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How I Cured Morgellons Forum Response

NOTE: This is a discussion list reponse to Kleen Green


John Burgstiner

11/5/2013
9:09:15 PM
Hello Diana,

So glad to see you are settling in with the protocol and beginning to make all the dietary and other changes necessary to restore your bioterrain. Occasionally I am asked about testing, and since you mentioned it, I thought this might be a good place to talk a little about the subject.

There are many different types of diagnostic tests available to your doctor as he or she goes about assessing your condition and planning or adjusting your treatment. They can tell much about your health with a standard comprehensive blood panel along with a few other tests to look at vital organ functions, immune status and inflammation markers. They can also order tests to confirm specific infections that are suspected, and some less traditional tests which peer into metabolic pathways to reveal various deficiencies or imbalances.

In a perfect world, one might expect that the more information is made available to your doctor, the easier their job of making you well would be. Unfortunately, in the real world of Lyme Disease and Morgellons, all too often things don't work out that way. The problem is a lack of consensus among practitioners and a lack of consistency among laboratories. Many lab tests are notoriously plagued with false positives or false negatives. Finding two doctors who agree on what Morgellons is (assuming they think it exists at all) or how to treat Lyme is almost as impossible as getting similar results back on the same blood test from different labs.

Just as unsettling as the lack of standardization in labs is their apparent tendency toward bias in reporting results. Some doctors have reported seeing certain diagnostic patterns in lab tests that are common to one lab while others are common to another. Hardly a perfect science!

From the standpoint of the medical practitioner, all of this compounds the confusion that already surrounds the Lyme and Morgellons communities, and further complicates the efforts of those blessed few who are actually trying to help. Not to mention the patient, who suffers on with the added burden of financial stress from enduring one battery of tests after another.

That being said, the practice of medicine is as much art as science – or at least it used to be. However imperfect tools they may be, there certainly is a time and place for diagnostic testing. In the hands of the right practitioner, they can be an invaluable source of feedback as they proceed along with you in your healing journey. However, the best practitioners treat the patient, not the symptoms or the test data.

Mel has often noted that testing seems to be more valuable the further along one is in their healing journey. In fact, he waited to invest in the metabolic testing panel until he was basically healed, and the results of the testing confirmed that. The reason he feels that way is this: early on, the test results of one Morgellons suffer rarely differs substantially from another because they both suffer from a fundamental failure of the bioterrain. At this point, regardless of what the testing shows, the pathway to healing is basically the same. Once one gets stabilized on the protocol, when the toxic burden is removed and organ systems and cellular energy potential are restored, finding and addressing residual coinfections seems to be easier and is certainly much more cost effective.

I hope this helps you understand the value and limitations of testing. Keep your head up Diana. A quick look around here will tell you that you are not alone, and you are going to come through this changed for the better. We are all praying and pulling for you!

Blessings,

John