Shari
4/18/2015
9:18:28 PM | Hey Jeremy! I just wanted to say thank you so much to both of you below for posting what you did about me. It was heartwarming to read from you and Nicole! I feel lucky for our little community.
I appreciate YOUR strength!
I feel I am getting there with Gods gracious help! I too am a "red dots, brown dots" person. I have no idea what these are/is. It kinda freaks me out because there are so many! My skin has drastically changed with this illness tough I have been using the coconut oil on it from the very beginning and now.
I wonder how can you tell these wiry hairs? Send me a pic on whatsapp!? I would like to see one and compare my images.
Glad you are settling into slow and steady so early! You are making great strides and it's good to see your discernment from recognizing good journalism and tripe for tabloids writing.
Keep in mind though so very wise scientific minds also do not believe this illness is real. It's thier perogative and right, however, as this very much affects us and we don't have the luxury of Drs who will help - we still need to do what we need to do to try to continue on the path of healing - either way.
I always liken this to having something like AIDS (or another "newer" illness) - but instead of in the 90s, you had caught it in the 30s. There was no AIDS in the Merck Manual that far back. Who would ever have believed your condition? Medical journals had not yet even touched on that as an illness and I don't think it was even considered until years later.
We are our own guinea pigs right now.. :( We want to try to research as much as possible to become our own healthcare practitioners if there is no one there for us.
It's simply the will to live that drives us to learning. We just want to live. :) |
