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How I Cured Morgellons
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Chrissie 10/9/2026 11:52:33 AM MST |
Dear All, Living with chronic illness can be exhausting in ways that aren't always obvious to other people. You can end up managing so much of your own care: making sure you have the medication you need, keeping track of symptoms and appointments, eating and drinking properly, trying to get enough sleep and rest, remembering letters, referrals and everything you're supposed to follow up. And all of that happens alongside ordinary life. You may still have shopping to do, meals to prepare, a home to look after, bills to deal with and appointments to attend, even when you're physically exhausted, in pain or emotionally struggling. Sometimes you also have to advocate for yourself — with doctors, consultants, healthcare services and even people in your own life. You have to explain what you need and try to make yourself heard when you have very little energy left. This can be particularly difficult when you're living with a complex or poorly understood illness. Chronic Lyme disease and Morgellons are two examples, where people can experience a wide range of ongoing symptoms and may find that others don't understand the impact those symptoms have on everyday life. Or they dont even accept your condition as a physical illness!!! People can make assumptions. They may see you managing something and assume it wasn't difficult. They don't see the effort behind it. They don't see you pushing through symptoms just to accomplish something that would be effortless for somebody who was well. They don't see everything that happened behind closed doors before you arrived looking as though you're coping. That's why community matters. Finding people who understand what it's like to live with a complex illness, or simply people who are willing to listen without dismissing what you say, can make an enormous difference. Sometimes you don't need somebody to have an answer. You just need somebody to understand that what you're experiencing is real. When you're already using so much energy trying to manage your health, being disbelieved or misunderstood can be incredibly painful. But you know your own journey. You know what you've endured and how much effort it has taken to keep going. So be kind to yourself. You don't have to prove your suffering to anyone. Take things one day at a time, and on the hardest days, one hour at a time. Sometimes simply getting through the day on bad days, is an achievement in itself. Love Chrissie | |||
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