| | John B
8/9/2010
1:21:49 PM
| Thanks Deb.
Actually, we have not really adapted any of our Logos products to the needs of Morgellons sufferers. The Burgstiner Wellness Protocol has always been about restoring the bioterrain and supporting foundational health pathways... something we all need... its just that Morgellons sufferers seem to need it much more urgently.
Logos is committed to continuous quality improvement in our natural medicines to ensure that consumers of our formulas take advantage of the latest advancements in nutrient forms and delivery systems.
B vitamins are generally best taken and best utilized when taken in complex. Vitamin B-6 is an exception. Because it is such a critical nutrient in so many areas of metabolism, it shows up in quite a few of our formulas.
Vitamin B-6 exists in different forms; one of those forms, pyridoxal 5'-phosphate (P5P), serves a cofactor in many enzyme reactions, including the transsulfuration pathway, in which homocysteine is converted to cystathionine and then to cysteine... presumably a particularly valuable metabolic pathway for Morgellons sufferers.
P5P is also a critical nutrient in carboxylation pathways affecting neurotransmitter levels in the brain such as seratonin... another compelling reason why your doctor may feel that P5P is important.
However, supplementation with Pyridoxal 5 Phosphate is not necessary for most people since regular vitamin B6 supplementation raises levels of P5P. There may be certain rare individuals who have a deficiency in the enzyme that converts pyridoxine into pyridoxal 5 phosphate, and they would certainly benefit from P5P supplementation, but most of us will derive maximum benefit from vitamin B-6.
Practitioners can sometimes become enamored with the therapeutic potential of a particular nutrient and lose perspective on its relative merit as one of many critical nutrients that work together in the body.
Doctors are taught to think in terms of pharmaceutical delivery systems that generally involve an isolated ingredient (to limit the variables responsible for the end result of the drug and facilitate the financial protection of a patent).
Natural medicine takes advantage of the synergy that is built into all of creation to restore balance and strength to organs and efficiency to metabolism.
Individual needs can vary, and that is why getting testing done and finding a knowledgeable and compassionate medical practitioner is so important.
I am glad to hear that you are doing so well Deb.
Keep up the good work!
John B | deb2
8/8/2010
11:30:29 AM
| Mel and John,
I am glad you found the info useful and I of course hope other people do as well. John, i find it admirable that you are adapting your products to the needs of Morgellons sufferers. I was hoping you would do that. The most important nutrient that my doctor talked about was the pyridoxal-5-phosphate, I hope you will look into that as well. I could be wrong, but I do not believe it is in your products.
To PS, I have no idea who you are, so how or why would I contact you??? But I can guess.
As for my progress with this disease....I am very fortunate to say that I consider myself cured. But will continue 'my' protocol for another 6 to 8 months on a decreasing scale. | John B
8/6/2010
1:03:02 PM
| Hi Deb,
Good to see that you are alive and well and that you have found a Lyme Literate Doctor who is open to treating Morgellons patients.
Heavy metal toxicity is very common, especially with Morgellons sufferers, who harbor not only the residual burden of their own lifelong exposures, but also the cumulative burden of their parasitic guests.
Dealing with it is important, but as Scott (the better health guy) pointed out, can be quite challenging... both for the patient and the practitioner.
The Burgstiner Wellness Protocol is built around the fact that the efficient elimination of wastes and environmental toxins is just as foundational to vital health as is the absorption and assimilation of nutrients. A breakdown in either of those systems compromises both our quality and quantity of life.
For Morgellons patients, heavy metal toxicity can compound the problem of fungal overgrowth. Even if a person with a strong toxic burden of mercury takes a Spartan approach to their diet, they often find it very difficult to manage fungal infection because it can thrive on mercury vapors.
Those who are familiar with the Burgstiner Wellness Protocol know that we recently enhanced our Liver CS Plus formula (now encapsulated) by adding NAC (N-Acetyl Cysteine) to further improve its heavy metal binding properties, but it is not considered or intended to be an 'oral chelation' formula.
Greetings to you Deb; I trust that all is well with you and yours.
Best Wishes,
John B
| PS
8/5/2010
8:58:14 PM
| Hi All,
Regarding the Warning you can find it on the website following the link. I have posted the warning for your convenience just below the link.
http://archive.constantcontact.com/fs017/1101873817670/archive/1102596582336.html
'A word of caution - this is not an easy protocol. Once the protocol begins, heavy metals are often released and it takes a doctor skilled in addressing heavy metal detoxification to avoid worsening of symptoms. After this phase is addressed, the immune system often activates and the patient may experience symptoms of immune response to various microbes that it previously did not have the capacity to address. These may include fevers, flu-like symptoms, fatigue, and others. Thus, I do NOT advocate treating for KPU without working with a well-trained doctor.'
PS | mel
8/5/2010
8:47:50 PM
| Hiya Deb2,
The rules that have been put in place on this website are not to suppress helpful information, but to protect the interests of those who come here looking for unbiased and trustworthy information.
Under our prime directive of "First Do No Harm", there is a process of due diligence that we have always adhered to here to ensure that the information and products presented are safe and effective when used as directed.
As has been pointed out, your post violated our rules and was therefore deleted. In the future, you can avoid this happening by contacting us first before posting another protocol or website link.
The due diligence process described above takes time to complete. Our team has reviewed the Lyme focused site that you referenced and found it to be a source of quality health information.
We are therefore going to republish your original post below. However, we must point out that the owner of the website containing the article you cited (which by the way we did take the time to read and were pleased to note that the nutrients mentioned as helpful are already in our protocol) posted a warning cautioning his readers NOT to seek KPU treatment without the assistance of a well trained doctor.
Anyway, thanks for the info Deb. Good to hear from you again. Hope you are doing well.
God Bless, Never give up Hope,
Mel
Deb's Original Post:
Deb2
8/2/2010
11:48:08 AM
Recently my doctor suggested I look at Kryptopyrroluria as it pertains to Lyme Disease and Immune function. Since we are all in agreement regarding how our inept immune systems play a role in Morgellons, I felt it was important to share this information.
Go to: www.betterhealthguy.com and look under articles by Dr Dietrich Klinghardt. Well worth the read. As a side note, I did test very low for Zinc many months ago.
Hope you find this info valuable.
|
8/5/2010
11:30:23 AM
| PS
8/4/2010
4:17:32 PM
Deb2,
The original post was deleted because it violated Rule #2 governing post on this forum:
"2. If you try to establish a link to another protocol and OR WEBSITE, you must have my prior permission or it will be deleted."
Mel and the people helping him are very busy, as you well know, providing support for many Morgellons Sufferers. Reviewing new information and accessing its appropriateness for this site is time consuming. Mel and others are reviewing the information you sent.
PS
| Deb2 **
8/5/2010
11:29:28 AM | deb2
8/4/2010
8:37:12 AM
Mel,
I find it very unfortunate that you are unwilling to share anything besides what is on this site. If you took the time to read the article I was referring to, it was NOT another protocol, just some additional supplements that are probably very important to people with Morgellons. Nor was it any web site trying to sell anything else. I am very fortunate to be working with a LLD that believes Morgellons exists and actually asks me to share info with other sufferers. Neither you or Pam are doctors or have medical training, so I would think that any info from a medical LLD would be helpful. But then again, I know where this cam from.
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