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11/23/2013 9:30:57 PM | Thanks you all for the responses to my initial posts. It helps to know that we are in this together to learn from each other and also inspire others to beat this disease. Thanks to Mel for making this site happen and all he does for the foundation. It is the knowledge and HOPE that this site brings that has probably saved lives. Peter-I have been reading all of your posts for quite a while. You seem to have a unique insight on this disease. I have started to incorporate the coconut oil into my diet daily and am now for the first time using coconut oil rubs as an extraction method on the skin. I have been getting a lot of black specs out, but who knows how much more of it is way under the epidermis that is active. If these are living "spores", then getting them out manually can only help. Going back to your comment on a suppressed immune response, I do believe that my immune system broke down and was unable to control the remaining organisms in check as it had for the previous 2 years. Besides the exposure to the mold, I had also begun testosterone replacement therapy only a month prior to getting sick. From what I have read, higher testosterone suppresses the immune system in all vertebrates. My low T that I had previously was probably from fighting this disease for 7 years, and my body may have set it there in order to maximize my immunity. Perhaps, I upset the balance and having mold exposure just allowed the Morgellons to come back and spread extremely quickly. I remember it took about 3 years for it to fully spread the first time around. It took about a week or two this time, and it is more severe. The only explanation I can come up with is that my immune system just got out of aligment. I had bloodwork done before I discovered I was being exposed to mold, and my neutrophils were above the reference range and my lymph were at the bottom of the range...not good for keeping invaders in check. Linda-It does seem that some type of fungus is involved here. From my own experiences, I know that if I drink any alcohol my symptoms get much worse a few hours later. Fungi can utilize alcohol quite readily, so this may be what I am experiencing. I know I shouldn't drink alcohol, and have now quit because I have proof of how bad it is for me. The second reason why I believe this is primarily fungal is the stinging sensation. I used to work with proteolytic enzymes (bromelain) at work and if it got on the skin, it would sting. Fungi also can make proteolytic enzymes, and the many stings I feel, especially late at night, feel just like when I would get the bromelain on my skin at work. The third reason I believe this is pimarily fungal is the flourescense of our skin under UV light. Fungi do that. The fourth reason is the black specs and fibers look like something fungal. So yeah, keeping sugar out of the diet is probably important, especially if candida is part of the Morgellons co-infection. However, I have also read much about how the majority of Morgellons patients test positive for lyme and the F1000 paper where they found spirochetes in all 4 of the patients in the study. Hence, we cannot rule out spirochetes as well as co-infections. John-Yes, I did have a western blot for borellia burgdefori which was positive according to Igenex lab standards, but negative from CDC standards. So really, I don't know if I have lyme or not as well as Morgellons. I was not tested for bartonella and the other typical lyme co-infections. I can say, though, that my Morgellons symptoms began a couple months following a bad bug bite in my apartment in 2006. So, who knows what all got into my body from that, which has dramatically affected my life. I look forward to trying the Sleep Advance. If anything, I hope it gets me to use less Xanax and also sleep at night through the activity from Morgellons. |
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