![]() |
|
|
|
Original 11/2/2018 Post | |||||||
Nicholas 11/2/2018 11:14:44 AM |
Hi all, I’ve been a member since March (2018). As I look back now, I was in very poor health. I was itching so badly and feeling stinging and biting not knowing why. Black , white and brown specs coming out of my skin often with no end in sight. I was vacuuming, washing, bathing, and spraying pesticides around and on myself, to no avail. I am a single parent to a now six year old whom I love more than anything. I was so scared to touch him and hold him and he didn’t understand why. I was always pushing him away and I was the only person he had besides his nana. My siblings are all in other states. I remember telling his nana that she would have to care for him and I went home to see if my life insurance policy covered suicide. It didn’t. I tried everything I could imagine on my own. Doctors I had talked with were looking at me like I was insane and told me it wasn’t real. I needed psych meds etc. I came to this site thinking was no help for me. I was different and no one would understand. Also the brain fog was so bad it was hard to put two logical sentences together. I was terrified. Mel and this community took me in with open arms and even though I rarely posted I listened and I would read. The Saturday calls alone would bring such comfort to me and I’d find myself laughing one moment, then tearing up then next. I followed Mel’s advice and his one on one coaching is an invaluable tool for me. I strongly recommend it -especially in the beginning. The herxing or purging seemed endless yet being on the calls, reading, and praying gave me hope. This has to work there are no other options, I’d tell myself. It was a long walk into the woods to get here and I knew it would be take just as long to get back at a much slower pace. This is where rest and prayer come in. Also, we have to find something that brings us pleasure. When you’re down - move a muscle ; change a thought. Recently, I had experienced what I came to realize what was a major herx. For about two weeks or so. Seemingly all day I was purging from the same area over and over on my chin. This lasted for days on end and was so bad that the nerve endings in the area went dead. I didn’t put it together at first, but this was a major step for me . I’d start to feel and less itchy and a bit stronger. Each day I am trying to focus on myself - and it’s hard with a demanding job and a young child. I want to thanks those who have posted and tell you your posts and prayers helped me so much. There is so much love and compassion in this community. It really is the work of God and I’m so happy to be a part of it. Much love and gratitude to you all. Love X | ||||||
Responses (Newest First) | |||||||
Linda 1/2/2019 10:34:35 AM |
Hi Nick, Actually I thought this was your journey and it isn't too late to start one if you want to. You have a wonderful way with words. I am a single parent to my granddaughter. It isn't easy being alone and doing everything but I consider her a blessing to me. You are lucky to have your little guy as I feel they keep us going. It sounds like you are doing really well considering how sick you were. I also went back and read Ellen of Troy as well. It is great that you are able to work an easier job. I had to retire early and couldn't work for two years but in order to move to a better place, I had to get a part time job for now and probably until my granddaughter is old enough to be on her own. I don't trust anyone enough to talk about this affliction. It is hard to be so isolated but I am so thankful to be back here with this sweet group of people. It is probably another reason for my getting sicker because I isolated so much. Anyway, best wishes for a happy and healthy New Year. Linda | ||||||
Cheryl 12/29/2018 11:55:23 AM |
Hi Nicholas, Your post contains so much hope and optimism. It was a pleasure to read it and see how far you have come. The fact that your symptoms practically all went away for a period of time is such a positive sign. Don't get discouraged that some feelings of movement on your scalp and feet have returned. This disease goes in cycles and you might have some more of those before you are well. The well periods will last longer and longer, and then the day will come when you will be doing the Happy Dance :-) Most of us have probably told people that we had this disease and then wished we wouldn't have. It is easy to think that we know a person well enough that we are sure of a supportive and understanding outcome. Not necessarily so. No one can really predict the reactions of somebody else. I remember once finally getting up the nerve to tell a good friend of mine about this disease. Do you know what she thought? She thought that I had made up some strange disease because I didn't want her to hug me. What?!? Who would make up a disease to avoid being hugged? So it is always best to have forgiveness in our hearts for those who didn't understand, and have thankfulness in our hearts for being part of such a great community of people, who do understand and want to give encouragement and help as we recover our health. I'm glad that you have rekindled your relationship with God. He is loving, wise, and all-knowing and we need Him more than anything. It's great that you were able to move to a less stressful position at work. I like the expression you used, "do right by yourself". We all need to learn to do that. Thank you for bringing up Ellen of Troy's journey. I went back and read it again. I am so happy for her. Her journey is a light of hope for all toxic disease sufferers. God bless. Cheryl | ||||||
2025 © All Rights Reserved.