|I have posted a couple of times and now would love to communicate with more of you.|
First of all . . THANK YOU MEL AND PETER
We are so lucky to have this site started by Mel. He truly believes we are ALL going to get well, and I am hanging on to that belief! I started having symptoms in August, am on the Logos supplements part of the protocol two weeks now, and will start the MMS after next week.
A few things I would like to share today . . .
Gratitude is necessary to keep going through this disease and I am so grateful for the following:
During hurricane Sandy, despite horrible winds and rain, I never lost power!
I am so grateful that my family believes me 100% and has been as supportive as they can.
I have have two elderly parents with health issues, a sister who is severely disabled and I have not been able to help them since I got sick, BUT I talk with them all the time and let them know that this situation is only temporary.
I have a 2 1/2 year old grand daughter that I haven't been able to see BUT we can Skype!
My doctor doesn't quite believe me, BUT she did all the tests (blood work, heavy metals, Metabolic series) I requested so I can have a baseline report and she will monitor me as needed.
I'm not sure if I can keep up work three days/week BUT I have been able to do it so far.
I have wonderful friends who don't really understand what I am going through BUT check up on me all the time.
I am very frightened a lot of the time BUT have gained so much strength and hope from all of you,
Wishing you peace,
|Ellen, Gratitude is so important to keep the mind in check, thanks for your list. I am too new to the forum and feel the same way. I am holding onto I will get better as well! I have to line up finances and potentially move before I can do the MMS, but I have diet, and some of the protocol which is started. So glad Sandy did not knock out your power! God Lord, what else do we have to survive! I plan to keep in the fight. We are all in this together!|
I'm also fairly new to the site and have now been on the protocol for 2 months. I was thinking of all of you last week, as I watched the US prepare for Sandy's onslaught.
I am used to the extremes of nature where I live in the bush (Australia) and have weathered plenty of floods and bushfires. My heart and prayers go out to those who have been affected.
It seems that you have some good & understanding people in your life and a fighting spirit. I can already feel the benefits of Mel's protocol, and as I slowly begin to feel better, I can begin to address the things I've been neglecting. It's a long process and, at times, not easy. There are good days and bad days. You need to be kind to yourself and not put too much pressure on yourself.
God bless you.
I live on the east coast too... NYC to be exact. Didn't have a probelm with flooding or power outage, either! Whew!!!!
But, the moisture does seem to encourage more symptoms if you're in the early stages of getting well. I'm a year into the protocol, so, moisture for me, means more purging from the skin.
Ellen, please make sure you read my posts regarding how to protect your skin and treat it. As it gets colder skin will get dryer... You're going to want to try and keep it as moist and as supple as possible. You'll have to go back a ways into my post, or, use the search engine and type in 'skin'. This is sooo important, that way you can work it into your daily regimine.
In this dis-ease, you have to work both outside and in... There are so many pathways of detox. Your skin is the biggest... Treat it as well. ;-)
So glad you're okay, I've been thinking about our community memebers who've dealt with Sandy, and, I'm glad to know that not only are you safe, but, still able to keep up with the protocol.
Love, and Light,
Thank you for your suggestions. In the last month I have read the entire 18 pages of the Forum and specifically printed out your posts over the past year. I will go back and re-read, however as I seem to remember nothing!
On one of the conference calls I think you said 'If you have found this site, you can stop being afraid.' I try and keep that in mind each day. My daughter, a scientist, found this site when I was too confused to focus, and as Teresa posted yesterday (thank you Teresa) I will try not to put too much pressure on myself. Accepting help is hard for me, but I have no choice.
One question I do have for anyone is
I have an appointment with a local homeopath to work with me while on the protocol and am wondering how others have fared going this route. I have not mentioned 'Morgellons' to her yet.
Thank you for all your support,
Memory is hard to maintain with morgellons... Don't sweat it...use the search engine. ;-) That's what its there for.
Insofar as acceptance... You must. And, I don't mean to sound harsh, but, think of it this way... If you are going to fight the enemy, you must name it, first. Does that make sense? Your defenses (immune system) were low, and your body is under attack...fight! Get your body back for you, for your loved ones, for life! You mentioned a daughter--you would do anything for her, right?! So, fight to keep her mother alive and healthy! ;-)
On another note, I spoke to exactly one doctor about the problems I was having before I knew it was morgellons. He's a nice man... he was useless. I did all my own research... Thus Peter calls me 'google gal'. I shared everything I found here, hoping that it would be useful information to others. So, perhaps your homeopath will be helpful, perhaps not... either way when it comes to Morgellons... you're in the right place. In terms of other health issues... John is probably your guy. ;-)
You can do this... Life is worth this fight.
Much love, much light.
STRENGTH and LOVE
So glad to see you have begun your own thread. I know how committed you are to beating this disease and I am so proud of you for getting in the fight.
I have come to realize that posting weekly is strengthening in that for me it reduces stress. Somehow the joy of a running account of your jouirney
forward becomes therapeutic!!
'You are like a breath of fresh air' to me and this forum and 'I am very proud of you!!'
STAY IN THE FIGHT. YOUR ON YOUR WAY TO VICTORY!
|MOnica, I just wanted to say THANK YOU. You are an inspiration- I have been fighting for 6 months since I found out that Morgellons is what I am fighting. I keep God first and remember that it is able to be beat, but consistency and faith is critical.|
I have my days as well but I try my hardest to remember that with God ANYTHING is possible. Don't lose faith you guys, because you are worth fighting for. I know you are tired and I know you are desperate, but try not to put so much energy on the disease and focus and bettering yourself because really the protocol itself is making you better overall in health.
LOVE AND LIGHT. I am praying for all of you.
|Hello to all and a prayer for a hopeful and happy holiday.|
I am into my 2nd week of MMS (and 5 weeks on Logos protocol) and will report my journey here.
I welcome any comments and help as I go forward. I have received so much support and help from Peter and Mel - I know I can get through this!
I will see some family this weekend after a long separation and I am being very cautious (short visit, no close contact, etc.) but of course still a little confused about how to proceed with others.
I would appreciate any suggestions from this group.
Thank you in advance and blessings to all,
|Ellen, Happy Thanksgiving. I am so happy for you that you are getting to see some family this weekend. Congrats on your first 5 weeks. Prayers to you.|
|I was in the middle of designing my Christmas cards and realized I need to post something on the forum NOW.|
Today I have turned a corner in terms of dealing with this crazy disease!
I know my life as I knew it is never going to be the same, but I get insights every day that would have been impossible or at least not as likely before this happened.
I went to see a colleague of mine in Hospice today. She has cancer and may have a day or two before she passes. When I went into her room, I knew it was the exact room my niece died in last year at this exact time. Instead of it being a sad or emotional or spooky moment, I was filled with peace - that's the only way I can describe it.
Now that I am home and had more time to think, I feel stronger and ready to get back to moving forward, regardless of my symptoms. I have decided that to keep from getting overwhelmed, I plan to do as much as I can of my 'normal' activities and what has always made me happy. So today that means making cards, putting on Christmas music really loud and having as much contact as I can with the people I love.
I want to relate a funny, or absurd story about something that happened this week.
I passed a friend of mine walking in the cold and was about to do a u-turn to ask her if she wanted a ride, then looked around me at the car seats covered with plastic, bottles of windex and Kleen Green on the seat and white anthrax-looking stuff everywhere (Diatomaceous Earth sprinkled).
I would never be able to explain this craziness to her, so I had to keep on driving. I'm hoping she got home ok! but an example of how I have to give myself a break and how odd to have something we need to hide. What I tell most people is that I have something that affects my immune system and that I am not myself right now but I will be!
Love and prayers to all of you,
|Yay Ellen!!! |
I'm so glad that you're taking your personal power back. That you aren't allowing the dis-ease to dictate your life to you. You're suiting up and getting into warrior mode. It's as much a spiritual transformation as it is a physical one. So, blessings dear... You're so on the right track. :-) Have a holly, jolly... and enjoy your continued recovery!
Much love and light,
|Ellen, Loved reading this :-) Thanks for posting this. I am reading a novel and taking some time each day to enjoy life as well and the Christmas season. I love this time of year and also decided not to let this illness take away my joy even if things are not going to be what they typically would be. You are a great inspiration. Merry Merry Christmas|
|I have to say that I never kept any New Year's resolutions in the past, so maybe this year will be different, maybe not. What I do love about the concept is that most of us start the year wanting to be better people. Nothing wrong with that!|
This year, I will replace fear with love, since that is its opposite
I will never take my health for granted again.
My new life will be about helping others in their journey, as people have helped me.
I hope that this crazy illness becomes life-changing for me in the best possible sense, by using the talents God gave me for a new purpose.
Wishing all of you improved health and prosperity in 2013!
|All I can say is WOW! The wisdom and strength from all of you is such an inspiration to me. |
I was waiting to post until the 3 month mark on my protocol (which will be next week) but after reading the last few days of this forum, I feel compelled to weigh in.
And like Deborah, my post is long, so please bear with me.
At first I did a lot of research on many sites, and got a call from Mel after my daughter contacted him. Once I decided to follow this protocol, I was all in. I felt I had no choice. My job is to get well because there is no alternative. And to stick with this protocol even after feeling so much better because I never want to relapse. I have too much to live for. We all do.
To all of the new people reading this, the most important information I need to pass on is that I have almost NO symptoms! There is nothing special or courageous about what I have done, so you too can get well. And you have so many people here wanting that to happen.
Things started with me in August of last year when I got bit by something that left huge, itchy, painful welts. After giving $2,000 to a pest company, I was still getting bit. The contamination of me, my house, my car and the fear of contaminating others left me feeling like I was living in an episode of the Twilight Zone. It doesn't help that doctors don't recognize this and we have to be secretive. I thought I would lose my job due to the illness and therefore lose my home with nowhere to go.
My physical symptoms were a constant feeling of being bitten, so that I couldn't sleep at night, cuts and small openings on my skin that wouldn't close, black, white specs, a few strange fibers, low body temperature, and constant itching. I also had large weird bruises that came out of nowhere.
At one point I slept on an air mattress in my parent's garage and also in my tiled hallway, before I felt safe enough to sleep in my bedroom. I threw out so much stuff - furniture, clothes, rugs, and never looked back. Many people don't have to do that, but it made it much easier to clean my environment. I used many different products in the beginning but what works for me now is Borax and a little Kleen Green in laundry, showering with Dr Bonner's Peppermint Soap and changing my shampoos every few days.
I have no rugs, so cleaning my wood and tile floors makes me feel safer. Using a dehumidifier last fall made a difference, I think. The pest company identified some Fungal Gnats in my kitchen and they do not like a dry environment. I also spray Kleen Green in my car. I think I have it under control and when warm, humid, weather comes again, I will try to stay on top of things.
The most dramatic change occurred in September when I made dietary changes.
Here's what foods have helped me:
Mostly vegetable based meals, low in acid and sugar. I eat a lot of salads and also lots of soups and roasted vegetables. My sources of protein are eggs, some fish, such as wild salmon, and organic meat. Ezekiel flourless products are great if you can find them. They make a cereal with organic grains and almonds with no sugar. I use almond or coconut milk, lots of tea (Ginger, Red Rooibus, Peppermint and Camomile).
I drink a lot of water with lemon or lime and a lot of vegan meals with quinoa, lentils, etc. I make veggie burgers with black beans and whatever vegetables I have and blend in a food processor, cook and freeze in large quantities. This has saved me on days that I work and am too tired to cook. It really matters that you eat the foods you like or it will be too difficult to stick with this. I am lucky that I was a pretty good cook before I got sick, so I just make sure I have the foods I need on hand.
I take the Logos supplements and as of today I am on 10 drops of MMS. I haven't had any side effects so far. Every one of us will probably react differently and I feel that Mel and John B can guide us if needed.
With a very limited income, it can be a challenge to buy these items, but again, I feel I have no choice. In choosing to be well, we are not only helping our future selves from other diseases but in staying healthy as we age, we will not be a burden to others.
I haven't had any purging from my skin since October, and the small bites/pimpling stopped as of last month. I no longer get open cuts. My temperature is still low, but I am pretty sure I may have had an underlying Thyroid problem, so I will need to address that with my doctor.
As a mom and with family members who rely on me, the most difficult challenge is to be apart from our loved ones as we try to decide how much contact is safe. I tell my family that if there was just a fact sheet we could follow, I would do whatever I needed to do. I am dealing with this a lot better now, but it can be unbearable if I dwell on it.
Here's what I think about the FEAR. I believe it is what keeps me from giving up. I can stick to the protocol because of my fear, not in spite of it. If I wasn't afraid, I would have eaten all the sugary deserts over the holidays. It keeps me from going back to my old habits. And the fear has led me to reach out to God. I had taken my life and my blessings for granted.
For those of you new to this forum, ask a lot of questions, and others will respond. I am also relatively new and don't have all the answers, but we will learn together. And as Mel says, Never give up hope!
I love your post. Yours is a strong testimony here for others who are paying attention! It is also wonderful for everyone to read that you are well on your way to being completely cured! Your diet is very similar to mine. As a firm believer in the power of diet and getting well, your food choices will only lead others to eat the same way and I applaud you for sharing these powerful dietary habits.
Fear, as you brilliantly tell us, can be a powerful motivator to keep us on track!We can all learn from this! I wish you strength and love as you continue to get well. God is always on time, and your time is drawing near!!
KEEP WINNING THE FIGHT!! 'I am soooo proud of you'
|I just watched a documentary called 'Food Matters' and I recommend it to anyone looking for an alternative to the Superbowl! Free on Netflix. |
It has a lot to say about taking responsibility for our health through nutrition and supplements.
I also want to report that after 3 months on this protocol I now have strong fingernails! I am kind of amazed because I have never had strong nails. Nobody likes popping lots of pills each day but what a difference these vitamins are making.
The fact that the mainstream medical community does not recognize this illness may turn out to be a blessing for us when out of necessity, we are forced to learn more about health and take control of our lives.
I am so grateful to be feeling better and wish all of you the same,
Talk about wisdom and strength... you are it! They? Them? Oh well, you get what I mean.
Your posts here (and those of the other warriors)are a wonderful blessing. In your stories, we clearly see how love, knowledge and living with intention overcomes fear.
Please do share some of your recipes with all of us.
Healthy nails are a profound sign of your continued progress in recapturing your health. The low body temp will likely be the last thing to change as your thyroid returns to form.
Thanks again for sharing your journey with us.
Love and abundant blessings,
|Hello to everyone!|
I have not posted in a while, mainly because I am a private person, and it doesn't come naturally to me to share, but if information on my progress can be of help to anyone, I am happy to do so.
I have almost no symptoms after being on the entire protocol since October. I do have some joint/muscle pain, mainly at night in my shoulder and hip and occasionally some dark soot that comes off my feet in the shower, but that's it! No pimpling, itching, specs, fibers since November. I have to remind myself how far I have come, because I feel so much better. I still rest more than in the past but it is more preventative. I decided not to get a flu shot this winter, and not only did I not get the flu, but not even a cold.
I have said this before, but it's worth repeating - There is nothing special about me. Anyone who follows this protocol can get well!
I also want to say that if I was told today that I am completely cured, I don't think I would ever go back to my prior habits. I have no rugs to clean, nothing much to dust which makes cleaning so easy. And I would continue to eat what I now eat, with the exception that I would add in fruit. I miss my fruit! I still eat alkaline, no sugar foods and never deviate. What's fascinating to me is that it's as if I flipped a switch when I gave up sugar. I am around foods every day (at work, etc.) that I can't eat, and yet am not tempted. I lost the craving for sugar and carbs. I make sure to cook the foods I like - I could not stay on this food plan otherwise. I have found substitutes and adapted recipes to fit the protocol foods. I never feel deprived. If we have to spend more time shopping and preparing nutritious food, then we are only creating a healthy future for ourselves. Shouldn't everyone be doing this?
I have stayed with family and friends in the last few months but always bring my own linens and then wash at home. I do spray Kleen Green around before I leave. The isolation of this illness is the worst aspect, and at this point I do not believe I am putting anyone at risk. I hope I am right about this. I wish I knew for sure.
I wrote to Mel to let him know that when I am in a better financial position, I will be happy to give back to the Foundation. I had to empty my bank account when I got sick and am trying to dig myself out of debt. I make choices every day to afford the supplements, because I can't afford to be sick. Investing in our health is not a luxury. I try to be creative and buy the best food I can. I have a hard time asking for help from anyone. Sometimes my dad will slip $20 in my pocket and that will put gas in my car that week. To say I am grateful is an understatement. I am grateful for all of you and your willingness to share your stories.
As Mel says, 'Never Give Up!'
|Ellen, what amazing progress- thanks for sharing :-)|
Thank you for sharing your progress. It is inspirational and helps to motivate me to keep going.
|Hi Ellen, I read your posts and immediately watched the documentary Food Matters. What a great resource! I'm going to look for a nutritional therapist right away.|
Interesting info on how heat takes nutrition out of food. Have you tried a raw food diet. Guessing that is why salads are so good for us. What type of dressings did you make? Right now I just drizzle some olive oil on my veggies. Not sure if it is ok to add apple cider vinegar. Guess I could try it but I really don't like bad reactions so I'm hesitant.
Wondering if you would be willing to share emails for awhile - maybe once a week. Interested in hearing more about your food choices and recipes. Thanks for considering.
I am recovering from surgery right now but am happy to correspond via email. you can get my contact info from Mel.
I've been eating the Ezekiel bread products and I was wondering if the sprouted corn tortillas are ok to use?
I don't want to set myself back by making a bad choice.
Also, some people have posted that they use plain yogurt. Did you? What about grass fed yogurt?
Ok this will be a food posting and a long one. First I will answer Susan and Nancy.
I did not have any dairy at all including yogurt. Look for substitutes. Someone mentioned finding an almond yogurt. Avoid anything ending in ose- sucrose, lactose, etc. And never corn. Even organic non-GMO I would avoid.
I relied on cooked, roasted vegetables a lot, especially in winter. I did have and still have a salad each day made with all raw veggies.
For salad dressing I mainly use olive oil and lemon juice with any spices added depending on the salad. I don't use much apple cider vinegar but I think it's ok.
So . . . today I spent 2 hours making food for the week. And I gave myself that 2 hour window so that I would be finished when my sister, who is caring for me while I recover, came to throw out all the leftovers.
I looked in my fridge and here's two recipes from what I salvaged.
1 lb or less of cooked salmon
bunch of dill
chives or minced onion
cilantro or coriander
salt, pepper, lemon juice to taste
Mix in food processor, then mound into patties, roll in bread crumbs ( or substitute) and cook on both sides in olive oil.
tortillas made without flour
black beans, chili
cooked vegetables such as onions, red or green peppers
Chicken cooked (optional)
brown rice or quinoa
Roll mixture up in tortillas place in baking pan and cover with salsa
bake for 35-40 minutes at 400.
Not to brag, but as good as anything you will taste in a restaurant. If you are not used to spending a lot of time cooking, you can learn. And if you cook for the week, once, you can freeze some for others meals. Get yourself a food processor and a blender - you can always get 2nd hand ones n thrift stores.
I got an Edible Arrangement delivered to me and froze a lot of this fruit to use in my breakfast smoothies.
They vary, but here's what I pick from to use:
chia, flax, sunflower, pumpkin, hemp seeds
I can eat sugar now so I put in berries, any fruit such as apple, peach or pear
sometimes I throw in a carrot or beet.
Always some greens such as spinach or kale
cinnamon, stevia, cocoa powder to taste
So for those struggling with all the food restrictions while facing this disease, try to make at home the foods you love. Adapt recipes to make them protocol-friendly.
I will never tell you this journey is easy.
But today I did all this cooking with . . .drumroll please . . .ONE HAND!
All of us are doing this with different challenges - some with children or unsympathetic family/friends, or lack of money, but I am here to say that you can beat this.
Just know that if you are not following ALL parts of the protocol instructions completely, you may not get better.
It's all up to you.
|Hi Ellen! Wow, what a feat! Cooking all that in 2 hours with one hand! I don't even think I could do that with 2 hands :-0 |
Well I'm praying for your speedy recovery from your procedure. And for minimal discomfort.
Thanks for the good recipe ideas. From what I can tell, you didn't shy away from grains, just wheat flour. So, it seems Ezekial products did not hamper your recovery. A open face sanny isn't out of the question then. I know you've said before you didn't have at every meal so another words it sounds like to include them in your weekly menu with moderation.
The salmon burgers sound easy and I get the idea that the same could be done with chicken.
Thanks again for your care and concern for all of us. You provide so much inspiration for this journey back to health.
Thank you for your answers. I want to get well ASAP and don't want to Sabatage myself with a bad choice.
|Thanks for the recipes Ellen. Wondering what brand of tortillas you found without flour. I found a brown rice tortilla at Trader Joes. Is that the one you use?|
Is there anyway possible that I could speak to you on the phone? it has been since August that I discovered this on/in my body and I would like to start treatment.
If I could speak to someone about this it would be greatly helpful.
Mel has my contact information, I too am from Massachusetts.
Thank you very much,
|Hello Ellen, |
This is Paula from Okla City, I was just wondering about complete healing, what does that look like?
I have been on the protocol for 7 months and I feel so much better.
I would just like to talk with you either email, skype, text or whatever would be possible for us to chat. Please let me know either way, I totally understand if its not possible. I know you might be busy, I am also busy.
love always, Paula