Mr Common Sense
2/22/2010
1:41:43 PM | Sorry everyone, when I read Deb's post it struck a nerve, not that she said or did anything the slightest bit wrong. But you have to remember, I think there are far more people who have Morgellons that are WITHOUT lesions that those with lesions. There is very little evidence I can show a doctor, in fact basically none in my case. There is no way I am going to be prescribed meds, nada, none. I look like I'm in perfect health. And through natural things I've managed to do pretty well, but have yet to kill the monster.
I was a little down last night, when I read her post I'm like great, you have a doctor that will prescribe meds, but what folks don't understand is 95% cannot and will not ever get meds for this, odering from oversea's places is dangerous, you're not even sure the drugs are real, and self medicating with bactrim and other things isn't recommended. So, I was happy for Deb yet somewhat angry and wallowing in self pity I guess, I should have kept my mouth shut I guess. I had a terrible weekend, absolutely paralyzed with Anxiety. I'm doing the MSM for at least 3 months straight before I do the testing.
I'm so tired of Morgellons, of hearing about it, writing about it, suffering from it, and seeing the damage it unleashes. We go to Florida for spring break with the kids in about 6 weeks or so, that's a long way off, sometimes, I just wish I could walk away from it all.
I didn't mean to cause a stir, but the reality is that you should really count your blessings Deb, becasue honestly, the care you received is beyond the reach of almost everybody.
I have a letter in my inbox of a lady that went to 20 some odd doctors, it's a facinating write up and hope I get to post it. She was never helped.
I'm sorry Deb, I'm happy for you but at the same time angered greatly by the dispair of knowing I'm on my own. Don't worry, I'm a tough cookie, I'll make it.
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