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2/7/2017 11:29:58 AM | Hi Amanda - I am new to this site and so incredibly relieved to have found it..as we all are. Are you in the Denver/Boulder area? I noticed your area code from one of the calls. I'm in Denver, so if you're anywhere close by, I'd love to connect with you sometime if you'd be up for it? I will ask Mel to give you my number. One of the reasons I'd love to connect offline is that I'm having major issues with my family also. Most of them have a medical background and after hopefully winning the battle proving I don't have delusional parasitosis, I am still battling the treatment protocol that I have chosen. I don't have time for science to catch up and we clearly know that antibiotics haven't been successful in treating morgellons. They want me to follow antibiotic therapy and they think sites like this are just taking advantage of the sick...which couldn't be further from the truth. It's the best support system that I have right now. The stress my disease has brought my family is off the charts and I feel terrible about it. As a result, no one in my family will allow me to live with them anymore. I was staying with my parents temporarily while dealing with a God awful 8 month trial in Cape Town over the death of my husband who was killed shark diving in South Africa in 2008. We all thought at the time that it was most likely severe stress and I was just coming unraveled. I left my parents house in 2014 when I started developing skin sores and crawling sensations. This was after going to dermatologists, urgent care, primary care and was told by all of them that I was delusional..which I knew and still know that I'm not. I was trying all sorts of home remedies, taking baths, trying various shampoos and ointments. My parents got really frustrated with me and told me I was imagining things, to stop wasting my money on home remedies and to get a job and stop focusing on the biting/itching/crawling. So, after the shit hit the fan on more than one occasion, I moved back to CO since I thought it was one of the best ways to diffuse some of the stress. Unfortunately, that made the stress and support from my family even worse. I was finally diagnosed with Lyme in Feb 2016 as well as some other lovely co-infections including morgs. So, considering you are having some luck with getting some of your family members on board, I thought you'd be willing to chat with me since I'm not having any luck with my own family. I have to admit that I'm very impressed and inspired by you having to deal with this while in college. My hat goes off to you for handling all of this with such grace. Please let your family know I said that! :) And, glad your brother believes you. I am going to start my own thread later today and look forward to connecting with you soon. |
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