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1/18/2013 1:16:56 PM | Marie: I apologize in advance for the long post. Your story impacted me in an unusual way and I had to respond and add to what Theresa has already expressed so well. I hope my story might encourage you. I can remember faking a hopeful attitude for my daughter in the early months.I had the same sense of hopelessness and the same questions you have. I also have one young daughter, a wonderful husband and had most of the symptoms on Mel's list. I can remember thinking I would rather have cancer. You perfectly described my emotions and thoughts last July as I came to realize that both my seven year old daughter and I had this disease. I had to keep fighting for her life even if not for my own. I thank God every single day that He did not let me give up and that he lead me to this protocol and these warriors. Unlike Teresa, my daughter and I are still relatively new to the fight and in only the fifth month of the protocol. Hearing her story, you might be tempted to look at those who are doing better after a year or 18 months and think that you simply cannot make it that long or that they are the lucky exceptions to the rule. I had those thoughts. But the truth is that many and even most on this protocol are stabilized and rapidly improving after only two to three months. Most of us can measure new improvements each month. But the road to full recovery is still a very long one and we have to travel it with patience. The good news is improvement in the early months comes quickly. My daughter and I were nearly symptom free at only three months on the protocol. At five months we still have a long road ahead of us but life has not only become livable, it has returned to a level of normalcy. We look forward to the future and what God has planned for us. We are so grateful that my husband has remained Morgellons free as so many family members do. Our symptoms are manageable if somewhat inconvenient and unpleasant. Currently, we still experience some scalp purging, once in a while some itching, some bruising, and some toxic dye-off symptoms like headaches and joint pain pretty regularly. But we are again able to go about our lives and even have careful and cautious contact with family and friends. My daughter can be a normal seven year-old and play and run and ride her bike. Life is worth living again and in fact is better than it was before Morgellons. How can it be BETTER than before? Because now we are focused on what is most important in life and what holds eternal value. We thought we already were but we had no idea how much we still needed to grow. We are closer than ever to each other and to the Lord. We are more grateful for what we have and the smallest blessings bring huge happiness. We are more compassionate. We are healthier with Morgellons at this point than before we had it. You can read many posts here of warriors who will tell you the same story. I personally feel ten years younger than I did a year ago. I had a friend who I hadn't seen in two years stop me in the store the other day and say 'What happened to you? You look great!' . Inwardly, I thought. . . 'You'd never believe me if I told you'. I heard someone once say that there are no silver linings with Morgellons. I have to respectfully disagree. There are. The future looks very bright from where I am standing. Marie, it will be for you too if you choose to commit with courage to the road ahead. And it WILL take lots of courage and there will be tough days. But you won't lack for support, love and prayer coverage while you are here. I personally will commit to praying for you as others did for me. There are so many people here who will help you along the way. Please don't give up. You not only will survive this, you will thrive in ways you never dreamed. God bless you, comfort you and give you courage, Deborah B |
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