| | Susanne
10/29/2009
6:45:28 AM
| Hi Auntie M,
I was wondering if the results ever came back from the tests you mentioned above. ? pls Let us know:) if you already have & I missed it, forgive me.
everybody - This is great news and am happy for you guys that you are finding doctors who recognize and treat for morgellons!!
As prevalent as this disease is in MY area, (So. Florida) I find it hard to believe that the doctors here are so oblivious to it. I've had to be my own doctor, as there as just no doctors here to support this.
I am trying to find more people in the So Florida area that share this dilemma, so that we could be a team and unite, results come in numbers.
If anyone on here is from Florida, you may write me at letsbwell@gmail.com
thanks a lot Susanne
p.s. auntie m, I cant believe our emails are so similar, funny
 | Auntie M
10/1/2009
5:45:40 PM
| Lin,
Feel free to contact me through email (mine is bwell94556@yahoo.com) and we'll connect by phone, if you like. I am seeing a naturopathic physician who is the physician's assistant for and M.D. in Berkeley. Though she is running diagnostic lab tests on me and she has heard of Morgellons, I don't know that she has treated anyone with it before. I will be seeing the M.D. for the results of my lab tests in a few weeks. Again, I don't know what he thinks of Morgellons either. What was important for me was the naturapathic doctor's willingness to immediately run stool and blood tests based on what I told her in the first appointment.
I am grateful for the continued posting by everyone of WHAT WORKS for them. I continue to have bugs on me and excrutiating itching in my private parts intermittently. I am on the protocol, taking MMS (though not regularly enough--yesterday I vomitted when I ate food too close to taking it) and Molecula Silver.
I just saw a posting about an omega-3 product called Moxxor, which is much stronger than the regular sources. From mussels in New Zealand. Since I am also having infections in my mouth and sores on my head, and when I cut myself by accident, wounds are taking a really long time to heal (never had this problem before)--I know I need something stronger for inflammatory problems. Trying to avoid Bactrim and following suggestions of John B. Just added his Digestive Aid product and Omega product. Too early to see if this will help. | Lin
9/28/2009
7:36:47 PM
| Also wanted to ad to my post to thank all of you who have been posting the information and giving support to everyone. It is comforting to know that one can reach out to others who share a common problem and get advice and suggestions that can be helpful. Thanks everyone. Lin | Lin
9/28/2009
7:30:06 PM
| to Auntie M: I am new 3mo. into this (lucky though could have had it since 91) Live in Fremont, Ca. so would like to ask Auntie M if she would share the name of the Dr. she found in Berkeley for I'm running into brick walls in regards to Dr.s who believe me. Mine started with lice that burrowed in my scalp and at the same time I had body lice but no Doctors would believe me so it is out of control now and I have it everywhere and even ingested them so they are internal. One thing that has helped me external is covering with a hair gel from Sally beauty supply but tube cost $6.95. Also wipeing down my face with Cetapil cleanser constantly seems to keep them from getting on my face. I would appreciate any name of any dr.that will give me something to kill the lice within. I do know I need to start on the protcol because my body's immunity is down.
Thanks, Mel for sharing your story and giving us hope.
Lin | Susanne
9/26/2009
3:14:13 AM
| Yes he said he will give back what the Locust has taken away and the cancker worm had eaten | Kim S
9/25/2009
1:55:56 PM
| I pray God restores us all to even more than we could ever image, more then we had before! I know He is the restorer and what he did for Lot in the bible. He is still the same God!!!!!!! | Susanne
9/24/2009
1:51:04 AM
| I lost alot too. Everyday I say to the Lord "I want to go home" but my home is gone, and I too miss the life I had. My child is also afraid to be around me and also is living with another relative. When I get frustrated with all this opposition, its funny I always say I want to go home instead of getting mad, as if I were a little kid. . and there's no turning back.
So I just keep telling God to make sense 2 me and show the message in all of it. :)
God bless too
talk ltr | Kim S
9/23/2009
5:28:16 PM
| Yes praise God that so far my children are fine. My daughter doesn't live with me though because of morgellons and my son only stays once in awhile on weekends. My daughter is 19 and has lived with my parents since we got ill and my son lives with their Dad. I still get so nervous if my son comes over and stays or eats with us and I pray so hard he is okay. He is 16 and teenage years are tough enough. My daughter is very afaid and hasn't hugged me in over a year so that has been very hard and the kids and I have always been so close. I have always had full custody of them. My daughter and I hang out sometimes or talk or text message so that helps some. I just hate what the disease has stolen from me. I feel like it took the last few years I had with my kids before they became adults and moved out. I wasn't ready or prepared. I still had so much left to teach them and now my influence isn't as strong as I don't see them daily. I know my prayers are strong though and I hold onto that. But I sure miss what I used to have. Well, heading home! Be blessed! Kim | Susanne
9/23/2009
3:46:08 PM
| I am only smart from the Lord. . and my cognitive skills are coming back :) something is working :)
Yup I had the muscle twitching too, particularly in my feet and I get bites on my feet. The twitching was stopping me from running, couldn do it and I am a long distance runner :( that went away
I think God has spared the children from this, has he not?
keep persevering
Susanne | Kim S
9/23/2009
3:36:59 PM
| Yes, my husband believes it so that is good, he has the fibers and gets more ingrown hairs or itchiness. He can tell after he eats bad he'll get itchy and his face will break out a lot or he'll get some sores. I am very grateful I am able to work and he has too, I know it is God and I pray it lasts! I have no idea how long I'll be able to. Luckily my job doesn't require a lot of thinking:). I'll pray you can get a good job soon- for God to open a door and give you all the tools to do very well. I can tell you are very smart Susanne! Oh and I get the large muscle twitching which is a little annoying and concerning. | Susanne
9/23/2009
1:41:11 PM
| Wow, Kim. . that is great you're still working. .thats a blessing! that you are able to endure and have a high tolerance level, must have come from the Lord. Yup your sypmtoms sound similar, particularly the forgetfulness and the swelling. Does your husband beleive it is Morgellons? Well I guess with your computer gone, you can only get on this Forum at work. Will talk to you later, heading off to a job interview now. This condition has dulled my sharpness making it harder in this economy to get a job. In other words, I use to be the assistant to ambassador of Hungary .. cant do that anymore, I am looking for any medial position because I cant do figures with this, have to work something low key. My goal is to combat this disease in every which way, whatever recipe it takes to get there, as long as a cure. I agree with your point that God can use this to shape our characters or reach out to others, and often I think of the people with handicaps who have to live their whole life that way, I am no better than them, they dont deserve it either. The world will always be filled with disease, so the message here is to turn something negative to positive. love, susanne | Kim S
9/23/2009
12:03:38 PM
| Hi Susanne, thank you for responding. I appreciate all your suggestions and I know we have the same goal to get on and stay on the healing protocol, so that is good- we will get there :). Thanks for caring for me and I am praying really hard that my husband will let me try to sell our place(again) on fsbo- and then we can rent a cheaper apartment or little house, God willing that is. That should free up some money. Plus I have always felt like I was supposed to write a book and if it gets published then I can get the stuff I need and help others. I am starting my book but having trouble staying focused and I am working full time too.
We have the crawling sensations at times or the itching and lots of fibers, not really huge sores but on my face- a lot of break outs, cysts or smaller sores-between my eyes usually, nice huh. Or when I eat bad I get very swollen eyes and sty's on my eyes too. I get some itching small sores on my legs at times. I haven't really had the lesions yet but we have only had the disease since last June- a year and 4 months now. Both my husband and I have been so tired and forgetful which for him is odd, me not so much ;). I know when we got it as we were infested then with bird mites and then started have a lot of fibers come from our skin and other symptoms- I could even see them roll out on my arm when I was in the car and it was very hot in there- it was so scary and I didn't know what was happening until I read about morgellons while on the birdmites website. It has been a real nightmare, which everyone here understands. My email is kimfoulkes7@aol.com but I don't get a chance to check it much because we do not have a computer anymore- one of the items we had to throw out. I am able to get on this website at work during my breaks and lunch so that is nice. God bless you! Talk to you soon. Kim | Susanne
9/23/2009
4:57:19 AM
| Kim, dont worry about it.
I replied to your questions since I could relate to your situtation because I know what it is to be broke and be waiting to get on this protocol. I was simply trying to find inexpensive ways to keep things at 'bay' for you and keep you comfortable, UNTIL. . . To me, these items were God sent.
As for my own cond., I finally ordered a month of the protocol for myself in July and wasn't able to afford the second month so now I am trying to make the 1st month stretch for 2. I cannot buy anything else until I work so I still use alot of these 'home remedies' for relief. Everything I told you about, can be bought with a food card (should you get food assistance for your family). If things get bad financially, you could go for food assistance, the government has allowed programs for that due to the economy and unemployment, in fact they encourage it..maybe this will free up your money as well so you can buy the protocol.
Mel also used a very inexpensive product that helped before going on the protocol. It is called Master Cleanse lemonade, I took this even before I had Morgellons because it is healthy way to detox your whole system. You make it yourself with Cayenne, Lemons, Water, Maple. . very very cheap! You can google the recipe. Mel said it helped stopped activity and for me stinging and itching. You asked for cheap solutions until you could get on the protocol so this is what I gave you & didnt mean to cause anything controversial. I don't like to see anyone in discomfort when i may know things that can help.
I'm on this because I was told this was a support group, this is an overwhelming disease and we all need to express ourselves, I want to be very PROACTIVE with this. I would like to also develop a support group in my own vicinity where people can be themselves, unwind, vent, comfort, & share ideas Stimulation with others in order to avoid isolation, and whenever we help make a difference for others, makes US feel 'alive' ! and then everything has its purpose. .
So my intentions were to help you. Tomorrow I have an interview and I wish I could get the money to buy both of us the protocol.. eventually maybe I can. .email me.
Mel and Mr CS did get well. Mr CS said he doesnt like to call himself 'cured' because he feels he may still hold it but that he is symptom free. But since this may be true for all diseases, To me symptom free is cured !!! Also, there is another man healed from this who wrote online. So we are getting there ! Gigi22 says she is pretty much healed herself, you should touch base with her; her posts are on here also, she is very nice. I was wondering if you have lesions or stinging and biting or itching, what are your symptoms?
Anwyay, I wish you well and hope you do email me.
Take care &God bless, nice chatting w you
Susanne | Kim S
9/21/2009
3:18:39 PM
| Oh no, not your fault for me crying. I kept hearing cast your cares on Jesus(in my head) and I was talking to my husband about that and he said is something on your mind and I just lost it- he asked ;), I shared so much and I shared what you said and how that made sense. So many things on my mind- my poor brain. I know first and foremost that I need to rest in Jesus, to trust in God and stop worrying. I can't carry the weight of the world on my shoulders- none of us can. I will do my part to get healthy and healed and the final results are up to God- He knows best anyways. Also, I'll do my part to protect my kids and others from getting it and that is all I can do. God is the one ultimately in control. Pammie, I'll send you this encouraging email that was sent to me today. God is good! Much love everyone! | mel
9/21/2009
2:57:59 PM
| Hiya Kim S,
Welcome- You have nothing to be sorry About. Unfortunately When we go through the reproduction cycle some of us get sicker than others. Although
peoples intentions are good,often the information given, is based solely on personal opinion and even that, conflicts on occasion.I see that you are trying very hard to stay focused and I understand how difficult that can be.I truly respect you for your efforts.
Good Luck God bless,
mel | Pamela Mae
9/21/2009
2:42:48 PM
| Kimmie,
No,not your fault no worries... Pammie thinks you are the best.You are my sweet sister in Christ.I was trying to protect you and help.I am very sorry you were included,it was not my intention.
I just got my second round of testing back,it showed a WHOLE lot,some peculiar things I did not want to hear. But again it confirms that the protocol is good.
God Bless you sweet girl,
Pammie Mae
You may email me at my site or if you email lets chat on a call.??I am so sorry if I made you cry honey. | Kim S
9/21/2009
1:30:18 PM
| Hi guys, I am so very sorry that I caused any problems with my question. I am so grateful for this website and for any help from others. I am going to use any extra money I have toward the protocol- which has helped cure others, and use some of the topical suggestions or things I already have at home. I will get one product a month from the protocol if that is all I can get until I have everything. I talked to my husband last night and cried and shared what Pam said- I am glad Pam for your post saying we need to stick to the protocol, it made complete sense and a good wake up call for me. This is a very scary disease and God will help us to get thru and I believe to be healed. Let us all love and support each other and continue in the faith and prayers! I am going to check into a doctor once I get my results from the stool and urine test. Keep the faith and again I am sorry. | Susanne
9/21/2009
6:20:43 AM
| Pam, I did not have the money to go to a doctor, for the consultation doctor charges or the trip 3 hours away, the fees were expensive, that was the case and I spoke that in email. I wasnt resisting, I was broke.
I did address topicals on here and asked awhile ago with John and with Mel, they didnt have suggestions. Mel mentioned peroxide on the skin. So I have only shared what has helped me and some of which I have learned has helped others. I have asked Mel many things. I am not making accusations, I am sharing. | Pamela Mae
9/21/2009
4:09:12 AM
| Okay Susanne,
First - please ,lets not personalize things.Please do not intimate that I would try to keep people from getting help,nor that the outbreaks should not be addressed,nor the environment.This is why I built a website dedicated to my brothers and sisters with morgellons. I am simply saying'once again why not ask the people who have had success' mel and mr cs have gotten well.
I know what it is not to have abundance of income and to be in the throws of suffering going through the exacerbation periods of this condition.This is why several of us have emailed you 'personally' to help with a plan towards a Doctor or clinic -which you seem to resist. You need to know that I also speak with several of the people on here personally and they are going to a doctor or having labs done to support the cycle phases when we 1. break out 2. suffer incredibly during the reproduction phase. Those of us who have had it for a long time are trying -DESperately to save you money,heartache,or some of the suffering we have had to endure.There is a theory that if you use the wrong topical application it will drive the morgellons further into the system.Bottom line is you are a grown woman,we all go about things the way we do.
I also know what it is to be a Christian. It is giving from ones heart with pure motive. Anything I have shared through personal email or online here has been only to help,not to accuse.
Please do not address anything to me here or through email again.
Thanks
Pam
| Susanne
9/20/2009
7:45:13 PM
|
Dear KIM,
Cornstarch has been a big soother for me. It cost 1.27 at Wallmart. I punch tiny holes in the seal and use it like powder. It is known to kill fungus, and gives TREMENDOUS relief for me. I pour it all over after showers, and it keeps the skin soft too..
Hi Mae how r you, fyi just want to clarify, no one is steering away from the Protocol. Afterall the Protocol does not include any topicals anyway. If there are items that can give comfort or relief and subside any of the symptoms or help it not to progress, they should be shared. We are not mentioning these helpful products in Lieu of the Protocol, we mention them in addition to it or until one can get on protocol, these will also give comfortbility during it.
Environment care should not be disregarded either; this is important to share as well.. If one treats themselves internally, and forgets the outside they will get re-infected. A good example would be someone with Aids, if they were to be cured and then kept having unprotected sex with another Aids victim, they would be re-contaminated. So we are not taking away from Mel's protocol or underminding it, we are merely giving awareness to inexpensive treatments that will suppress, and eliminate discomfort to others wherever they are on the road to recovery. Also as we read here, not everyone can afford the protocol in their present time and they need some help.
| Kim Schierer
9/18/2009
5:03:17 PM
| Oh I see what you are saying. Thanks Pam and I understand your frustration. I plan in figuring out a way to get on the healing protocol but unfortunately I have to have my husband's okay ;) and of course the money. Don't worry it will happen though and I will stick to it! I have 2 kids to take care of first too. I am praying for God to provide and open a door soon for this to happen. | pamela mae
9/18/2009
3:30:10 PM
| Hi ladies and myself, I am including me in this exhortation as I too need to be reminded of this.
I believe all of us are in the 5 wk phase(kim this is what it means--breakouts,roller coaster emotions)
mel has gotten well - I AM NOT. Why? I beleive he stuck to the main thing and did it well. 90 days without fail
I wonder if we could save money by not going off into other areas?
why not ask mel what he did(once again for break out periods) he is well, we are not.
I hesitate to advise any one myself by saying what I did because ...I AM not WELL .....YET!!! but dang it I plan on sticking to the main thing .. I want desperately to touch others,hug,and be well.
Sorry if this seems harsh-its by my own mistakes that I am including this exhortation.
Thanks
Pamela MAe | Kim Schierer
9/18/2009
2:30:11 PM
| Thank you all so much for responding. I am taking notes on what everyone said to use. I will do what I can now and hopefully, eventually be able to start the healing protocol or at least get some of the supplements in the near future. I feel much better and more hopeful today after reading what was suggested. I am a problem solver and it is so hard for me to know the answer and solution but not be able to afford to get it, that it is in reach, yet so far away. I work as much as I can and take the overtime when it is offered but it is very hard for me anymore physically and emotionally to keep doing that. That is so true Susanne- that God knows that we can't afford things and will put handy things in our path to use, very true. Thanks again oh and Pamela- I am not sure where I am at in the 5 week cycle, I read about that but I am not sure. Thanks again and much love everyone! You are all in my thoughts and prayers! Please keep in touch or feel free to email me anytime. I listed my email. | Susanne
9/18/2009
2:28:15 AM
| ohhh. Kim, you can buy Lou Ann brand coconut oil at Wallmart for a few bucks, it lasts a very long time, you can eat it for the internal as well as external. A big jar for $4.99. It is organic and anti-parisitic, google it and see. It helps pacify the situation, a woman wrote about it on her site called "I am sick and nobody believes me"
What night when I ran out of EVERYTHING, I was in total discomfort . .all I had left in the house was witch hazel which I used b4 this to clean my face. Being desperate, and having nada. . I poured the entire bottle on my head, I dont know why I did it but MIRACULOUSLY the itching stopped immediately.
I know have it in (10) 3 ounce bottles all over the house and in the car. Everytime I get a sting, I spray, and i think it paralyzes them, the sting stops instantly. I buy the witch hazel for 1.69 at Publix and it fills many bottles. I buy the empty spray bottles 3oz at Target for 99cents ea
again, your welcome to write me | Susanne
9/18/2009
2:06:22 AM
| Kim, I agree with you 100% . .I know everything you are saying. I certainly cannot pay a doctor who will see me for this. . none of them do it pro-bono, and they SHOULD have free clinics for this. I cannot buy J. Burgsteiner supplements this month, so I am trying to make last month's spread out and I cannot buy anymore molecular silver. .I am still not working. I also have 4 uterine tumors, 2 of which they think are sarcoma and dangerous but I chose noe to have surgery because of the Morgellons. It is true that hydrogen peroxide helps on lesions, and I was told by Ed Lias who works for MMS that hydrogen peroxide is stronger, the only thing you cannot take it internally. I am also drinking Amazing Green Grass superfoods which I still have in the house with ice and almond milk in a blender. I had to use household products when I was broke and still do use some of them. You are welcome to write me I may have some ideas and you can get my email from Mel. .or ask for it here. thanks for sharing all that. I feel when we are broke, as I am as well. . that God will give us handy things in our path that we can use. .I know I use ammonia for alot of things because it is cheap 99cent at dollar store, I cannot afford anything else right now, i use it to clean car, clothes, and wipe down other stuff. The fumes left in the car kill these things, then you air it out and it dissipates. Write me if you can, I liked hearing your story. | Auntie M
9/17/2009
11:24:34 PM
| I, too, am lacking the financial means to fully combat this condition. After 6 months of being very sick with symptoms, I just found a naturopathic doctor in Berkeley, CA who is a physician's assistant for an M.D., who immediately had me test for internal parasites and is doing blood work. This doctor 'combo' takes MediCare. At least, she did not tell me I was imagining my symptoms.
What has helped me was starting with the silver (at first I used NutraSilver, which in high doses, did seem to kill a lot of the parasites inside me, but made me feel sick). It was too costly, as well.
Then, I switched to MMS (cheap) internally. Go to jimhumble.biz to get good info about how to use MMS and HOW IT WORKS in the body. I purchase it from mmsdr.com.
I also found that putting activated MMS in a bath daily, killed the parasites on the skin. 150 drops of citric acid to 30 drops MMS, allow to activate for 3 minutes then put in bath water. Stay in bath, covering entire body for at least 30 minutes. I have bugs hatching in my nasal cavity and ears. I very carefully breathe the MMS water from bath in through my nostrils a couple of times and blow it out or let it drip out. That kills bugs for awhile, giving relief there. Done daily gives me some symptom relief. I just hate the smell so daily baths are difficult for me.
Once on MMS internally for a few weeks, I switched to Molecula Silver. Not cheap for me, but seems to help.
Once I understood that the bad pathogens that were being destroyed inside me needed to be replaced by good critters (the ones that normally live in the gut and help with the immune system), I added probiotics from the health food store. Once I had saved enough money, I purchased the Wellness Protocol from Logos Nutritionals. I could only order parts of it at first, due to money challenges.
I have found that changing my diet, eating lower on the food chain, is far less expensive. I am also eating according to my blood type which is supposed to reduce inflammation in the body and over time, seems to reduce cravings, so I eat less. I have found the more carbohydrates I eat,(I mean whole wheat products and even brown rice), the more I crave more of this stuff. Shifting to a more alkaline diet (greens, plant proteins, no meat, no carbos) is a slow process for me. I am also taking AMAZING GRASS GREEN SUPERFOOD POWDER (AmazingGrass.com), which helps alkalize the body. Not cheap, but my body likes it.
I also am using a mixture of Bonner's liquid soap (I mix the tea tree one (from health food store) with the peppermint one (from Trader Joe's) on my scalp and for washing in the bath. That gives temporary relief of skin symptoms. Once in awhile I bathe in 2 cups Borax. That helps also. Borax is cheap. I also wash my clothes in it. Been advised not to add laundry detergent.
I hope some of this helps others.
To do the parasite testing for the doctor, I had to come off all my internal treatments/meds for a week. The critters have come back with a vengeance and I am exhausted. So I am starting the whole process over again. I really hate the MMS, but am forcing myself to take it. Trying to take it more often throughout the day in lower doses. | Susie Q
9/17/2009
10:41:38 PM
| In order to have temporary relief from the lesions I find a long soak in the tub with Epsom salt and peroxide helps a lot. It is not a cure but it gives relief and it is not expensive. I hope this helps temporarily and that somehow you can try the protocol.The MMS is not very expensive and it seems to be key for me. | Pamela Mae
9/17/2009
5:52:42 PM
| Kimmie, Its Pammie.
Do you think you are in your 5 wk cycle? See the section on the 'First Anniversary Report Day 4?' Honey I will pray for your family. What I try so very hard to do is stick to the main thing. I try to be a focused person (it takes the help of good friends to keep me focused ) cuz its not always easy with this stuff pestering all the time.It can be so isolating .
I understand about the cost. What I have done is try to stick as much to the protocol as I can -getting the main items that I could. Anytime I have gotten off track I had BIG problems.
Anyways, email me so we can pray together -K ?
God bless you my dear sister,
Pamela Mae | Kim Schierer **
9/17/2009
2:36:30 PM | I have had morgellons for over a year now and went thru a huge loss from trying to recover from bird mite infestation. I had quit my job to do home day care before the infestation and morgellons and had bought a new more expensive house before all this. I ended up not being able to do homeday care and so I was out of work for awhile. We spent or lost about $20,000- ripping out our carpet and throwing out furniture and everything to get our place uninfested from mites- which did work, we had tried everything else which didn't work. I had to have emergency surgery also for a hemrrohaging cyst on my ovary and well we just can't afford the things we need to get better. My daughter also had to have surgery so we are paying medical bills. My husband is also sick with morgellons. I did get my job back so I am grateful but we can barely pay our mortgage and bills monthy, let alone have money for supplements. We did try to sell our house for 8 months with no luck. Sorry to go on and on but my question is what do you do then to get well? We use DE food grade and baking soda twice a day- that we found is not too expensive. We have used Trisha Springstead's new hope 2 soap when we can which seems to help. Can you tell me if there is something that I should be doing or taking that is most important atleast to start the healing that is not too expensive. | | |
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