ps
10/14/2010
3:58:29 AM | Martina,
I'm not surprised by the response of your GP. Morgellons is not yet a diagnosis, thought I hope that changes soon.
Most if not all of us have figured out for ourselves we have Morgellons. Skin lesions are the most common symptom along with fibers and the little rice like spheres. The tiny spheres are most often found on scalp and upper torso. Not having some of these symptoms does not rule out Morgellons but makes it is more difficult to determine if you have Morgellons.
This website has a wealth of information on Morgellons, what Mel did to recover, and what others are doing to recover from Morgellons by looking to Mel's experience. Please read the pages 'Home', 'My Morgellons Story', and 'Mel's History' to get a better understanding of this site. The 'Testimonials' page is new and the 'Search' page can help you find things easily.
You are fortunate that your MRI was normal, not everyone with Morgellons has a normal MRI. Your doctors look like like they are keeping careful watch of you.
I have a couple of autoimmune diseases that require constant monitoring. My experience, having a good working relationship with your GP and specialist treating you can be invaluable.
Last, I look up all my diseases and medications so I can take an active role in the treatment of my diseases. I find by doing so I can discuss symptoms and medications so my doctors can better prescribe and adjust doses for maximum efficacy with minimal side effects.
Being the curious type I did look up some of the drugs typically used for Cerebral Palsy. I recognized one that I have taken for neuropathic pain related to shingles. One of the side effects is itching. I would talk to your doctor if I were you to try to find out what the cause of your itching and crawling sensations is.
Good luck, never stop learning, and Never Give Up Hope
PS
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