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11/13/2009 2:36:24 PM | Dear Rick,,HEY HI! ! There you are ! I thought you floated down a river or something? I remember back at the beginning when I used to talk with you and Mel. Because you are a progressive (and what I consider highly intelligent man) I am sure you are blown away at all we have learned while dealing with this disease ,and all because of mels encouragement to jump into other peoples morgellons journeys. You origionally encouraged him to stand,and he did-we are so grateful for that. Thank you,and you know mel man- - -bonded. I so appreciate you as a humanitarian who leapt in (Barfooted N all) and not only stood beside your friend but also crawled over the wall to help. Many of us have had friends just walk away. Thanks for doing that for mel. I personally(for what its worth ) do not find it odd that main stream medicine does not have an interest. There is so much weirdness about all this on the net that the medical profession often looks at it as sensationalism and hype. I find that mainstream medicine is driven by insurance companies 90% of the time. Anything outside the text book takes too much research and time out of daily income. I believe that the Media would probably hype it up as far as everyone would be willing to be exploited,that media is not controllable unless done by ones self. Most sufferers are humiliated and do not even use their own names. Many fear they could be fired from an already hard to come by job. You know in your own life that the journey is more important than an instant fix. Meaning- I am not sure labeling this with one patent is the key. We have learned many things far more encompassing than 1 pill. We have learned the multifaceted approach needed for this disease. Between us, the things we have learned, and have put into a summation of the whole can be life changing. What I believe we now need to do is our homework in documenting results,patiently. I believe we need to combine our process and results (kinda like the vulcan mind melt) we can write them up and then maybe have mel present in an audio visual with written easily understood defined, step by step process. We need it simple,we don't need to depend on what media is doing but to be faithful to our own part. I believe we need to be diligent where the light has gone on in research to do our homework. I believe we need to use our findings in efforts of educating the medical profession,and those who are interested. When needed moving for ward, even if it is inch by inch finding intelligent resolutions to the road blocks. On the most part,maybe half of my day is spent in speaking with practitioners,professionals,and morgellons sufferers explaining and educating. The first real step in education was coming here.After I had been out on the net and seen all the ways people were being exploited and the horror things,this site was a breath of fresh air. Sorry so wordy here,I am truly glad you are back ,mel has the deepest respect for you and I see your heart as well. Please don't give up on us hey Rick man? God Bless Pamela Mae |
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