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i am a little church

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Original 10/9/2016 Post

Ms. V.
10/9/2016
7:15:55 AM




When I spoke with Mel at the beginning of this journey, after he calmed most of my fears regarding this strange disease and helped me to look forward, he asked me to post something on the forum as someone newly afflicted but who was overcoming fear and embracing hope in order to give other newcomers hope and less to fear in kind. I wasn't sure what to write at first, so I decided to wait until after I had been on the protocol a few weeks and could offer a bit more substance. I promise this will be the only super lengthy post I make. Hopefully, someone who is experiencing fear will find it rewarding to read. So, bear with me folks...

I started a new thread under the heading, 'i am a little church' for a few reasons: because it is the first line of one of one of my favorite poems by e.e. cummings; because acquiring this affliction and admitting that my body was in a compromised state has humbled me; because I want to hold on to that humility in order to get well and perhaps to help a few others along the way if I am able; but also because a primary foundational concept of this site is sustaining hope and faith in spite of debilitating illness, in spite of stigma and in spite of a predominately ignorant medical community. The poem (which I've included at the end of this post) is one that never fails to remind me that we can be content in our faith whether we are on the road to recovery or well or whether we are sick and tired and just hoping to heal. I will continue using this thread from now on to post updates as I journey through the protocol and this affliction toward wellness.

So, first I should say - I am not living in excess fear anymore. That, in and of itself, is big news because I tend to have a lot of anxiety in general and this disease can take any anxiety one already has and spin it into a whirlpool of fear.

So, why am I no longer afraid? There are a few reasons. First, among them: I am so grateful to Mel for being the captain to us here and steering all of our little boats into calmer waters.

The second is related to an autobiographical footnote. When I was born I was a very tiny baby even though I was born at full term. I could not breastfeed and I screamed, cried, and vomited until I would not eat for the first 3 months of my life. I was failing to thrive and was very sick. Doctors diagnosed the condition as everything from severe colic to an underdeveloped digestive tract to severe allergies. My father was deployed in the Marine Corps and my mother was exhausted and at her wits end. We were living with my grandparents and great-grandmother while my father was away. One day my mother was trying to get me to take a bottle of formula but as usual I cried in pain and could not eat. My Irish great grandmother from Cork was sitting in the same room with my mother. Though she was very old and frail at the time, she told my mother, "Give me the baby." My mother passed me to her and in short order I miraculously stopped crying and was staring up at my great grandmother. In the story my family related to me time and time again when I was young, my great grandmother held me up in front of her face and stared back at me for a long moment. Then she nodded at me and passed me back to my mother, who was shocked that I'd stopped crying, and she said, "That baby will be just fine. She's wailin' to let you know she's alive and she doesn't intend to leave quietly. She's a survivor." Less than a month later my great grandmother passed away and within days after she died I started eating. Though I suffered a bit as a child from a weak immune system I thrived on from there.

Having some fear of the unknown or a terrible circumstance is healthy but allowing fear to take over inhibits our ability to thrive. I am fearful but I know that I have the will and the faith to survive.

I am also less fearful for two more reasons: gratitude and real progress.
I had started being remiss about actively practicing gratitude in my life. Stress, illness, fear and depression can make us very self-absorbed. We can forget to be actively thankful. Not only am I thankful every day for my husband (who is my best friend), my family, my dogs, my friends - I am thankful for so many wonderful things, including this community and all of you.

On to my evidence of real progress for the benefit of documenting my journey and for all those newcomers who are feeling anxious and fearful and in need of hope:

I won't recount again how I think I acquired the disease because at this point I feel that is less important than healing and rebuilding an immune system that will no longer host the disease or allow it to recur. My health was declining a lot over the past year but I think I caught the onset of this disease within 3-6 weeks of acquiring it. My original symptoms were severe rashes on my torso and forearm all the way to my elbow, lesions on scalp, inner thighs, arms and chest, intense itching, crawling sensations, black specks, white specks, fungal hairs of all sorts, muscle weakness, aching lymph nodes and joints and a sore throat and weakened voice. I have a history of a weakened immune system, asthma, scar tissue in lungs, recurrent severe sinus problems. I used to stay very healthy and keep most of these issues at bay but in recent years I let stress creep in and stopped getting enough sleep and treating my body properly. Over the past 2 years or so these issues kept me feeling under the weather about 2 weeks out of every month. Not a good quality of life.

I started the protocol on September 15th. I began 3 weeks before the protocol with my own regimen of herbs and supplements. I continue herbal remedies in conjunction with the protocol. My one month anniversary on the protocol coming up this week. Here is my progress:

Lesions: scalp lesions are completely healed and gone. Lesions on body are completely healed over 99% and are in the scar stage so I am now in the long process of trying to fade the scarring. I am having some issues with my hair that I will contact Mel about, but I am viewing it as part of the healing process. It is not catastrophic.

Rashes: I still get what is referred to here as 'pimpling' but only slightly. My worst incidence of this was at the full moon last month, but I had only been on the protocol for 1 or 2 days when this occurred. It gets better week by week and I can usually get this to go away within 24 hours with topical treatment. My one forearm and my upper torso where the rashes were worst are 95% healed completely. My skin is almost starting to look like my skin again.

Throat issues: 100% gone. No more sore throat. No more laryngitis.

Asthma and allergies: improved 90%

Aches and pains: 90% - 95% gone. Have a few issues with aching or weakness when I over tax myself and get too tired. Proper rest clears that issue right up.

Sensations: I have very little itching, biting, stinging or 'crawling' feelings most of the time. I would say this is conservatively 60%-75% better than previously. I have no intense itching anymore.

Purging: I still have specs and hairs but this, too, is about 70% better. I have minimal purging for about 3-4 day stretches and then will have a day where I purge a lot. Then back to minimal purging.

I do still get the mysterious 'scratches' on arms and legs but they are healing and fading within a couple of days of occurrence.

Sleep/relaxation/stress: I am still struggling a little with getting the right amount of sleep at night and completely eliminating stress, but I am making progress each week. I nap for 1.5 to 2 solid hours in the late afternoon to aid with this.

Diet: I won't recount my diet in this post because it is already so long. If anyone is interested, I am happy to share what is working for me, but I do believe that a successful eating plan is much like a snowflake - different for each of us based on myriad factors including our individual physiology. Suffice it to say: no refined sugar or carbohydrates, non-GMO, farm-to-table and/or organic foods, no preservatives or processed foods, no alcohol, minimal caffeine.

So there you have it: By my calculations, I am, on average, approximately 70%-75% over all in remission of the symptoms of the disease, perhaps even as high as 80%, but I am waiting until I get through the 2nd month before making that assessment.

The key is to continue the protocol and one's individual health and nutrition plan with consistency. For all the newcomers: I adhere to the protocol every day as well as my nutritional plan. I practice being actively grateful as much as possible. And even though I am typically shy and can't always attend the conferences, I visit the forum daily, read and research a bit each week and listen to the conference calls. All of it is helpful in due course - much like our bodies, our minds often just need time to digest and process things.

In closing, I want to say thank you, again, to Mel, Peter, Linn, Ruth, Adrianne, Deanna and anyone else who welcomed me and has made encouraging comments so far. I am so grateful for all of you and for your collective wisdom and contributions.

The physician, philosopher, theologian, Dr. Albert Schweitzer is credited with saying: 'The physician of the future will be oneself.'
I think all of us in this battle know the truth in that.
He also said: 'In everyone's life, at some time, our inner fire goes out. It is then burst into flame by an encounter with another human being. We should all be thankful for those people who rekindle the inner spirit."

i am a little church - by e.e. cummings

i am a little church(no great cathedral)
far from the splendor and squalor of hurrying cities
-i do not worry if briefer days grow briefest,
i am not sorry when sun and rain make april
my life is the life of the reaper and the sower;
my prayers are prayers of earth's own clumsily striving
(finding and losing and laughing and crying)children
whose any sadness or joy is my grief or my gladness
around me surges a miracle of unceasing
birth and glory and death and resurrection:
over my sleeping self float flaming symbols
of hope,and i wake to a perfect patience of mountains
i am a little church(far from the frantic
world with its rapture and anguish)at peace with nature
-i do not worry if longer nights grow longest;
i am not sorry when silence becomes singing
winter by spring,i lift my diminutive spire to
merciful Him Whose only now is forever:
standing erect in the deathless truth of His presence
(welcoming humbly His light and proudly His darkness)




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Responses (Newest First)

Kelly
12/10/2016
5:44:50 PM


Ms. V
So glad you are safe and the worst is over. Always grateful to read your information about essential oils. Thank you for your help!
Kelly


Linn
12/9/2016
1:50:07 AM


Dear Ms.V,

Welcome back!!
I'm so happy to hear you were safe. I'm sorry for that natural disaster hit your area. I'm glad you're back home. Everyone worried about you.

I want to thank you for your post about young living on your essential oil thread. That information came handy for me when one of my close friend who asked me about aromatherapy...

Thank you for your knowledge, and your generosity of sharing.
:)
Linn



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