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Intimacy


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Amber
5/6/2015
9:03:14 AM


Hello Everyone,

Let's talk about intimacy. This can be an uncomfortable subject that I'm sure many want to know about, but may be too embarrassed to ask, so I thought I would tell you my experience and take on it.

When I first became sick, I was afraid to touch anyone, let alone be intimate, so I refrained. This can definitely take its toll on relationships. I honestly felt at the time and still do that it was the best decision because nobody got as sick as I did.

It was around the end of May beginning of June at onset, and as most of you know my son was just ending 3.5 long years of cancer treatment. At the time my husband and were only engaged and were planning on getting married the following summer. I wanted to wait until my son's treatment ended as I felt overwhelmed just with holding down a job and being fully present in my son's care, not to mention all the other responsibilities of every day life and having two other children. And if I'm being completely honest, I was a little scared of getting married because I already had a failed marriage with the father of my children. The children's father and I were married very very young and started a family right away.

I knew that I wanted to marry my now husband. The man that stood by my side through everything, even though he could have easily ran the other way. He was kind, patient, smart and devastatingly handsome! He had became a father to my children when theirs had chosen to be absent in their lives, and was very good at it! Still, I wanted to have the perfect scenario, since I didn't have it the first time around.
But, the best laid plans of mice and men often go awry. As we know all too well.

As he and I stood there in tears not knowing what or why this was happening to us, we dropped to our knees to pray and the Lord gave us clarity, as he often does. He showed us that what he wanted for us was marriage. He had brought us together for a reason and he wanted us to make this commitment. A commitment that couldn't be made by a fancy wedding or our perfect timing, but his. So it was decided that we wouldn't be intimate again until we said I do. We had already stopped at that point because of my fears of getting him as sick as I was. By September we were married. I was so very sick that I barely made it to the courthouse. but, looking back on it, it was the most beautiful union I could have asked for. Two people who truly love each other with our kids there to witness it.

We started to become intimate again as I started to feel better. By this time he was completely well. It was decided that we would use protection. Not only to protect him from getting sick again, but, to prevent pregnancy.

I'm not saying that my experience will be yours. I'm saying that intimacy is a very important part of a relationship, and even though things seem grim when your very ill with this, when your well enough again, you will most definitely want to have that part of your life back. I think if you take precautions it can be and it should be.

Love to you all!
Amber


Amber
7/3/2015
1:42:24 PM


Hello ladies! Let me start off by saying thank you for responding to my post.

Deborah, you are always so sweet and kind! I am amazed at what the Lord can create in a person's life when we turn it all over to him. You and I have spoke many times about our need to feel like we can control a situation or fix something we see needs fixing. I believe this is our gift from God to serve others and do it well. It can also be a burden when we think we can do it alone.

I admire you so much because I think you have already surrendered and understand that we must work together with God see any lasting results. I'm still in the process of learning to let go on all levels. Boy am I thankful for his grace and mercy that I am only human after all. Haha!

You have been a true mentor for me. Your advice and guidance has always been rock solid. Thank you for being a part of this journey with us. I know the Lord will continue to bless you and your family! Love you!

Lara, thank you for your well wishes. I'm so glad my post had meaning for you and your partner. We live in a world where we are constantly told the things we need and how we should do them according to everyone else. It's a very difficult and brave thing to not conform to the ways of the world. However you two decide to get married, I wish you a beautiful and healthy life together!

Mary, I'm doing good! Thank you so much for your kind words. I hope you are seeing great results with the protocol. I'm not sure how far along you are in it. I tried to convey my experience through my post and let others make up their mind as to what they feel comfortable with. I felt it a good topic to bring up since it had never really talked about on the forum. We are all so different, it seems even symptoms vary from person to person.

You are so right about what the world tells us! I think there are many ways to express love and be intimate without sex. For us only being together about 5 years and the fact that we are still pretty young, my husband is actually almost 5 years younger than I am, brought up some real issues and struggle with physical intimacy or lack thereof.

The Hebrew word echad in the bible means when two become one. I believe the Lord intended for us to be sexually intimate with our husbands and wives. I believe it is most definitely good for mind and body and a natural and healthy part of a marriage. With that said this disease or syndrome or whatever M is takes a lot of normal everyday things away from us. Like I said, I had a huge fear of even touching my children even though they had symptoms. I was equally fearful of touching my husband and terrified of being intimate with him.

Only as I started to really feel healthy from M did I feel comfortable doing these things again. He also knew the risk of getting sick again and was willing to take that risk. I also freely love on my children and others and started doing so around a year in on the protocol. I come from an extremely affectionate Italian family, so not feeling like I could do these things was one of the most disheartening parts for me. thankfully I've never gave this to anyone over the last couple of years. My children haven't spread it to any of their friends and my husband hasn't spread it to any of his coworkers. Yet, all 5 of us have shown symptoms at one point or another. I think we must have been exposed to it at the same time and I don't think it was from a human.

I think it has a lot to do with overall health and immunity. Everyone has to make these very tough decisions based on what they feel is best for them. Taking any and all things into consideration and be willing to deal with whatever the outcome may be. All I can say is once you start to feel really good again I'm sure you will want to resume more of the things that were once normal for you. With each day some of the troubling symptoms just become a memory until the whole thing just becomes a memory, just another hurdle of life.

I hope and pray that you are seeing results and you too can regain the parts of your life that you've lost to this disease. Many blessings for you and your hubby, Mary.

Love and blessings to you ladies!!


Mary
6/28/2015
3:15:02 AM


Hi Amber, how are you? Well, your post has caused me weeks of thought. I really appreciate you sharing your wonderful new beginning with your husband, that was beautiful! Wow! But I'm not sure when it would be safe to be intimate with one's spouse if they never had MD. I don't know if condoms would keep the condition from passing to the other because while it stops transmission of it via semen or vaginal secretions, intimacy involves prolonged physical contact of the bodies. I think that this condition can be passed that way and especially when the pours are more open due to perspiring. I'm sorry to be less optimistic and romantic here, but I'm concerned about this angle. Maybe others will share their experience about being intimate with someone who doesn't have MD. I don't think I will personally take that risk until I'm 100% cured. I don't want to give this to my hubby no matter what for then we'd all be at risk all over again. We haven't shared a bed or hugged for any significant amount of time in a year now and he still is MD free.

Also I think it important to know that intimacy isnt that important in the scheme of a loving relationship. Love is expressed in many other ways and we must remember that sexual intimacy isn't a necessity. It is a wonderful thing for many couples, But not all couples feel the need for it and still love each other deeply.
The world often says that a couple is dysfunctional if they aren't sexually active, but that is being disproven. I just wanted to share these thoughts that your post triggered in me. I think for 2 people with MD it is not much of a risk as it is of only one has it.

My deepest gratitude for your bringing up this topic and I hope that from it more opinions and experiences will be shared and stimulate some productive discussions.
God Bless you Amber!
Mary



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