Share on Facebook
Translate This Site

Enter Your Login and Password To See The Whole Website:

Create a login for $10/month. 100% of the funds go to making this community possible.

Click here if you forgot your login or password.

Loss & a plea for comfort


Return To Topics List

Lara
5/7/2015
3:03:39 AM


Hello Everyone

This morning I've reached one of my lowest points since realising I have Morgellons. I really need some words of comfort. I'll keep this post short, as I don't want to bring anyone down.

Everyone knows that Morgellons brings losses which sometimes feel never-ending. In the last year or more, I've found out that I'll never be able to have children (perhaps due to complications from this disease). I've lost family, most of my friends, my home (have to move in 8 weeks' time, which I'm terrified of), my work, all our finances. I've also developed extreme Body Dysmorphic Disorder, triggered partly, I think, by the stress of my illness. I'm unable to leave the house (agoraphobia), look in the mirror, groom myself, or wash properly (which makes treating this disease even more challenging). These last issues bring such a sense of shame. I've gone from having been a model in my younger years, then later a journalist and activist, to someone I no longer recognise at all.

I don't think my relationship is going to survive all this. The final blow came this morning: we have to sell the last possessions we have left that are of any value - our wedding rings - to put food on the table and fund the impending move. I am heartbroken.

I know my situation is not unique, but right now it feels as though I'm drowning in loss, grief and despair. I would treasure any words of hope.

Love to all
Lara


Lara
5/16/2015
2:31:35 PM


Dear Jen

Thank you kindly for your uplifting words today. As the fog is blowing in over the dunes here (such a blessing just to be able to appreciate this), I've been taking your message to heart...just breathing deeply, renewing my connection to a few of my favourite things, and feeling more at peace. This site and people like you already have me feeling so much more hopeful.

Thank you again, Jen, and God bless. Wishing you a speedy recovery!

Love
Lara


Jen
5/15/2015
5:26:53 AM


Aloha Lara,

I am only on my 3rd month of the protocol and remember VERY vividly being at the beginning not long ago. I can only repeat what everyone else has and encourage you with the guarantee that you WILL feel better. I am praying for you to find peace amidst the storm. What was/is helpful for me is to "get out" literally, spend time outdoors. Even if you only feel well enough to walk, do it. Find somewhere beautiful if you can. Stretch, breathe deeply - just BE. You are alive, exercise gratitude, even if just for that. I found the more I stayed inside the more I focused on the not so pleasant. Think HAPPY thoughts, you don't have to feel like it - you know the old saying "fake it until you make it." There is sooo much proof here that you WILL feel better and you WILL feel happiness again, even if you don't now, hold on to that and try your best to think happy thoughts. Hugs from Hawaii!!!



There are 10 posts in this thread. Login in the top right of this page to read them all and join the discussion. 100% of the funds go to making this community possible. If you don't have a login, please register and join us.