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7/2/2009 1:37:31 AM | Hi Deb2, I hear your frustration,from the deepest part of my heart I am so sorry honey. I would like to define some things,think them over then maybe regroup? The beginning of the battle has been won by knowing there are others who identify with Morgellons and that now it is recognized. That Mr.Mel knows of some doctors that are now fighting the battle with their patients,not criticizing or humiliating them. No one is perfect.I want to stick to the main thing'getting well from Morgellons' 1. The protocol: On this site is a defined beginning and is targeting things from research and past experience 2. Logos Wellness Protocol: Lets stay focused and help each other stay focused-if someone suggests something off line or outside of wise healthy understanding lets fall back on what we know is healthy for us. A. It is my understanding that my body should gain relief from anything done on the protocol for a short time by being supported by Logos nutritionals FULL WELLNESS PROTOCOL.I,like you believe I can not piece things together,a little of this a little of that.If you look at Burgstiners 'Wellness protocol' www.logosnutritional.com - you will see they have organized the 'Wellness Protocol' in one group of products. 3.Doctor support: We peel this cruddy stuff out of our lives,our very beings one layer at a time, I weep with you,it is so dang isolating sometimes. I understand when the outbreaks are bad when another layer peels away it can send us into great frustration. I think its at those times we can ask for help from Doctor support and maybe Mel or Maribeth or whomever can suggest someone. We are all different makeups,and all of us wonderful one of a kind creations made by God. There fore we are intricately different in how we heal. My prayer is for my brothers and sisters suffering from this ,and many of us are constantly researching and reading and will not give up .We are doing and looking better every day-sometimes inch by inch,but maybe when we get to that final inch....we will be done with this? I have been ordered to sit still so here I am writing- we are on this journey together. God Bless you Pamela Mae |
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