Susanne
2/13/2010
3:28:10 PM | HI Hilary,
Its been awhile since I've written on here because I've been busy fighting this thing. Just so you know, my email address is letsbwell@gmail.com - pls write me.
I want to answer your email in yes, that I share alot of your same symptoms. First of all, I get 'random' scratches all over. . skinny ones, some long, some short . . they just show up out of nowhere . .and I thought these may be the track lines which they speak about.. . however all are ABOVE my skin.
When I first showed symptoms and for quite a while my skin looked like it had ulcers everywhere .. it burned .. to take showers were painful! Every cream the dermatologist gave me made it worsen and get raw.
I am not cured, but the skin is 50% better, doesnt hurt much, rarely burns or itches. .(still get small bites) . .but now can sleep at night.
Will write more later, hope this helps.
again you are welcome to write. . hope to hear from you . .
God be with you
|
