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Nancy 3/13/2015 12:21:04 AM | Hi Melissa! I can relate to working full time and how it can be a struggle. It sounds like you are spending lots of time alone too which may add to a feeling of isolation. If you have a laptop and can work at the library or some other public place with people that may help. Hang in there and know that it will get better as you follow the protocol. Best wishes. |
Peter 3/10/2015 12:56:05 AM | Hello Melissa This is a heartfelt post. I want to thank you by pulling out the value in it. That value lies in how it helps others to identify and better understand how hard it is to manage it all. Real life demands all of a sudden become hard to navigate. For example, we know we must get adequate rest and we know we must work. How do meet work demands and still find time to rest? It can be overwhelming. The limitations are real. However, we must place recovery first. Then, with God’s help, we figure out a way to make it all work. As will you! Keep faith that God is always on time. Strength and Love, Peter |
Melissa 3/9/2015 3:57:21 PM | Hey everyone, First, I need to apologize that I've not posted in quite some time. I have to share with you all that going back to work full time has been exhausting and overwhelming. I work in front of a computer all day and manage a team of 21 people remotely, which takes it's toll. I do read the forum during breaks and on lunch and on my days off when I feel like picking up my computer, which is rare. I can and should do a better job of staying in touch. I have so many different symptoms than everyone else and have been struggling with several other unknown co-infections, which is truly frightening. I still lose my vision in my right eye and it can be painful at times, which is scary as heck! I frequent the doctor on my days off to be tested for what else I can be dealing with and that's an all day affair because she is so backed-up that she is only taking walk-ins, so my wait to see her can and has been up to 4 hours at times. That alone takes up one of my days off. The other day is spent preparing for my work week ahead...you know, the typical grocery shopping, cleaning, etc. I thought I'd have the energy to do things before or after work or in between as I work out of my home, but I'm tied to my computer for a full 8 hours, so, I'm finding out that's not a possibility. It's a tough disease to manage and being alone isn't helping. While I do feel better when I read everyone's posts, I feel even better to have people to talk to. I talk to Mel often and love to hear from him. His laugh and stories are always so uplifting, but realize he is busy too. This morning, Mel reminded me of how important it is to communicate and interact on the forum and he's right. Prior to returning to work, it was the first thing I did in the morning and several times throughout the day. I usually fell asleep with the computer on my lap listening to the conference calls and reading the website. Now and most days, it is a struggle to get in a few minutes here and there just so I can keep up with what everyone has been doing and going through. I have to be honest, that sometimes it's discouraging for me ONLY because my symptoms are SO very different than what I read. Sometimes I feel like I'm fighting a battle that no one else has fought before and can't really describe how that feels other than 'alone' and very frightening. I've felt the most comfort when talking through my symptoms with others. It kind of takes more of the fright away. I will start to post more instead of being a silent stalker....lol. I don't get near enough rest and seems like all I want to do is sleep when I can't and can't sleep when I should be. I take my protocol, eat healthy and exercise when I have the strength to do so. I bought a small trampoline but hardly have the energy most days to even look at it let alone use it! Most of my exercise is walking the three flights of stairs to walk Keebler around the apartment complex throughout the day, running around on my days off, and carrying my groceries up the three flights of stairs. My energy is low, I feel like my body is falling apart limb by limb sometimes and often times I don't feel like eating at all, let alone fixing anything for myself. My weight has been up and down, mostly down because more often than not, I don't feel like eating. Mel has given me a few pointers on what to do when eating is the last thing I want to do and it does seem to help on those days. Mel has been really great to me, brings me fresh veggies from his indoor garden, drops off things that helped him when he was sick and the list goes on....I love him dearly for the support and guidance he's given me! Well, my lunch time is over but I just wanted to reach out since it has been such a long time and let everyone know that I'm still out here even though I've not posted in some time. I thank everyone for all your posts and support! I will try to be better at providing updates and posting more often. Blessings to all, Melissa |
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