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Hello from Texas! Start from square one?


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Original 4/19/2014 Post

Susan
4/19/2014
9:26:55 PM


Hi, everyone!
I am glad to finally have someone to talk to who understands what I'm going through. I have been infected since July 2011, but only found out I had Morgellons in February. I thought you had to have the lesions if you had it. I have a wonderful integrative physician I became aware of in December last year. He has never had a case like mine, but consulted with a parasite expert he knew, which resulted in the diagnoses. He hasn't known where to go from there, except to start rebuilding my immune system. He put me on a basic, antioxidant, low insulin diet (Paleo, plus lots of dark red and purple veggies and fruits, and spelt for a grain). I had lost a scary amount of weight, so he was trying to ease me into the diet you are on, as we start to more aggressively address a yeast overgrowth. He has me taking D3, DHA, Selenium, Iodine and Magnesium for immune support, Thyroid and Heart palpitations/ trouble sleeping. I have been on this regimen since January and in February, started with the MMS. I took it a little over a month, 3 drops, 8 times a day. Where do I start with the protocol, since I'm doing what I'm doing? Will I still begin with the 1 drop a day MMS and work up or what? I also experimented with MMS in a body size garbage bag for 10 minutes at a time and seemed to have some decrease in symptoms, but only up to where the bag stopped. Has anyone else tried this?

Responses (Newest First)

Susan
9/7/2014
12:03:04 AM


Hey, guys!
I just had my first Doctor's appointment since March or April and thought I would give an update on my progress. He was excited about the improvements I've seen; localized and greatly reduced crawling and biting, improved gut symptoms, better sleeping, etc. He didn't like where my weight is still and found I still have a low thyroid and yeast on my tongue. He's put me on thyroid medication now and a series of Nystatin and Diflucan, to attempt to wipe out the yeast. If it doesn't work, he'll continue another series. He also wants to try a new therapy they have, an Ozone Sauna treatment. They're not even going to charge me for it because they want to see if it makes any difference in the M.
I've started back teaching again, so I have to get up at 5:15 everyday. I can't get to bed until after 10, so it's more difficult to get the rest I need. I take naps quite often after school, for 30 minutes or so.
I'm still eating as clean as possible. My only cheats (OK, Mel. I guess I do a little) are 2-3 small onion rings on Saturday's and an ocassional 1/2 of a Kind Dark Chocolate and Sea Salt bar (2 1/2 grams of sugar).

Blessings to everyone!
Susan


Susan
8/8/2014
10:28:52 AM


Hi, everybody!

I thought I should give an update on my progress at this point. I have just passed 90 days on the protocol and have seen a difference in my symptoms. I had 3 weeks where I nearly felt normal, had little to no biting, and minimal crawling. I had been washing my bedding every single day and have changed to every 3-4 days, spraying with Kleen Green in between. I am able to wear my hoodie for that long before sanitizing, as well. The protocol is working!
The last 4 days have been a reminder we still have a way to go, though. More biting, crawling and burning sensations, but mostly on my legs. As you've have said, it cycles and will just continue to get better. My next goal is to cut down to 1 bath a day. Bathing twice (in the mustard bath) was the only way I could continue working. In the morning, to make it through the work day and at night, to be able to sleep.
I go back to work on Monday, so getting the proper rest will be challenging. I get up @ 5 a.m. and don't get to bed until after 10. I have a 14-year-old son and can't just leave him unsupervised to go to bed earlier. My husband is on assignment out of state, since March, and won't be back until close to Thanksgiving. We're taking steps to try to free up finances, so maybe I can stop working full time in the next year. That would be helpful.
If you are new, stick to the protocol and diet and you will get better! Get as much stress out of your life as possible. Surround yourself with things that make you smile. Let anything unnecessary go for now and focus on getting well.

Pressing on,
Susan



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