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Linda 1/2/2019 10:34:35 AM | Hi Nick, Actually I thought this was your journey and it isn't too late to start one if you want to. You have a wonderful way with words. I am a single parent to my granddaughter. It isn't easy being alone and doing everything but I consider her a blessing to me. You are lucky to have your little guy as I feel they keep us going. It sounds like you are doing really well considering how sick you were. I also went back and read Ellen of Troy as well. It is great that you are able to work an easier job. I had to retire early and couldn't work for two years but in order to move to a better place, I had to get a part time job for now and probably until my granddaughter is old enough to be on her own. I don't trust anyone enough to talk about this affliction. It is hard to be so isolated but I am so thankful to be back here with this sweet group of people. It is probably another reason for my getting sicker because I isolated so much. Anyway, best wishes for a happy and healthy New Year. Linda | ||||||
Cheryl 12/29/2018 11:55:23 AM | Hi Nicholas, Your post contains so much hope and optimism. It was a pleasure to read it and see how far you have come. The fact that your symptoms practically all went away for a period of time is such a positive sign. Don't get discouraged that some feelings of movement on your scalp and feet have returned. This disease goes in cycles and you might have some more of those before you are well. The well periods will last longer and longer, and then the day will come when you will be doing the Happy Dance :-) Most of us have probably told people that we had this disease and then wished we wouldn't have. It is easy to think that we know a person well enough that we are sure of a supportive and understanding outcome. Not necessarily so. No one can really predict the reactions of somebody else. I remember once finally getting up the nerve to tell a good friend of mine about this disease. Do you know what she thought? She thought that I had made up some strange disease because I didn't want her to hug me. What?!? Who would make up a disease to avoid being hugged? So it is always best to have forgiveness in our hearts for those who didn't understand, and have thankfulness in our hearts for being part of such a great community of people, who do understand and want to give encouragement and help as we recover our health. I'm glad that you have rekindled your relationship with God. He is loving, wise, and all-knowing and we need Him more than anything. It's great that you were able to move to a less stressful position at work. I like the expression you used, "do right by yourself". We all need to learn to do that. Thank you for bringing up Ellen of Troy's journey. I went back and read it again. I am so happy for her. Her journey is a light of hope for all toxic disease sufferers. God bless. Cheryl | ||||||
Nicholas 12/28/2018 10:03:04 AM | Hello All, I was given a suggestion to read (FOLLOW THE JOURNEYS) by Prof. Mel. I must say that I found it very uplifting and positive. Ellen of Troy has some really great insight and perspective on this disease and more so, the recovery. She had some really good points on fear, saying that it was fear that motivated her to do and eat the right things. She spoke about the isolation we all must face. Like her, I have a mostly understanding family who are watching me get better since I began the protocol in March of 2018 (9 months or so). She also touched on the fact that we have to hide this surreal disease from the 'real' world. I shared with some people at work I thought I could trust only to find out I should have kept quiet. Anyway, I'm not itching like crazy all of the time now. Also, she made mention of a hospital room she visited a friend in hospice and it was a room where her niece passed in a year prior. I found this interesting because it brought a sense of peace to her. She turned a negative circumstance into a positive perspective perhaps because she now had a stronger relationship with God. I don't know that this is worthy of posting as all of you probably have read the same thing but I actually am sorry I didn't create a journal of my own like others did. It's a good way to reflect on where you were and how far you've come in times of doubt and despair. Well as for me 9 months in now and I am still feeling movement on my scalp and feet mostly. This all but went away until a month ago. It was so long that I was questioning if it was real. But is was and it is.... As real as it is, this time I am remaining calm and actually appreciating life more maybe? I'm enjoying time with family and had a great T'day and Christmas. I am looking forward to healing in 2019. Since I've had this sickness I've moved out of my home in Dec last year. Three months later joined this community and protocol- taking supplements, changing my diet, rekindling my relationship with God, talking to people, helping people, accepting help from people , and learning so much about life. I just changed my position at work to one with less stress and less responsibilities and I am feeling like for once I can put myself first. Like ,it's ok to take time for yourself and do right by yourself. In fact, it's the only path to wellness, I'm learning. Giving back to this community is imperative to me. It makes me feel good inside like I have a sense of purpose in life. It's really become my social life these days and I'm thankful because I know that as isolated as we may feel - we are not alone. We have each other to lean on and learn from and that is invaluable. It cannot be measured and that's the way God intended. So yes- Peace. Ellen found it that day and I am finding that it will be ok because we have God and we have each other to hold on to. There's so much to be grateful for. LOVE and PEACE, Nicholas P.S. Prof. Mel I'm still working on my homework. | ||||||
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