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Original 12/17/2014 Post | |
Melissa 12/17/2014 3:42:19 AM | Hello Twiggy and Peter! I just wanted to say that I've been reading the older forum posts and you both should know what an inspiration you are! Your posts are informative and provide me with great hope for a brighter future. Twiggy, your posts have made me laugh and cry within minutes of each other, you have a great personality! Your symptoms and struggles mirror my life at the present moment. I've not shared this in the forum but feel that I need to share as you've inspired me to keep on keeping on! In March of this year, I went to bed with a horrible headache. During the night, I woke up totally blind in my right eye and my left wasn't much better. I had no clue what was wrong or why I was blind, all I knew was that it was very, very painful. I spent a week in the hospital and wasn't diagnosed with anything in particular. Two days into my hospital stay, I lost everything I had to a house fire. Darkness was an understatement! I was lost, alone and scared to death. I moved to Kentucky to be with family and it was probably the worst thing I could have done. In April, I received a cornea transplant in my right eye to restore my vision, it's still poorer than before I went to bed that night, but it's much better than being totally blind. I've had a lot of activity on my scalp too and you've inspired me to shave my head and not care what others think, so thank you it has helped a great deal.My skin on my face is horrible as well, I think I've aged 10 years in the last year. I too look like an old lady and miss my old face so much. It's actually driving my force to heal every time I look in the mirror. I chose to move out of my family's house so that I could live in a cleaner environment, I hope that you too will be able to move out soon! My family thinks I'm crazy, but that no longer affects me...it's all about doing whatever it takes to cope and heal! I'm also one who has a bit of OCD and found that it's actually been a blessing, as you have. It's helped me stick to my strict diet and not falter. It doesn't bother me to pass up the other unhealthy foods. In fact, I didn't eat anything for during Thanksgiving and it didn't bother me a bit! I had no problem eating my spinach and kale stir fry while my family enjoyed all the Thanksgiving goodies. Thank you for sharing your journey in detail as it's truly been inspiring and uplifting for me! I hope that you continue to post and share even though you're well on your way to full recovery! Peter, your posts are so informative and uplifting. You can tell that you are a gentle and kind soul. You shine a bright light in such a dark place, so thank you for that! You are so helpful and supportive. I look forward to reading many more as you continue your journey and recovery. Thank you for sharing your knowledge and experiences. I've learned a lot from all that I've read thus far. I wanted you to know how much your posts have helped me stay focused on mind, body, soul and healing! I look forward to developing strong relationships. As I learn and heal this tired body, I hope to be able to share as much useful information as you've provided to us. Thank you for being who you are, an inspiration to us all! I thank you all again for sharing the tips, tricks and personal stories....they help us newbies take away the scary thoughts and feelings of being alone in this battle! You all are an inspiration and I'm looking forward to healing with you all! God is good, things happen for a reason. HE'S brought us here together and of course, brought us Mel and John B. If it weren't for Mel's desire to give back we would be forever alone in our fight. Warriors fight til the end and never give up, that's what I find in this site....true warriors! Blessing to all, Melissa |
Responses (Newest First) | |
Melissa 1/13/2015 8:49:49 PM | Hi Shari! I hope you are doing well. I wanted to thank you for your kindness and compassion, it means SO much to me! I've learned to take one day at a time, which is helping for the most part. The stress of the move from Kentucky to Reno has taken it's toll, but I'm slowly recovering. I just wish that I could get this apartment put together and totally cleaned....I'm sure that would make me feel much, MUCH better. I keep Mel's words "slow and steady" in the back of my mind though. Although it doesn't help much when I'm used to being a 'get'em done' kind of person. I just real myself back in, take a deep breath and replay the conference calls to take my mind off the darkness. I'm so very grateful for Mel and everyone on this site as it's been my sane when insane tries to invade my mind. Then I remember Amber's words on the last conference call about how you have to remain positive and most of all, I TRY to remember the importance of rest. I'm sure everything will come together in due time and I'll find my routine again. For now, I'm focusing on my diet, doing what I can to get this place in order, and the never ending chore of cleaning and oiling. Thank you again, your response really touched my heart! |
Shari 1/10/2015 2:41:16 PM | Hi Melissa, I hope you are feeling better this week and coming out of your dark place, or possibly now seeing some light (however small) creep in. Melissa, you are so strong! You are not alone at all, because we are all here and care and better yet the God of the universe SEES YOU! Taking care of and tackling this (diet, cleaning, laundry, protocol prep, body care) can feel lonely because not many understand what were dealing with, or why we have to do what we have to do. But, we have to remember the fruit of the spirit, to be patient with them. They speak what they do not know, make assumptions, laugh, call us crazy, act coldly, etc because understand even less than we do about what we have. Hell, we barely understand! They don't like it and neither do we, but, we are sick and we have to fight, regardless of them and their words or feeling like life is going on without us. Like Peter says "warrior gets the job done". God lovingly says in his Word "I will never leave you or forsake you" and "I will uphold you with my righteous right hand". I used to think well he probably isn't talking to me specifically, but as a believer, and one who actively chooses to be with God and has accepted his offering of Christ; He IS speaking to you and it applies! How miraculous a revelation! So you really are never alone! God has led you here. I for one am very happy you are here. :) I hope your eye is doing better. My prayer for you today is full healing, increased strength and comfort! Blessings to you, Shari |
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