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Original 4/12/2015 Post | |
Nicole 4/12/2015 1:22:45 PM | By us I mean myself and my 9 yr old son Tyler. Our journey in health has not been easy one and there's no way we would be where we are without help from the Foundation! I've had Morgellons since the summer of 2010, my son followed behind me and was infected and started showing symptoms in 201. He was 4 going on 5, almost in kindergarten. I had just left my ex husband after years of being in a very difficult and stressful relationship. I moved in with my grandmother in hopes of starting a new life and getting on my feet. I was going through a divorce and an ugly child custody battle, because he was so mad I left him! It was so stressful... when all of a sudden, I was hit with morgellons! I was hit and I was hit hard!!! I went from stressed out, but seemingly healthy to extremely sick. My neck started swelling with fluid, I was having high fevers, ear and jaw pain, swollen lymph nodes, and rashes. I began purging and purging heavily!!! I had fibers of all colors, even glitter, shiney metalic glitter!! First I went to the ER begging the Drs to help me. Something bad was happening and I was having a hard time explaining this calmly or rationally. In the ER they asked me things like had I been out of the country, and took blood tests. Everything came back normal!! They had 3 young Drs come in and talk to me and try to explain to me I was fine. At one point they were laughing amongst themselves as I lay in pain, begging them to continue searching for answers! I was scared for my son and for others because I didn't want anyone else to get it! My fear of my son getting this caused me to get even louder!!! I told them they were arrogant, that they didn't know whatever this was was cutting me from the inside out as I layed in that hospital bed! I insisted they figure it out for mine and my families sake!!! I left the hospital even more scared!!! My mom lives in another state and she flew in to help me. I had been on an ADHD medication for a year prior to getting Morgellons. My mother read the side effects, hallucinations being one of them. She took my medication, and accused the Dr of prescribing me medication that was making me hallucinate!! The Dr told her I had been on it for some time and it was very dangerous to take me off of it, but she did anyway!!! So not only was I extremely sick from Morgellons, but now I was coming off of my prescribed medication all at once! I thought I was dying!!! I was put in a mental institution and they started forcing me to take really strong medications for hallucinations. A medication called Halidol literally paralyzed me. It caused such a severe allergic reaction that I literally couldn't move. I was frozen! They realized this after the second time giving this to me and administered Benadryl to counteract the reaction. All the while I was extremely sick, and getting worse. My scalp had sores now, and I had lesions on my forearms. They tried to say it was excema, rash, even self inflicted! The doctor said if I didn't take my meds and stay at the hospital he would get a court order. My mom was telling me if I didn't stop what I was doing and take my meds I was going to lose my son!!!! The thought of my son getting this and them not realizing, or knowing what to do scared me. If they could do this to me what would they do to him? In all my fears, things just kept getting worse!!! I decided the only way I was going to get out of that place was to turn all of my fear into FAITH, all of my pain into POWER!!! I knew God was there. I prayed deeply, deeper than I ever have!!! I just wanted to get out and treat myself and protect my son! I pretended like my meds were working, that I was embarrassed for having such a melt down, that my divorse just really got to me. I told the doctor with every visit I was feeling much better, even though I knew the meds given to me were poison! Of course when I got out Morgellons continued. I tried to treat myself privately but my mom and grandma were watching me. Anything I would try to do for myself, they would intervene! If I had rubbing alcohol or peroxide they would hide it! They knew I hadn't given up believing something was wrong and were deeply concerned for my mental well being and for my son! My grandmother at one point jumped in fear of me thinking I could become violent.. It was one of the saddest moments of my life! They would watch me and make comments, trying to distance me from my son, afraid I might do something. They were acting like they were protecting my own son from me!!! I began buying probiotics and sneaking them to him. Everything I would try to do to help prevent it happening to him, I had to hide from them! I would never harm my son .. I love him more than life itself!!!! At one point my youngest sister, who I was always extremely close to literally attacked me because I wouldn't stop cleaning, I was trying to keep up with getting up all the fuzz balls and fibers, she started screaming in front of my son, even that they were going to end up taking him away from me, and maybe they should because I was crazy, not sick! I cried to her telling her that I was trying to prevent them from getting it because I loved them so much and she started pushing me, attacking me, my mom had to pull her off of me!! I know she just didn't understand that I was sick as she was truly afraid of me losing my son, but I was more concerned about our lives!! The people I love believed medical professionals over me, so much so that I felt completely betrayed by them! They refused to look at the physical evidence all over my body... and believed the doctors, that it was self created! Still yet I love them and have forgiven them.. I worked harder at hiding my treatment! I had no real recourse aside from food stamps and child support, but with that I would buy us probiotics. A year after myself getting this, my son Tyler 4 at the time also started showing symptoms! He was purging fibers in droves!!! They were on his back, his arms, and his behind so thickly.. When I would give him a shower and dry him tons of this stuff was coming out!!! I was in a nightmare!! They wouldn't believe me and now that he was sick... I knew they wouldn't believe it either!!! For about a year I treated him the best I could with probiotics, started eating better foods, but it still wasn't getting too much better!! I started investigating on the internet and found Mel's site!!!! I couldn't believe what I was reading.... There were others!!!!!!! I was so excited to tell my family so that they could finally help me, help us!!! I couldn't believe their response .. They still refused to believe me! They said that there were more crazy people out there and that doctors are not believing it is real!! My heart was broken again! Was I really that all alone??? I was at the point where hope was fading!! My son, my beautiful son, kept me hanging on though... I knew if I kept in faith, If I prayed long enough and loud enough, if I screamed at the heavens, eventually I would be heard!! God could not refuse the desperate pleas of mothers!! I knew if God was for me no one .. not my mother, not my sisters, not my ex husband, no one could be against me!!! I believed in Gods good with all of my heart!!! I emailed Mel, telling him my story, my finances or lack there of, and that the vitamins I was giving my son and I were not helping enough.. My son was getting worse and worse! Even having to be held back in first grade. Soon after I talked to Mel and within a few days again he called me back to tell me that the foundation would be sending me a protocol for myself and a partial protocol for my son!!!!!!!!! It was the most life changing phone call of my life!!!!! I had HOPE!!!!! I cried, I jumped up and down... I went from no energy to literally jumping for joy!!!!!! It was the best news of my life .. I could help my son get well!!!! I thanked Mel - my angel, the supporters of the foundation and God!! Even though I didnt have my family .. I had you!!! With the support of the He Cures All Foundation, I was able to have proper medications to treat him with, so I was relieved!! The protocol has changed our lives, so helpful in helping us progress in our healing! We still have minimal symptoms, some fungal hairs, no biting or pinching sensations though! I was able to go back to school last year and get a license in Cosmetology, which was not an easy feat by any means, but I did it!! It was always a dream of mine, you made come true!! My son is now in second grade and has an A,B average. He is doing so well!!! I couldn't have made it through school and through these last few years without the Foundation support. I now have a career and a way to support my son and eventually live in our own home. It has truly been my hope, and my son's too! Now that Tyler is older and can understand, he knows what we have been through. He is my hero, 9 yrs old but so strong and wise! We still have a little ways to go but we wouldn't have made it this far without you!!! Your donations save lives!! I was losing hope. I was kicked down so low I could barely get up.. Then my Angels here reached out and saved our lives!!! I am forever in your gratitude!! Love always, Nicole& Tyler |
Responses (Newest First) | |
Jimmy 4/19/2015 8:44:29 PM | Loved your post Nicole! You're amazing :-) Jimmy xxxx |
Nicole 4/15/2015 11:30:48 PM | Thank you so much Jeremy and Debrobah! I means the world to me to have the support of fellow warriors!! Before I found Mel's site , I had times where I began questioning my own sanity . This disease is difficult enough without people telling you your crazy!! This is truly a great community and I'm so thankful to be connected to amazing warriors like you guys!! Were not alone when we have each other!! |
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