Thank you for a beautiful, poignant and touching post. Your words are just lovely and heartfelt.
You said, "when I'm in burning pain I still try to smile because it means I have a soul," wow that is food for thought right enough :-) lovely.
We do change completely with this disease in that we now know the artificiality of the modern world and materialism of it.
Since many of us have lost so much, we also realize we can survive materially on very little, just the basics.
Because this illness somehow strips us down to our bare bones. And no one else apart from fellow sufferers will understand this.
I remember the second time the disease got really bad I threw away all cloth things apart from one set of clothes which I wore only to enable me to get other clothes that were safe as I was getting reactions to everything cloth. I didn't even have a bra for a week.
Oh how I now realize how good it is to have the basic clothes and basic bedding, not a blow up bed which keeps getting holes in it, slowly sinking down. I got rid of all my books at the start and now have a reaction to library books, is it book mites or mold? I don't know, but I cannot touch them or go into a second hand store without reactions.
But we adapt and learn to live with what we have. So yes we can live sparsely materially but one thing we need to fight this is medicine. It has been said that lyme and indeed morgellons for that matter are a rich man's disease because they are so complicated and require soo many medicines to fight so many malfunctioning systems in our bodies.
It's wonderful that many people are getting help from Mel and the foundation.
I'm. Quite taken aback today by the fact that I'm getting help with these medicines it's surreal and quite at odds with the way the harsh world often operates.
But it's really going to happen. It's such a great thing to offer a lifeline to people who have been drowning often. The medicine is like arm bands :-) how great is that?
And much needed for many people who struggle daily to cope with being so sick that they feel like a shell of a person. Though we do still have our spirits and we all are obviously fighters.
We constantly fight, fight, fight to get some modicum of health back.
But do you know what? I was thinking today, how exhausted and weary and tired I am of always fighting for my survival and feeling these bites, crawlies, specks.. How i hate them with a passion.. and everything being about survival. Soo tired.. Rundown with it all and very weary. And then I thought, "wow!! I'm going to get sent these excellent medicines soon and so that soothed me... Not just because of the medicine, but because there are people who care that others are suffering, Mel that they have never met that sometimes even he struggles to exist...
It's a lovely thing to reach out your hand of help to someone in need who could be lost I'n a maze of ill health and help them find their way through it.
Amanda. I watch a lot of you tube videos where people help homeless people and I feel emotional at a lot at them. I also watch people helping sick dogs and cats to health. Both make me cry. Because with both sometimes hope has been lost you can see it, in their eyes and then they are offered love and support and all of a sudden the persons face lights up with a smile or a sparkle in their eye. Or the dog wags his tail and smiles and plays happily content in the knowledge he is safe, looked after and yes loved.
No man is an island, we can feel completely alone with this often, but people here are helping. They want the suffering person to after time, get stronger and stronger and build immunity, Learn to feel safe again.
They want the suffering person to feel safe to be affectionate and to connect with others.
Please anyone who can donate to help Mel help people who are struggling hugely, to cope with this terrible illness and to help Mel so he can continue to help them.
Go Fund Me
Karen, that's lovely that you and Mel are now a couple :-) To think of times when you were both so unwell that you thought you would never again have romance or love in your life!!
I think after getting better,it must be wonderful then to be able to connect fully and never ever will that be taken for granted!
I wish you both all the best and am pleased for you both.
God bless everyone here,
Ps.. I went outside for a walk today after being told by Mel that I'd get even more medicine then I ever expected and there was a huge big rainbow in the sky :-)
Pss. Mel you are a lifeline.
Love is a four letter word which no force is greater than. And God is love.
If one can change the way they look at things, the things they look at change.
Your posts are never too long.
I am glad you have come into Mel,s life and will be there for him.
We know why he gives his all. It has been evident ...By their deeds shall ye know them...
And I am sure we all feel so greatly indebted to him for all he does for those who have no one to turn to in their darkest time.
He has saved many lives,
I hope one day I shall be in a position to repay just one iota of all he has given to me and to others.
Go Fund Me
Thank you everyone for all you do to support him.
Christ said"love one another."
This site shows just that.
I loved your "Love" post.
You're right...this disease changes us...and in ways that go past the physical and even the mental...it changes us spiritually...and for the better.
It truly shows us what matters and what doesn't.
I've changed so much since I got sick...the things that were important to me...the material things...matter less and less and people matter more and more.
I guess my change in outlook could all boil down to one thing...a change in values...or...better put...a change in what I value.
Helping others...being fully present in every interaction...and just knowing what a beautiful gift this life is that God has given all of us...these are the things that matter the most. Just knowing we're all here on the same "ship"...and because of this, we must reach out to one another...that's a huge part of the spiritual journey...helping each other and being there for one another.
You mentioned helping Mel help others who have lost everything...
...and you mentioned helping Mel as well...giving him the support he needs so that he may continue to do what he does to help others every day.
We all need to do that...we all need to help Mel, and I'll share why.
Having Mel always available to all of us is a benefit that is more valuable than we all know.
Sometimes I try to imagine what it would be like for all of us if there never was a Mel.
I would have been be lost...and in so much distress...no hope...no idea where to turn...and probably dead broke because I would have continued to have purchased everything that came along from any online predator who promoted anything I thought would have helped me. I'm also very sure I'd have been very ill...where now I'm so close to getting well.
It's hard to put a value on that.
Most of you know that Mel and I are in a serious relationship (albeit a long distance one...for now, anyway). That alone indicates bias. However...I'm also extremely observant and analytical...and the truth is important to me.
So...with that caveat and disclaimer, I'd like to share what I know about this man and why I believe it's so important for all of us to stand behind him and support him in his efforts to help so many others.
I watched him for a year or more on this site before contacting him or writing my first post.
I listened to every conference call I could from the archives and from "More Communication is Better."
I couldn't figure him out. I've said this before, but I couldn't believe someone would really take on all of this alone and do it day in and day out for no recompense.
I couldn't figure out how someone could afford to do it (because it's obviously a full time job which would preclude Mel earning money elsewhere), and I couldn't figure out how someone could withstand the emotional strain which would have to be enough to put most people into a major depressive episode.
But not Mel...once I "met" him on the phone, and once I got active on this site, I realized he's the real deal...what he's done for all these years is completely from his heart and from a conviction that he's doing what he promised God he'd do when he got well.
He stays upbeat because he understands the value of life...having had so many health issues from a life threatening injury earlier in life...he's just happy to be alive and walking around straight and tall without a walker.
That kind of puts things in perspective, doesn't it?
Now that I know Mel personally, I'm further amazed with him. Ok...he's not perfect. He can be stubborn and hard headed (sorry Mel) and his method of communication can be a bit startling at times...though his intent is always kind, he can sometimes be pushy and gruff if he's trying to make a point where he believes he's helping someone.
However...since I've been in his life personally, I've seen some things that have been even more surprising. This man is no fake...he is truly about helping others...so much so that he forgets to help himself.
Case in point...Mel orders supplements for people in the foundation every month. About a week or two later, he remembers he needs to order supplements for himself...not one time...but every time.
Mel is basically retired on a shoe string. His retirement was not as he planned or imagined because he got so sick at age 59...and that would derail most of our retirement plans.
The term "fixed income" is just that. It doesn't go up even if your rent does...and did his rent ever go up! Now he's even more dependent upon his coaching business to fill in the gap.
One would think this would make him a bit more focused on those who can pay and cultivating that line of business...but no...I've watched him...he is equally focused on ALL the people who call him. He sees everyone as someone who might need his help and he forgets to think about his bottom line.
Another case in point. Mel needs to get busy making some Youtube videos about MD. For one reason, these would be helpful for so many people, but another reason is they would help expose his coaching services to a wider audience and allow him to expand his business, thus have more of a chance to earn enough money to keep body and soul together.
Mel also needs to take the time to go down and talk to the people at the VA. Mel is a veteran...so there is a possibility he has some benefits he could access to help him bridge the gap...but he hasn't done that.
The things in these last two paragraphs could potentially make a difference for him financially.
So...being the woman in his life, I mentioned that maybe he should put those two things first...prioritize these since they could possibly help relieve some of his financial strain.
I told him this today.
Here's what he said...
Maybe next Tuesday on my day "off"...I have too many phone calls to make...people who need me...and I need to get ready for the weekend conference call.
That's what he does...he puts others first...and doing this has caused him to experience financial difficulty.
Another reason he is where he is financially is because he's given so much of his money away to people who needed it over the last ten years. He had some cash reserves when he was forced into retirement and sold his businesses. His best bet would have been to hold that money tightly and to have invested it in order to get some passive income going to protect himself in his older years.
He did not do that because he helped others...he gave and gave and gave...and gave until it was gone.
And now he gives and gives and gives of his time and energy to all of us.
He is not backed by sponsors...or by vendors.
No one is having a "He Cures All" Gala to raise funds.
No one is having a "Fun Run" or a wrapping paper sale...or a "just add one dollar or five" at the check out at Walgreens for MD.
No one is doing this because it's way too controversial...and people are way too stigma conscious..sometimes so much so they don't even put their real first names on a simple post.
Not throwing stones here...I am too. I get very uncomfortable about people knowing I have MD. It's not a glamorous disease, and that's an understatement.
But Mel has put himself on the line over the last ten years. He has had the courage and guts to put himself out there in full public view with one intent...to offer help to those who had no where else to go and no one else who would listen or believe. He has done this to offer hope...and...
...he has done this because he made a promise to God.
And now that I know him...I can vouch for the fact that he is the real deal...and he offers his services to God through helping his fellow man daily...and he does so with great enthusiasm and consistency.
We all depend on picking up the phone and knowing Mel is there.
We all depend on writing him an email...and Mel is always there.
He might yell or let us know we're doing something that is not helpful to our recovery...but he's always there, and his reactions always come from a place of love.
But back to your topic of love Amanda.
What Mel does comes from a place of love for his fellow man.
He is selfless in his devotion to help others regain their health.
He cares so much about everyone on the site...I've heard him get more than emotional over people he's worried about or who have had great difficulty or misfortune.
He is so focused on helping all of us.
And now we need to help him.
As Amanda said...it doesn't have to be a lot...but, in my opinion, it does need to be spread out over all of us who benefit from having our Mel here for us all the time.
That is a way to give some of the love back that he shows to all of us.
I personally don't have a lot of extra money...none of us probably do.
But I'm making it a priority to support Mel's efforts by sending what I can financially.
Is this because he's now my significant other?
Of course...I'm obviously more in tune with his situation due to our personal involvement...so I'm aware of the need and respond as anyone in would in a similar situation.
But that's not the only reason why...because I did this long before we became friends and then a couple.
I've done this because it's the right thing to do for someone who gives to all of us so unselfishly.
I hope everyone who reads this thinks about it and finds a way to put some money in Mel's Go Fund Me account...and I hope this happens soon because I know Mel is very concerned about some things that are financially pressing right now.
Go Fund Me
Thank you to everyone who reads this...I know it's long. Maybe some day I'll learn to be more concise...but...lol...maybe not.
Thank you again Amanda for writing such a beautiful post. I'm sure everyone will see themselves in the things you've said.
As you know, this has forever changed our lives. I think back on the "materialistic" things I have lost and yet I have "gained" a new relationship with our Lord.
I also have come to realize the most important things in life are "God" made rather than man made. Things like my amazing children and beautiful grandchildren. They are blessings from God.
I have become a new person with Christ and strive everyday to understand his word, learn the message of his word, and then do my best to serve Him.
You most certainly are learning His word and you do have a soul. The more you understand and live according to His word; the better you will feel spiritually. I honestly believe this is part of our healing.
As you look back through your journey, stay positive because you are overcoming the important things that are of God. Everything else you may encounter are just a small detour.
Stay the course! Understand the message you have gained through your suffering. Strive to conquer this inside, outside and spiritually. You are young and have a "new" life with Christ ahead of you.
Thank you for sharing this beautiful message of the many insights you have already gained. May God Bless you and your family!
“For I reckon that the sufferings of this present time are not worthy to be compared with the glory which shall be revealed in us.” Romans 8:18
In Christ Love,
With recent headlines on the news it seems as a human race we have forgotten about love and compassion.
Since I have gotten this disease I understand what it means to suffer silently and loudly and how to have compassion.
I've learned when I see a homeless person not to second guess and judge.
I've learned to have a bigger heart and to serve God for the greater good of mankind.
Before I got sick I had this capitalistic viewpoint to only focus on success and money but at the end of the day, materialistic possessions fade and have no sentimental meaning, only a beating heart has true value. Greed is the root of all evil and even if I die, trying to fight this disease I will do my best to serve mankind.
So if any visitors Are here or people who have beat this disease please donate what you can. If everyone donated a dime who had morgellons,
then we could all be a little bit better.
In the end God judges our actions and it shouldn't be a motivator
to do good we should naturally strive to do better every day.
When I'm in burning pain I still try to smile because it means I have a soul. I've lost almost everything but I have God and he will guide me to the end. Even if you don't believe in Jesus admire the person who he was.
He gave everything to people who had nothing and or sinners.
When I look at homeless people I see that blind man that Jesus healed.
So please again donate to help Mel and to help Mel help families we who have lost everything.
Go Fund Me
To those families who have lost their help I'm praying for you, even if
I sicker or better.
In the end getting well doesn't completely matter, but serving God and doing good does!
God bless you Mel