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Original 12/10/2013 Post | |
Daniel W 12/10/2013 3:21:13 PM | Hello all, So I am 31 years old and have had this for about 6 months, for the past 3 months I have been on doxycycline and without that my life would not at all be bearable, I can still work and am starting to function a little bit more normal. Also, I go to 3 different specialist and they are all baffled by my symptoms, I just happened to be "lucky" in a way that I have a lot of visible symptoms that come along with my flair ups I.E- a strange circle that swells up in the middle of my forehead, certain areas on my face swell up, I have skin that "lights" up and is red and patchy, and my lymph nodes swell up to the size of golfballs instantly and then retract. These dermatologist have seen these in person and have said they have never seen anything like this before, i NEVER have used the word Morgellons and NEVER will, I figure if I slow play this maybe I can be of some use to the community, maybe they send me to get researched or tested, who knows, but they can not deny the strange visible symptoms that come and go, they had 4 different Dermatologist examining me during my last visit, it was actually refreshing... My labs came back abnormal, they said my white blood cells are abnormal, and my protein receptors are not functioning like they should.. AND THEY SAID, it sounds like something that a parasite would cause..Keeping in mind ive stayed level headed, patient, and taken every suggestion they give me without question, I just simply show them the craziness that happens thru pictures and self induced flair ups when I go in... ANYWAY, has anyone head anything from OSU, or NEW HAVEN?? any new research?? any new anything? I feel like they have stopped and given up, it just worries me... I really hope that someday if I slow play this right I could help people |
Responses (Newest First) | |
Peter 12/12/2013 4:18:12 PM | Hello Daniel My name is Peter. On behalf of Mel and everyone here, I want to welcome you to this community. You are indeed very fortunate to have caught this so early and to have found this website. You are also in a unique position to interact with doctors who are acknowledging your condition as "real." So many of us have not had the benefit of genuine and meaningful physician assisted treatment, so it is exciting to see that you are! It is my hope that you will share with us whatever you can in this regard. May I suggest that you read the FAQ page here. Then you can read about the protocol and familiarize yourself with the support products that are used within the protocol. When you can, I suggest you look at the testimonials and listen to the conference calls. Then you can begin to read the many pages of posts that provide everything you need to know about how we use Mel's protocol to get well. Good luck with your journey, Strength and Love' Peter |
Peter 12/11/2013 2:59:50 PM | Hello Daniel Here is a link to relevant and recent legitimate research for you. http://www.thecehf.org/morgellons-disease-research.html |
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