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New here, could use some emotional support


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Ruth
5/27/2016
11:58:13 AM
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Hello MB,

Welcome to the website and to all that there is to help you here!

Like you I never went to a doctor for help with this as after reading up about it I'm not sure yet that they have anything to help us. The protocol here however is helping people to recover so I would recommend that you read as much as you can from the forum and all the articles.

I found that getting started on the diet as suggested here was a big step forward. It didn't cost anything financially but was a big decision to make as I knew I was committing myself to a whole new way of eating. I'm so glad that I did though as I feel so much better for it and it has given me such a great education on healthy eating that I don't think I will ever shift from. There are articles here to explain in fully but basically it means no grains or sugar and low carbohydrate vegetables and alkalising diet.

Following the protocol means following all parts of it, not just some of them. It took me a while to get everything into place but its great to have a plan to follow and it gives hope knowing that others have found success through it.

In order to afford the supplements I have had to give up do some things that I liked doing and cut down spending on other things. I've asked for money not to be spent on me for birthdays/Christmas so that I can use that money on getting better. I've not always been able to get everything all at once but at least to start getting the supplements bit by bit is a great step forward. Maybe you could get started in that way, building things together bit by bit.

I read here a lot that if we start getting the disease under check in our bodies that the environment cleans up and I've found that to be true, although I still clean, initially with vinegar, though now Kleen Green. Mel cleaned with MMS.

I use Borax in the laundry and Dettol Cleanse.

I'm sorry that you don't have support at home. Neither do I and that's why I've found this website such a big help and support.

This is a place full of help and hope. Keep letting us know how you are getting on.

God bless,

Ruth


MB
5/26/2016
1:21:04 AM


Btw, I'm situated in Western Europe (so feel free to post in this thread if you're from the area).

I don't know if there's anyone situated in Belgium, France, the Netherlands or Germany here?

Or perhaps Denmark, Sweden or Norway?

The posts I've read so far were from people situated in the UK, Canada or the US.

I would love to use Skype to get in touch with others :).



MB
5/27/2016
11:58:13 AM


Hello all

I've perused the website every now and then and had several peeks at Mel's protocol and fellow sufferers struggles.

I went thru the whole Morgellons/Lyme thing (I've been fighting this crap for about 3 years now) I was able to get Morg under control, but I'm still dealing with Lyme (especially neuro-lyme, causing severe ADD-like symptoms).

At first, I didn't know I had Lyme, I only had typical Morg symptoms (itching, crawling, biting, pin-prick sensations + weird filaments of different lengths & colours, fuzzballs, etc., ... ).

Anyhow, when I was younger my cognitive brainstyle was always a bit "different", but functional for the most part (a bit ADD-like).

Now I just feel dysfunctional all around (neurologically).

I've been taking MMS (it's making me nauseous though). I've noticed an increase in symptoms (itching, spirochete in environment; i.e. my bedroom - it's where I spend most of my time).

I'm so tired with this because people cough, sneeze and itch around me and I don't want this, and I'm having a really hard time blocking this (both emotionally & mentally).

Everywhere I go, there's almost always at least one person itching or sneezing, or whatever.

It just gets to me. Where I shop locally I see people who are possibly affected with this crap as well (I can tell by what their skin looks like).

And I know some of the shop clerks have been complaining about itchiness.

Where I live it's hard to see a LLMD. Heck, I don't even have a GP (when I was younger, my parents would just call the "family doc", but once I got older, I'd usually look after my health myself).

I don't see myself contacting him, because my family ditched him, for misdiagnosis (or something of the like), and he's one of those presumptious docs who doesn't like being contradicted, or has difficulty listening (let alone taking patients seriously).

Even if I were to contact another doctor, I wouldn't know what to say, and would be afraid of not being taken seriously (Lyme being so controversial).

Plus, I'm on benefits, so I'm quite tight money-wise.

I have been using supplements (i.e. manually-filled caps = turmeric, black cumin, camu camu, guarana/ginkgo, etc., ... ).

I've done this before, and it does help keeping the neuro-symptoms in check, but the problem is I have to take these religiously and in great amounts, or the symptoms return immediately.

I have also been to a psychiatrist, who's prescribed amfetamines, but to be honest, I'd rather not take those, for fear of my mental & emotional health going out of wack (I am naturally sensitive to stimulants, i.e. coffee, sugar).

So I consciously don't consume the above, and don't drink or smoke either. I've worked so hard to get to the point where I am now (emotionally), and funny enough - I'm stronger than ever in this regard, but my conscience is taking big hits.

To top it all, I'm allergic to penicillin/amoxicillin/augmentin, so any broad-spectrum antibiotic could do me in even more (I swell and itch when I take these, so they're a big no-no for me).

So I'm stuck. I'm looking for ways to reduce the spirochete-load (environmentally).

Does anyone have any ideas? I've recently started using MMS in the laundry again (and use an organic detergent + vinegar).

Oh btw, I've used far infrared therapy before which did WONDERS for me. I used to suffer from abnormally low body temperature and FIR-therapy saved my life, neutralized Morg & Lyme).

I had a suit, but it broke down last year and I haven't been able to replace it thus far (it has helped keeping Lyme in check before).

And would love to try this route again, but for now I simply cannot afford it.

NB I live with my parents who are quite elusive and rather abusive and simply refuse to see & accept reality for what it is, so I'm pretty much alone in this

Reinfection is a biatch!

Thanks in advance!