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Lady T 5/27/2016 10:19:45 PM | Derek - it was so nice to see you comment - and to hear you ran a marathon answered a question I pondered regarding MD - like I had always wondered if massive exercise (as in marathon training) would help cure this - and obviously not! Good time on your run and congrats again! And please keep us posted on your healing journey - Peace ;) |
MB 5/26/2016 12:58:04 AM | Hi Derek I love this part: "we know you're there, but we will keep doing what we do in spite of you" This is the mindset I used to have, and this is the mindset I should readopt. Thank you for your inspiring message :). (I'm new here btw) |
Derek 5/17/2016 9:43:15 AM edit upload | I haven't been here in quite a while and today decided to check out the forum to see what others are saying, especially now that we are starting to pulse MMS. I was quite surprised and happy to see somebody read my post from back in 2013, when I was very very sick...now, just sick (lol). I had to go back and read what I wrote since I forgot and was consumed by disease back then. I still am sick, but not quite as much, and it has been a battle since the disease became systemic for me. However, I did what my original post's main point was, and have continued to live my life in spite of the disease. There have been some silver linings in all of the suffering period. For example, I moved back home about 2 years ago and got to spend some extra time with my mother and siblings that I would not have if I never got sick. The disease inspired me to get my Six Sigma Black Belt and complete my first ever full marathon last summer. Yes, 5 hours and 18 minutes exactly with full blown systemic infection with twitching muscles and all. Maybe not good for recovery, but when I completed it, I was genuinely happy for the first time since getting sick again. I moved to Vegas last fall and have found ways to generate income without a job. I keep pushing forward even though I feel like death some days when I wake up. The key point is the disease has not killed me or debilitated me any worse than 3 years ago. It appears self-limiting and you can be assured that you will not lose your entire life from this disease. You may feel like garbage a lot, but you will have your better days and you will get better over time. But it does take longer if your infection load is higher. Hang in there everyone. Thanks again to everyone who posts and especially Mel for keeping us on track and giving us hope! Derek |
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