing those adult colouring books as they say they are a great relaxation tool. When I feel anxious, I start working on a picture & it helps re-direct my focus away from my fearful thoughts.
Our anxiety is about the lack of control of our minds (=fear) and without this control, in my humble opinion we cannot fully heal. If we don’t take control of our minds, this disease will take that too and you can’t let it. Never underestimate the power of the mind. Go watch the documentary ‘The Connection’ if you haven’t already seen it. It will hopefully give you some inspiration.
Stay strong Sarah, and know that you are I my thoughts and prayers. You can do this!
My heart goes out to you for the years that you have been fighting to be well and coping with the fear and anxiety that this disease brings. I hope that by posting here that you will feel less alone and know that myself and others are praying for you.
I'm still fairly new to things but can share some of my experiences in case its any help. I can understand your anxiety in not being sure what your symptoms are. Mine were a bit different but I hope that others here will be able to help you with this.
I thought I had scabies in the beginning and then mites or other type of bug. So to check the floor in my room I put clear sticky tape across the tops of two upturned glasses (about 4-5 inches high) and put them on the floor in the part of the room where I was most. Have the sticky side of the tape facing down to the floor. I left them for three days and then checked with a magnifying glass to see if any bugs were on the tape. I've also used a bit of sticky tape where I felt something on my skin to look and see if there's anything there. I never found anything but it got rid of some anxiety by checking. I find using Kleen Green to clean helps me as I spray it everywhere in the house so know that it will keep the house clear of bugs. I also spray it on my skin if its itchy.
Getting my diet under control as suggested by the diet articles helped me a lot because I then knew that my body was becoming healthier day by day together with the supplements so even still having some symptoms I know that I am doing the best for my future health. There's even a sense that I can be grateful for it because my diet was filled with sugar and carbohydrates and I know that the Logos supplements are bringing great benefits to my health.
I often think that when this happened it wasn't a surprise to God even though it was a totally shocking and traumatic life event for me. When I feel anxious I try to acknowledge my feelings and put them into words, what the fear is, and then speak out loud what I know to be true. For me that is that nothing is impossible with God, when I pray it opens a door for to work in the situation, God is my Good Shepherd and I know He will lead me along a pathway that although maybe difficult at times He is always with me and loves me. I know that for me to live is Christ and all my hope is in Him and He is all I need and I can surrender all my lesser ambitions to Him and trust that He will work in all things for good.
I find that declaring truth out loud, reading verses out loud and what I know to be true, really helps my mind and body to respond to it and builds my faith.
Also asking God daily for help and sometimes I feel desperate and cry and ask God for comfort through the Holy Spirit who is our Counsellor and Comforter.
If I can't sleep I play the conference calls on my phone and it is such a comfort hearing voices and it usually sends me off to sleep quite quickly.
I've also sometimes used a herbal remedy to help sleep especially in the early days and Logos sell a product to help with this.
Also when I feel lonely and a bit scared I read a forum page, sometimes just pick a number out and read it through and it reminds me I'm part of a community here and not alone.
If you would like to be in touch by email ask Mel for my details.
hi S- I wanted to reply to let you know that I just prayed for you -
Also wanted to give some tips to consider ;)
1. intercessory prayer is what has rescued me many times - so get on prayer lists if you can!
I seriously know that others praying for me was key to my strength and stability during hardest times- The battle in the spiritual realm is real and we are stronger together - even if you do not have a church - some ministries take prayer requests! So try and submit them!
Also - the prayer times here on mel's site could be a good resource for praye - and I was never too proud to ask for prayer because I knew the power of it - ;)
2. pray for others -have a daily time set aside to where you lift up others - like pray for folks with morgs - pray for your family by name - and pray for whoever God puts on your heart! There is something potent about interceding for others and while it can help the recipient - it can empower you too! really -'try it and see" - and the prayers do not have to be super elaborate - like maybe just pray for them for strength - wisdom - protection - insight - stability - etc.
Also - get under good teaching and preaching - put in uplifting and wholesome stuff to fortify your mind and spirit - and I did this all the time even beyond coping with a weird illness! But all the more when u are on the front lines with a battle like this!
Like listening to good radio shows or getting tv recordings To have on hand! Andy Stanley or Joyce Meyer are teaching shows I love - and then binge watching a bunch of episodes can be a dose of vitamins for the psyche!
And worship songs really carry and fortify too- because sometimes an empty mind gets loaded with worry - so occupy that Space offensively!
My spouse uses his phone and has podcasts enriching his thinking on and off all day! From sports to theology - he keeps his mind fresh- has his good ear buds and just keeps good stuff coming in!
and for me - I also like to learn about a few Hobby topics - which leads to my next point
Get a small hobby just for you! -pray for one if you do not have any clue on what to endeavor - and not all hobbies cost a lot - but maybe you could do art - draw - color - or get a cheap set of paints and find tutorials on you tube! Or make salt clay - so cheap- and build little figures - then glaze them -the act of creating is soothing-
Or you could create music - or take up an I instrument - one lady I know took up flute and says it rescued her!
and explore the library - read snippets in the magazines- read about topics you like - and explore comics! Oh my gosh a good dose of Calvin and Hobbes is like a shot of b12 for me! Get a journal and write haikus or simple rhymes -write short stories or read short stories from classic writers!
I love writing kindergarten style rhymes and sometimes I write about the weather or my dogs - or someone who recently visited - this writing takes me away!
Feel free to ask Mel for my email if you want more ideas on hobbies.
Get your hands on counseling resources - like books and workbooks - I found books on Amazon and went to a used book store - and here is where God showed up for me yet again - big time! He put used books across my path that I would not have NOT sought out! And nuggets from those very books fortified me - and sometimes taught me a lesson directly or just enriched my thinking. And they also made me fall more in love with God because he cares about the smallest details!
I know with brain fog reading is not always the first option - but even reading a paragraph or page at a time is helpful.
And sometimes Christian radio talk shows can be a resource - like I will never forget hearing a lady on a show - back in 1992 - she said after her horrid divorce God gave her the verse "all things work for good" (romans 8:28) this does not say all things "are" good - but they work FOR good to those who wait and trust - I was so young - but her story (testimony) infused me with strength / and i have seen over the decades that Romans 8:28 - can never be overused! I have seen so many wonderful things come from much hardship
So keep that in mind right now - much good can come from this - healing is the sum of the parts in the protocol and as you restore the bio terrain you may not always see or feel improvements - but the body is soaking up your supplements -
Learn more about burnout and recovery - because the exhaustion you feel is legit- so scour online for articles or workbooks for tips on recovering from burnout - some tips are sometimes universal for humans going through different things.
Draw closer to God - he is right there and will show his presence - and the word of God (bible) is ointment to your soul and so explore some chapters and verses that you feel led to- during a very hard season in my life back in the early 90s- I made a watercolor painting to go with a bible verse and it was powerful therapy!
I also hung up bible verses around my room:
"perfect love casts out fear" "we are strong by the power of the Holy Spirit" "I can do all things thru Christ who gives me strength" "he who called me is faithful - who also will complete the task he started in me" "God has not given me a spirit of fear - but a spirit of love - power and a sound mind" and "Call unto me you who are heavy laden and I will give you rest"
Find the verses you love or are drawn to and hang them up!
Yoga - I am partial to yoga for mind and body health - but it is hard to find intro classes and all that - check out Adrienne Reed website and she has twenty dollar videos from when she was on tv - it will be worth every penny to get one of her tv episodes because the mini yoga sessions are for all levels and they made me love yoga and my body was changed in less than two months - I was also finishing my dissertation at the time and I see that God gave me her yoga at that time because I would also need it for coping with morgs! For years I wanted to do yoga - but only Adrienne Reed's wonderful short sessions pulled me in - now I go to studios and take 2 classes in a row - but check out her website (just type in her name -and yoga) - or get a video from library - but that never worked for me
Two other things that I know helped my physical healing were borax foot Soaks and enemas.
The Borax foot Soaks were sometimes for 2+ hours four times a week - and sometimes add baking soda to the cup of borax - dont have time to mention why this is so helpful - but it is! Esp for skin -
Enemas (esp lemon water) can be used to remove build up and then sometimes an enema is used to gentle "retain" a bit for short periods - of course we ALWAYS do no harm and always do enema with safety first - but this easy and powerful activity really gets dismissed as yucky or not needed - but I know it was absolutely key to part of helping me heal - and I actually belong to a health group where hundreds of others inisist that healing must include enemas. Lemon water -Castor oil - or kefir ones that are mild and potent -
Ok - hope that helps and remember to bring every thought captive and to thank god for giving you wisdom -for giving you Freshness and stability-
Also - "self-fulfilling prophecy" can be used to make sure you "expect" good things instead of dread and doom- so tell yourself "I will be healed" l can do this"
" l will not be moved by what i see cos things are subject to change" and "I have the mind of Christ" or "I am stable and I will stay stable - because many people have this illness and we can recover and one day I will share my testimony and empower others with it - I will stand tall with clear skin and a healed gut (and full hair) and talk about how God rocks and how He is our shield and strength!"
Best wishes to you!
Sarah, this is a very difficult affliction to deal with. Not only do you feel bad and scared, but you feel isolated because of the fear of infecting others, not to mention many think we have lost it. It is imperative that you get sleep- you feel more hopeless if you don't.My family doctor thinks that I am nuts but she has been very kind. I initially was prescribed Hydroxizine for itching and Doxepin which is for depression and helps you to sleep. I now only take Sleep Advance from Logos and rarely Doxepin. I suggest that you ask your doctor to prescribe something to help with sleep until things improve. Here are some other thins that have helped: I have increased my fresh garlic intake (eating 2 cloves
mixed in with an avocado daily). I alternate between peppermint and lavender oil in my bath if it is not an MMS bath. Gold bond medicated lotion helps ( with menthol) but it makes me cold. I can't use it when it is cold outside. I also rubbed both clove oil and tea tree oil on the bottom of my feet last night as suggested in another post. It worked beautifully. Exercise helps. Walk outside or in the mall if it's cold where you are. We must make ouselves unappetizing to these nasties. It is said here that we must heal our innner terrain to get better. Please stay strong. As a Mom of a son who committed suicide, I know the pain and agony that it would cause those who love you. May the God of hope fill you with joy and peace as you trust in Him. Romans 15:13. I want you to know that I am going to pray daily that you see an improvement in your affliction and are healed. God has plans for you. Stay strong.
I am posting because I really need some help in terms of dealing with the emotional torment of this illness.
I really struggle to cope, especially at night time when the fear is almost too much to handle. I have been dealing with this for a number of years and constantly lived in hope that the things that I was trying would eventually work. And yet, I'm still dealing with it.
I have spent so much money trying to get better. I have been taking the supplements and mms for over six months now but I can't tell if I have improved. I honestly don't know if what I'm dealing with is morgellons as my main issues are just itching, crawling and small red bites on my skin. I know I should be thankful that I don't have a lot of the symptoms, but it makes me wonder what I actually have. If I knew it was morgellons for sure then I could have more faith that what I'm doing will eventually work. Do you think that the mms will eventually kill any kind of bug if I take it for long enough?
I feel that I have suffered a lot because of this. Although my parents are very good to me I am so lonely and have had to avoid getting into a relationship for many years as a result of this. The feeling of shame I feel at knowing I have this problem is hard to handle and then always living in fear that I will pass it or people will find out.
I'm trying to find the meaning in this and have spent endless hours praying that this will end or that I will find some kind of peace in the struggle, but I feel lost. I think about dying a lot and I used to think that I was a strong person but I don't feel strong enough to handle this. I'm so emotionally tired. I feel like it's my fault that I have this and I wish I could go back and do something about it sooner. I was so confused about what it could be for so long and although I went to many doctors I found no answers.
I am trying to carry on living my life but this is a dark cloud that seems to overshadow everything else.
Does anyone have any tips for handling fear and anxiety, especially at night time when all I can do is think about this. Do you have an exercises that you do to take your mind of this or that brings you peace? How do you keep the faith and hope that this will end? I know that the mind is very powerful but one can only believe for so long without seeing any proof. I know many of you are Christians here but I don't feel the presence of God in this storm. I wish I could. I would just like some answers and to know that this will end.
Blessed beyond belief is how I am truly feeling at this moment. I can honestly say I am very close to being completely healed from Morgellons. I have been on the protocol for almost 22 months, and by following only Mel's amazing protocol, I am once again living a new type of normal life.
A new type of normal living for me includes eating a clean diet free of processed foods and gmos, using non-toxic make-up and deodorant, establishing a routine cleaning schedule, not stressing about life's hiccups and turning them over to my Lord, and maintaining a daily personal relationship with my Lord and Savior who has been with me every step of the way. I am so very blessed and thankful to be healthy, and if I can do this, so can you!!!
As I started my journey with morgellons, I remember being so overwhelmed and fearful of EVERYTHING. But God placed so many Angels in my life to help me accomplish my healing. Thank you, Mel, for sharing your knowledge and for creating and maintaining an inspiring website so people can be healed. Peter, my loving big brother, who has lovingly guided me every inch of the way. You have helped save my life with your generous time and loving words you have so graciously given to me. Thank you, John B, for working with a group of individuals that have been forgotten by so many others. Your vitamins have helped restore my bioterrain along with so many others. And, Cathy, with Kleengreen, thank you for your time on the phone and for such an amazing product. And thank you also for the talks I have shared with Deborah B, Nicole, Dawn, and Amber. I continue to pray for your healing. :):))
And the greatest blessing I have is for my loving Father who created me and lovingly took care of me during my battle with morgellons. He was, and still is, with me when others mocked me and left me alone. There were days when I simply said verse after verse to get me through each hour. So thank you, God, for being my one true Father who gave me strength, courage, and peace through your loving words.
"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you in my righteous right hand. Isaiah 41:10
Good morning all!
It's a beautiful fall morning here and I'm so thankful to be able to sit here with my husband and enjoy all of God's glory.
As of late I have been focused on preparing my older children for adulthood. As we all know time flies and it's hard to believe I'm in this season already. I have been teaching them how to survive out there in an ever changing world. Making sure on top of all the usual stuff we teach our children, that they understand how important it is to keep a good diet and supplements in play. Above all that they understand how important a relationship with the Lord is. It's so easy during the college years to get caught up in the ways of the world.
Now that school is back in, my daily schedule consists of waking up at 5AM to prepare a healthy breakfast, dosing supplements, putting together healthy lunches, meetings, extra curricular activities, homework and then preparing again for the next day. In between that I am either grocery shopping, cleaning or running to doctor appointments for mom or kids, volunteering at church or doing mandatory volunteering for the kids' extra curricular activities.
I try to be in bed by 8:30- 9:00 every night so that I can get enough rest. Naps just don't and can't exist in my busy world. I am so blessed that my children are now well enough to do all of these things and because of the protocol and God's grace, I am able to keep up with it all. There was a time when I could hardly put one foot in front of the other because of this disease and because of all the other health challenges we as a family were facing.
I dream of having my career back. I am still dealing with ptsd and being overwhelmed by all the demands. I know that if I can get the older kids to a certain point of being more self sufficient and starting their own lives, with just my little guy around, having a career again is totally obtainable. Even though the thought of my babies growing up literally brings tears to my eyes, I know this is the natural progression of life.
My kids healing has come so far. They continue to do well and are still eating clean and taking their supplements every day. I continue to do well too. I have had an intermittent rash on my right hand that comes and goes. It will flair when we have a moon cycle or I'm stressed. Yes, I still battle with letting stress creep in. The Lord says I'm a work in progress. Hahaha!
My husband and mom are doing great. I'm so very thankful to have both of them by my side helping one another with this thing called life. I don't really have any friends outside of the ones in this community and church, and you know what? I'm totally okay with that!
I made exercise a priority over summer and plan to again. Exercise helps so much with those feelings of stress. I prefer to get a walk in during early morning hours. It almost feels like it's just me and God out there. I have the best conversations with the Lord during that time.
We have come so far! Thanks for taking the time to read my update and I hope it finds you well. This community continues to be my guide and I appreciate all of you more than you'll ever know.