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Linda
6/21/2015
10:39:15 AM


Hi Amber,

Thank you for your words of wisdom. I am so in awe of how far you have come from the first few times I talked with you. You are one of the greatest warriors here and I always say you are such an inspiration. You have such an amazing way with words and your spirit is beautiful.

I can relate to a lot of what you are saying. I had PTSD before I even got M because of some things I experienced over the years (nothing compared to your and your child's illness). Then it got way worse with M. I understand what you are saying about the fight or flight and how it is taken so long to actually be able to deal with it all.

Thank you for reminding us that we need to have God in our lives. He has always been there for me and my family and I seem to need to be reminded of that every day. My little one is doing well. She was in color guard this year through school and has come a very long way. She has hardly any symptoms now. One of her teachers has remarked more than once on how far she has grown emotionally and how much her grades have improved since September. I am very proud of her.

I always seem to have a slight set back every summer. Heat seems to bother me as well as the weather changing daily here. But I am coming along slow and sure. I've had to work at a job throughout this fight and am fervently looking for a less stressful job (and one that isn't in a basement). I feel like I have turned the corner though and can only get better. I am convinced that some of the stresses I have to deal with on a daily basis have held me back from a complete recovery.

Thank you Amber, Mel, Deborah, Nicole, Peter and all the wonderful people here. You have certainly made a huge difference in my life and will make miraculous differences in the future lives of those who come here.

You are in my prayers always.
Blessings,
linda


Nicole
6/21/2015
6:57:03 AM


Amber ..I swear I'm so great full for the site for so many things, but I'm eternally grateful for meeting you here!!! You are my best friend until the end!!!! I'm soooo happy to know you and witnesses for far you've come, from where you have 22 months ago to now, incredible the progress you have made!!!!!!!!!!! I wish we lived closer so we could celebrate ;-)

You are the bomb.com!! You never gave up! You always fought, even when fighting meant sleeping, you do what you need to do for you and your children. I value you, your opinion, and your friendship, it just means soooo much to me to have you as my friend!! Love you always momma!!!!!! You are the best!!!

Sending you good energy and love )))))))))

Your friend forever love Nicole ;-)


Amber
6/19/2015
3:59:16 PM




Hello all!

We are at just about 22 months on the protocol. As far as M goes we have been doing very well. The kids are about 95% better. I still see a few symptoms in them now and again. When they are under pressure at school, they get a virus or we are having a moon cycle I will see some minor symptoms in them. As for me, I've been doing pretty great physically. I'm still trying to manage some skin symptoms. My symptoms at this point are little pimples on my face that heal fairly quickly. One could just shrug this off as a regular pimple but, of course we know better. I've had a little rash on my hand as well for a few months, It looks like eczema. I have a sort of static cling feeling sometimes and usually get shocked by touching metal when I have that feeling. With that said, it in no way stops me from living my life. These things are for the most part short lived. What I've noticed as of late with the majority of the physical symptoms gone, I am now dealing with some PTSD not only from M but, from everything else that has happened over the last decade, especially going through what I did with my son.

I was told that most parents need counseling to deal with going through a child with a cancer diagnosis. While I was having a conversation with my son's oncologist during a procedure that he was having, she stated that a childhood cancer survivor wrote her thesis on the effects on childhood cancer on parents vs children. While most children that were fairly young during treatment didn't not have PTSD from the experience, either one or both parents did suffer with this disorder. There are many reasons why this happen. Most people deal with these issues once treatment has ended or their child has passed. Because while you're going through it you're in pretty much a constant flight or fight mode. I never got the chance to deal with any of it because literally just as treatment was ending we got M.

I then was fighting for my own life and that took center stage. Besides dealing with the reality of the situation with what we went through and I do believe that the Morgellons fight has caused plenty of mental and emotional issues as well, I have also had a lot of normal emotional things going on. I know other women, mother's and wives could relate to. I believe these things are holding me back from getting a 100% well. I want to point out that when you're really sick with M nobody has the time to deal with any of these things. I guess this goes to show how well I am from morgellons. Life is a wild ride!

We have our ups and downs. Things change and people change that is why having a relationship with the Lord is so important. God is the one constant we can depend on regardless of what else is happening. Being completely honest in this post may seem that because of this struggle I am experiencing that my faith has wavered but, that's not the case. Without my faith in God, I would not be here today writing this post. It is because of his grace and mercy that I am still here today and I know that no matter what he will get me through this very temporary life.

One day we will not be dealing with the suffering of this earth. If there is one thing I could emphasize to all of you still in the depths of the morgellons fight is that don't put a timeline on your healing. Because life is a series of ups and downs. Just take it one day at a time and before you know it, you will get your life back. This fight is just another chapter in our book of life and this too shall pass. Have faith that God will get you through this.

I love you all here in this community! I have found my true friends and family in life through this website. Strong men who have become wonderful father figures for me. Strong women who have become my soul sister's. I'm am so very grateful for everyone here and I wouldn't change a thing because if I had not got this awful thing I would have never known all of you beautiful souls.

Love and blessings,
Amber



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