| | Kathyb
8/8/2010
5:31:46 PM
| Hilary - can you find out the anti-parasitic med. your friend in Vermont took & had success with? As John B points out in this thread anti-parasitic meds are specific to the parasite. Even though her doc won't talk with anyone, it seems just knowing the med she took that worked would be helpful.  | mel
8/5/2010
11:41:34 AM
| Hiya Janet,
WELCOME;
You have come to the right web site. We have all been or are Morgellons sufferers. At this time I am happy to say I have been free of the symtpons of Morgellons since December of 2008 and considered myself cured(3/30/10) three month's after I stopped taking medications (12/31/09) for Morgellons.Please go to Mel's History page and read the Medical updates.
I still am on my Logos supplements and will continue them to assure I stay healthy. I also take a couple of the vitamins, two minerals that were the results of the testing from GPL. They recommended I take these supplements to bring these levels back to normal.
It is the purpose of our web site to help others regain their health!
1st. Please contact Pamela @ morgellons focus.com, she
has a network of Morgellons educated doctors, and
all the information on and about the Lab testing.
2nd. Lets get you to read as much as you can on our web site. Use our search engine feature to answer your questions in the order which you find important!
3rd. Study the protocol page - the first steps to better health.
If any of you would like to talk, then email a convenient time and your Phone#.
My e-mail is (mellowf@charter.net)
Welcome again,
God bless, never give up Hope!
Mel
PS Thanks Susanne ! | Susanne
8/4/2010
2:02:22 PM
| Janet, my name is Susanne. .and I too have experienced what you are experiencing.. . You have to follow everything on this site, and it takes time. I also had nails break. I live in warm weather, sandles used alot . .THIS embedded my nails on my toes. Before knowing I had this, my nails would get bruised on my toes and fall off for no reason as if injured. 2 Days ago, one of my toes (not to gross anyone out) was bleeding under the nail. They do all kinds of things. . we need to get them out of our ENTIRE system . .
and it CAN be done, do not fret.. as you can see on this site, by Mel.
Sometimes I soak just feet in a tub of water with epson and 2 tablespoons bleach to erradicate fungi .. but when you get MMS, that would be the wiser choice to use in the water because it kills all pathogens but follow directions precisely which it provides.
You will meet so many people on here .. good luck with getting cured .. I just wanted to put my two cents in, .. just getting back online.
lOve
| Janet Wertel
8/4/2010
1:56:28 AM
| I really need a Doctor who will believe I have a problem. I hope my dermotologist will check this out as I gave her the information after my daughter saw a T.V. program with a Morgellons patient telling about the hard time she has had trying to get someone to treat her for the problem. Mine gets worse every day. When I scratch the insect or whatever it is called , get under my nail nad starts the nail to brake away from my skin. My arms and legs look like I have been in a war. I need help!!!
J Wertel
| Hilary
2/28/2010
10:58:56 PM
| Just needed to add although the Morgellons has afected my brain I CAN spell. i just can't type so please excuse all the mistakes in the other post. | Hilary
2/28/2010
10:57:15 PM
| Everyone,
I know someone other then Mel who got better . She isn't a child. She went throughthe usually BS alot of us go through . The Derm. saying we need to see a shrink etc..
Well she DID go to see one. He deciided she wasn't mentally ill or delusional in anyway. He had never heard of Morgellons but he started giving her ketoconizole to put onher lesion. There differnt kinds of antibiotics an antip fungul and an anti parasitic. She also took lots of probiotics and stopped sugar and ate alot of coconut old. She was did that for a year. She is now married with a yr old son who is perfectly healthy.She lives in Vermont. She lived there when she got this too and had no idea how she got it.
I know this isn't exactly what people are doing here but it's similar.It's just too bad that her doctor refuses to talk with anyone else who has Morgellons or their doctors.
I don't know if this has anysignificant but I had a case of food poisoning a few month ago and ended up in the ER. They gave me Doxy,flagyl and ketoconizole. Makes me wonder..H | John B
2/25/2010
12:35:28 PM
| Deb,
We are not at war with each other, and no one here is recommending that people "back down" from this diease.
We both want the same thing... for all who are suffering with this disease to be freed from bondage to fear and hopelessness and restored to a life of abundant health, Hope and productivity.
I rejoice with you in your improvement and I pray that you will soon join Mel in the ranks of the freed. But in your zeal to help others, remember that you must meet them where they are.
Most people lack the resources to hire "a team" of doctors. As Mr. Common Sense pointed out, most people cannot gain access to some of the meds you are taking, and couldn't afford them if they could.
For you to imply that your very expensive approach to this is in some way superior to Mel's is not only misleading(who is the one who is no longer symptomatic here?), but it gives people the very false and tragic impression that there is no hope for them.
Nothing could be further from the truth! If having plentiful resources could magically fix this, Joni Mitchell would not be struggling with it.
Furthermore, this syndrome defies being oversimplified into one particular superparasite that will only respond to a toxic chemical product of man's wisdom. Man's wisdom is what got us into this mess.
Pam's ongoing research from the testing reveals a consistent pattern of multiple and variable infections that require comprehensive support to restore and maintain the bioterrain, testing to identify specific threats, and adjustments to the protocol accordingly that involve both natural and pharmaceutical interventions if necessary.
Finding ways to overcome the biofilm potential of these pathogens in a way that doesn't compromise the body's metabolic integrity is where we are heading, and that is where my energies and resources are being invested.
Meanwhile, I urge all of you to take care of your body and first do no harm.
Blessings,
John | Deb**
2/25/2010
9:39:30 AM
| John,
Not to beat a dead horse, but the natural anti-parasiticals I am SURE will work for "natural" parasites and for children because their immune systems are in tact. But there is NOTHING natural about this parasite. If you happen to figure out what you have right away, you may be able to kill it with natral anti-parasiticals. But for those people that have had it for a while I don't think it will happen because this is so ingrained in their systems.
As I have said, I am being monitored by my doctors and not only have I had no adverse effects, my bloods tests improve EVERY month.
I really don't want this to be a war between us, but I don't want people to back away from this. If you have had this for five years and are now almost completely cured you would be singing a different tune. | John B
2/24/2010
6:39:45 PM
| Deb,
You are partially correct.
People ARE getting better; they are getting MUCH better, but very few people (except Mel)have gotten rid of Morgellons... and most of them are children who had it for a short duration.
Getting people stabilized precedes getting them well.
Natural antiparasitics do work; they always have, they always will. They might not work as quickly, but they are not nearly as toxic either. We have gotten good feedback from everyone who has taken Parabolish.
The part I agree with you on is that people have to understand they almost always must get worse before they get better. This is a punishing struggle, but it can be won... Mel is living proof!
Blessings,
John B | Deb**
2/24/2010
3:19:13 PM
| John,
Hippocrital was probably the wrong word. My point is this: Mel's basic premis for this disease I believe is correct, but NO ONE is getting better, the natural anti-parasiticals do not work (I have used probably most of them) for this monster (and it is a monster). I haven't heard of anyone one that it has worked for.
I am also afraid that the first time anyone gets sick from taking 'the Protocol' they stop. The best thing that can happen to you is that you get sick! For three months straight I was sicker than a dog every morning for a minimum of 4 to 5 hours. But I knew it had to be that way to get this our of my system. It can only come out in 2 ways, your skin or liver or both. And the more that comes out thru your liver, the sicker you will be.
Be very happy if you ARE getting sick....it is working so don't stop. | John B
2/24/2010
1:54:12 PM
| Deb,
Nothing hypocritical has been said.
Antibiotic and antifungal drugs are dangerous enough... prescription antiparasitics are in a class to themselves (which is why your doctor is wisely giving you brief pulsating treatments).
Hey, take whatever you want and can afford... I just pointed out that there are far less dangerous and expensive alternatives that work... especially for parasites.
We have learned so much already, but I am convinced there will much more revealed this year than last. Stabilizing Morgellons patients is a great blessing in itself because it gives them their life back, but that is not enough.
As Pam noted, progress is being made, and Hope reigns eternal. | Debra
2/24/2010
10:25:51 AM
| Deb - Many drugs made for humans are also given to animals in different doses including your antibiotics and the flagyl you are on. There is no difference - except the name may be changed. I wish you continued health and only wish I will be right behind you. | Deb**
2/24/2010
8:52:43 AM
| I find this post very hippocritical. If you are willing to take anti-biotics and anti-fungals, then why not anti-parasiticals that are made for humans (not animals like stromecol)?
These are desperate times which call for desperate measures. This will not become a lifestyle of medication. Only a means to an end.
What will become a lifestyle is correct nurition and appropriate supplements. | Patricia
2/24/2010
7:34:31 AM
| Hi Pamela Mae,
Hope you got some sleep! Can you please let me know about the doctors in NJ or NYC?
I would appreciate it soooooo much as I have been on a wild goose chase!
thanks, Patricia | Pamela mae Crane
2/24/2010
4:38:17 AM
| Hi John b.
I woke up with this soooo on my mind.(from my post on 10-14-2009 ...still seems like a popular opener)
It is increasingly amazing to me how God continues to educate us as we continue on this journey together.
John, this is from your post - same date.
'Until metabolic integrity, cellular energy systems and detoxification pathways are restored (the entire focus of both my Burgstiner Wellness Protocol and the Poor Man's Protocol), even identification of specific pathogens has limited benefit because Western medicine's approach of 'killing off the enemies' results in an endless cycle of proliferation and dieoff and unfortunately, an increasingly toxic battlefield.
When all is said and done, I believe that Mel Friedman's Protocol will be validated because it deals with both the restoration of the bioterrain and interruption of the vicious cycles so familiar to those who are living this nightmare.'
Johnny B...
Do you realize we are on the next phase with the Methylation and toxicity study and the similarities in Autistic children and morgellons patients.
As well as the new possible Bio film blood work that our new Docs have shared?
Pretty exciting and validates much.
You are so correct about what Bio film can hold in the body-Bacterias,even staph.
This is to encourage those who are courageous enough to say they are still ill,and that well to them is being 100% back to health with no remaining symptoms.
It seems that when having this for awhile the answer is not a quick drug- which needs monitoring questionable in its effect on the already weakened body.
As we see many different people explain symptoms,experience success,then go through more symptoms, we realize so much.
1. Mels protocol is stablizing and the key.
.So we proved that Bacteria,fungus and parasites are the base.
.So we also proved the body terrain,metabolic functions and immune system need building and balancing.
2. Reality is we are all different,with different challenges-so we have years of toxic build up in our systems.That coupled with Morgellons is a challenge.
. We have hope,we are finding by testing which medicines we need(big big deal)and need to hang in there with a good Doc if we find one who is sympathetic with Morgellons.
We are blessed we are indeed finding good doctors!
If they are good let them shine and show you how they go about clearing away the films and the sludge from your toxic bodies and re test for the needed things to balance and build your bodies while you heal,and to help clear the pathways that are weak.
I am not well,but I am better,and I am learning so much.
Though we all have different ideas of wellness we all have a kinship of suffering which seems in its very nature to create peace within our souls.
There is Hope.
And now I am probably in trouble with those who love me for staying up late- g nite
Pamela Mae Crane | pamela mae
10/15/2009
2:04:45 AM
| Johnny B.,
You thah man. This knocks it out of the ball park.
Lets run this race together. No more useless distractions. We will keep our eye on the mark avoiding any thing that is slowing down Gods purity .
Anything.
Thanks John for posting this so quickly my brother,it makes perfect sense.
You are true in your committments and dedicated to humanity and all morgellons sufferers in a beautiful way.
Please be good to yourself and take care of your 'Terrain' - we need you.
I Trust your knowledge,motives,and the depth of your commitment to friendship.
You say what you mean and mean what you say-with kindness.
Thank you my brother.
God richly bless you,
Pamela Mae | John B
10/14/2009
2:16:18 PM
| Hi Pam,
Your assessment is right on the money.
I just finished a lengthy post on Mr. CS's site about the testing which I will repost here, but before I do, let me address your question on parasitic meds.
Synthetic chemical anti-helminthics are typically very specific in their application, both in terms of organisms targeted and method of use (this product specificity is a byproduct of the necessity in the pharmaceutical realm to have protected licensing rights).
They are effective if used as directed, but like many drugs, may produce significant collateral damage (as evidenced by their long list of known side effects) to the liver and other internal organs.
Since Morgellons patients are already dealing with compromised detoxification systems, it makes more sense to go with natural antiparasitics that have less side effects and are effective across a much broader spectrum of organisms.
For those who feel they need the additional support, Logos does have an excellent broad spectrum formula called Parabolish. To learn more, click here
Back to the testing post from Mr. CS's blog...
The lab tests that Pamela has already made available on her site (along with the professional assistance of a committed Morgellons- friendly practitioner to interpret the results and direct you to specific nutrients needed if any above and beyond the protocol) are an excellent tool for getting a "bird's eye" view of metabolic health and the overall condition of your bioterrain.
That said, in my view, the testing will become more valuable the further along you are in your recovery. As Mr. CS already pointed out, the individual test results of a typical Morgellons patient are likely going to be very similar to Pam's (at least until the basic integrity of her bioterrain is recovered), and the wisest path to recovery will not change much (if any) based upon the testing until that stage is reached.
Until metabolic integrity, cellular energy systems and detoxification pathways are restored (the entire focus of both my Burgstiner Wellness Protocol and the Poor Man's Protocol), even identification of specific pathogens has limited benefit because Western medicine's approach of "killing off the enemies" results in an endless cycle of proliferation and dieoff and unfortunately, an increasingly toxic battlefield.
When all is said and done, I believe that Mel Friedman's Protocol will be validated because it deals with both the restoration of the bioterrain and interruption of the vicious cycles so familiar to those who are living this nightmare.
In summary, the testing offers a valuable tool for those who can afford it and who are already in recovery mode. If you have a budgetary choice between testing and supporting your bioterrain, go with supporting your body and let the offending pathogens fall where they may.
If you can afford the testing, BY ALL MEANS DO IT and share your results with Pam for the benefit of those who can't. The more collective data that is gathered, the more understanding we will have.
Like the ancient Hebrew prophet said, "My people perish for lack of knowledge". (Hosea 4:6) | Pamela Mae **
10/14/2009
12:26:26 PM | Hi John b.
I woke up with this soooo on my mind.
I know several of the most wonderful people on here whom have been diligent advocates for their health,gone to see their morgellons friendly Docs,and they are now diligently sticking to the protocol.
They are also using Prescription Anti parasitical drugs. This makes me cringe(they know it too ,cuz I love them,they are my favs...;-))
My thoughts are that these medicines strip so much from the body for what they do?
What do they do to the natural terrain of the body and what toxins do they dump into the body?
That said, I KNOW the outbreaks and exacerbation periods with this conditon absolutely need support.
Looking at my first round of testing I noticed the things that I needed in addition to the protocol were ,Uva Ursi,Black Walnut,Caprylic Acid,and Grapefruit Extract.
These are all natural and have anti parasitical qualities. They should also add to the body and not take anything away.?? Correct?
I know this is somewhat of a simplistic way to explain this but what about a natural parasitical ?
Alsoooo ... is it not the most BASic and fundamental knowledge in natural and holistic medicinie to monitor the toxic load and 'bio terrain',so that then the immune system and other body systems do not become compromised?
In natural medicine the most fundamental thing one thinks of is to 'continually check' toxic overload.
The overload could be from environment,stress,eating habits,toxins in many forms.Or maybe even surgies to have metal plates put in ones body which save life and help movement but put toxins and stressors into the body system causing overload.
Aren't these basic understandings? If the body system is toxic the other systems start to break down and then the immune system takes a hit.
And then opportunistic parasites may say 'Yum lets have lunch'
Is it not very important to monitor and access what the status is of our system?
Whether it is blood work,combined with Organic Acid Urine and comp stool testing,Live cell ,maybe combined with Iridology.Whatever method ones Doctor uses.
Then resupplying the body with the natural substances given by God to detox,strengthen and heal.
? It is all these things don't you think?
Thanks -Blessings John B.
Pamela Mae
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