| | Debra
11/2/2009 12:25:23 PM
| I very much agree with the posts from ld and Deb2. I actually have recently stopped reading the posts here because there is TOO MUCH unrelated stuff. PLEASE just stick to what can help us all get better. Just sitting here at the computer makes me worse. PLEASE keep religion, cookie recipes, etc. in your private emails to each other.  | Pamela Mae
10/29/2009 3:53:23 AM
| May I suggest you do a search in the 'SEARCH' feature, it isn't difficult,and find only the things you need to print. Quit telling everyone about your printer and quit focusing in on the 'Christian words' in the post and focus on what is behind the post.Which is a very important part in getting through this disease. Encouragement.
Pam | ld
10/29/2009 3:41:01 AM
| I think people have so little time when trying to overcome this horrible disease because it itself is time consuming. They really want to find out what works or doesn't work so they won't waste their time nor money.
Many have their own spirital ways so would rather not have to sift through it to get to the Morgellons info. People come to this forum to find out about Morgellon not religion
What's frustrating for me is that for some reason my printer no longer lets me select my printing setting as far as pages, or copy and paste. When I select print, it prints EVERYTHNG. So if there is too much non related stuff, I just hand write what I need off the page.
 | Mae
7/2/2009 1:37:31 AM
| Hi Deb2, I hear your frustration,from the deepest part of my heart I am so sorry honey. I would like to define some things,think them over then maybe regroup? The beginning of the battle has been won by knowing there are others who identify with Morgellons and that now it is recognized. That Mr.Mel knows of some doctors that are now fighting the battle with their patients,not criticizing or humiliating them. No one is perfect.I want to stick to the main thing'getting well from Morgellons' 1. The protocol: On this site is a defined beginning and is targeting things from research and past experience 2. Logos Wellness Protocol: Lets stay focused and help each other stay focused-if someone suggests something off line or outside of wise healthy understanding lets fall back on what we know is healthy for us. A. It is my understanding that my body should gain relief from anything done on the protocol for a short time by being supported by Logos nutritionals FULL WELLNESS PROTOCOL.I,like you believe I can not piece things together,a little of this a little of that.If you look at Burgstiners 'Wellness protocol' www.logosnutritional.com - you will see they have organized the 'Wellness Protocol' in one group of products. 3.Doctor support: We peel this cruddy stuff out of our lives,our very beings one layer at a time, I weep with you,it is so dang isolating sometimes. I understand when the outbreaks are bad when another layer peels away it can send us into great frustration. I think its at those times we can ask for help from Doctor support and maybe Mel or Maribeth or whomever can suggest someone. We are all different makeups,and all of us wonderful one of a kind creations made by God. There fore we are intricately different in how we heal. My prayer is for my brothers and sisters suffering from this ,and many of us are constantly researching and reading and will not give up .We are doing and looking better every day-sometimes inch by inch,but maybe when we get to that final inch....we will be done with this? I have been ordered to sit still so here I am writing- we are on this journey together. God Bless you Pamela Mae | Deb2
6/29/2009 2:03:30 PM
| Hi Mel, I didn't feel great writing it but my background (work)always comes into play, I have had to manage quite a variety of people over the years. NO ONE wants to see people get better from this more than me. Mel, it is your forum and your protocol and YOUR time and energy. Just putting this out there for others is more than anyone can ask for. So, thank you Deb2 | mel
6/28/2009 11:38:52 AM
| Hiya Deb2, Welcome -as always,Thanks very much for your comment.I didn't feel right about saying what you have said, but thanks so very much.Our disease makes it difficult to stay focused, sometimes too much information can become confusing.So thanks again!
Good luck God bless, mel | Deb2 **
6/27/2009 7:54:44 PM | To G and anyone else with suggestions, Pleasse know that this is my personal opinion, but am trying to help and keep things orderly. We are ALL very sick with horrific disease and I am sure have ALL spent time and money on different "cures". but Mel's protocol is the first one that has actually had a "cure". If ANYONE has experienced a positive and lasting treatment for Morgellons, it absolutly should be shared. But specific information is needed. We need the exact ingredients, how long you used it, how long or how the symptoms are being reduced/eleviated etc. Filling up this forum with information that is not usefull is a waste of time for everyone. I apologize, but I need help with this disease and I go to this forum for help. | | |
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