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Ms. V 8/29/2016 3:54:04 AM | Well, where do I start? I am a newcomer to this community - at least, I will be a newcomer if you all will have me. I never really wanted to go to Club Med, my ideal vacation is a much cooler clime, but I REALLY never wanted to go to Club Morgellons, yet I am afraid and fairly certain that is where I've ended up. I am currently petrified, overwhelmed, angry, humbled, but also very hopeful - particularly after discovering Mel's site, reading his inspirational story and the words of truth and wisdom on the forum by so many fellow sufferers and magnificent survivors. I became symptomatic (intense itching, finding black and white specks on body, emitting bluish fuzzy fibers, fuzzy feathery white fibers and black 'eyelash-like' hairs from skin, joint pain, swollen glands and insomnia) about 3 - 4 weeks ago. Not that it matters at this point, but I believe that I contracted this after my stepson came to visit - the poor thing had just returned home from summer camp and was itching up a storm with what we thought might be scabies or bird mites. He got well - I didn't. I say it doesn't matter because I know that the real reason my body is now playing host to this miserable plague is due to a compromised immune system (which I've struggled with since early childhood) and a damaged bioterrain. I've used natural and holistic therapies, toiletries, products and supplements for years and I believe in them wholly. My husband and I also eat organic and whole foods most of the time. Over the years since I was in high school I had very good luck keeping myself healthy with a good diet and exercise. But we've had a great deal of stress over the past 4 years, my weight ballooned and I could feel my body slipping and struggling. Perfect ripe digs for Morg and possible Candidiasis, I'm guessing. I worked for an infectious disease specialist long ago who had seen some Morgellons patients, so I was alerted early with my current symptoms that this might be Morgellons. I believe that knowledge and my faith brought me to this site. The specialist I worked for years ago was believing but stumped by the disease at the time. It is a bit discouraging that that still seems to be the case among the traditional medical community all these years later. Luckily, my wonderful husband (asymptomatic) believes and has been witness to the bizarre symptoms and has been an emotional rock the past few weeks while I've been depressed, anxious and exhausted. One of our beloved English bull terriers is also showing symptoms and that has me even more worried. After talking to my husband and saying my prayers last night, and after reading all of the testimonials on this site, I finally decided to pull the trigger and start the protocol as soon as I can. I've already been alkalizing my system with lemon juice, acv and sodium bicarbonate for the last 2 weeks, using borax and Dr. Bronner's Sal-Suds and Peppermint soaps as well as turmeric, milk thistle, coconut oil, multiple essential oils, Co-Q10, magnesium, garlic, ginger and cayenne for starters. We still need to deep clean our condo, which seems a daunting task to me right now as I'm so tired and am really struggling with nocturnal itching and purging of materials. Please forgive this newbie's ultra long post. I am a little shy and reserved in my normal life, but there is nothing at all normal about this so I am 'purging' my story out into the ether and onto this forum. There is such a lonely aspect to the physical and emotional symptoms of this. Many thanks for reading this. I welcome any suggestions. Ms. V |
Ms. V. 10/9/2016 11:38:57 PM | Deanna, Awww - thank you for your sweet words. They made a little warm spot on my heart. I think there are so many brave voices on this forum. It's important for newcomers to read the veterans' stories, tips and advice, but I think it's equally important for newcomers to read input from other newcomers so they know there are others on the journey at the same time. Your contributions are truly important and I really appreciate them. The Capomo is a wonderful alternative, I'm so glad you like it, too. And I cannot rave about the Nutpods creamer enough. I used it this past week to make a creamy pesto sauce to put on quinoa penne pasta. My husband even loved it. For those who are now able to eat oatmeal or other whole grain cereals, it is a wonderful milk substitute. Let me know what you think after you get the chance to try it :) |
Deanna 10/5/2016 11:03:57 AM | Hello Ms V, I wanted to respond to the following comment you wrote in a response to Linn, under the "Follow up to Saturday's conference call" thread and thought/hoped that if I did so in your thread you would be sure to see it. :) You wrote; "Thank you so much for all of your contributions. Thanks to Deanna and Peter, too. I have been unable to attend the conference calls the past 3 weeks due to scheduling conflicts, but I listen to the recordings diligently after the fact. I'm only entering my 3rd week on the protocol as of this coming week but I feel so blessed to have found this community." I just wanted to say THANK YOU, as putting my name in with Linn and Peter as far as being a help to this community is a HUGE compliment!!! I am glad that you are listening to the calls they are incredibly helpful and have answered so many of my questions in the 3 months I've been on the protocol. Last but not least, I did receive and had my first cup of Capomo coffee alternative... It was a little bit of Heaven on Sunday afternoon!!! I will definitely order the cream you mentioned for a future latte as an EXTRA special treat!!! Thanks again and have a blessed day, my friend!!! Deanna |
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