Ellen
7/6/2015
10:33:09 AM | Hello to Mary and all,
I hope you are feeling a lessening of your symptoms. I'm also sensing a lot of frustration about what others to this site are able to provide in terms of support.
I have said this before and I tell it to Mel often that I do as much as I can on this site but need to keep a balance in my life because of all the obligations I have unrelated to this issue including work, two elderly parents and a sister who is a quadriplegic. If others are feeling better, and prefer to get on with their lives, we need to accept that, because we do not have knowledge of what else their lives demand of them.
I feel that recovering from this disease is truly a blessing and I hope I do not take this healing for granted. For my own well being, however, I cannot dwell on it too much because it was so traumatic. I don't want to revisit my worst moments and, like Mel, prefer to be optimistic and positive.
I always had Mel and Peter and John as reference points and cheerleaders but I was alone in my fight for most of the duration. So I guess what I am asking is that others use this time to heal, to rest, and summon the strength that is in you. No one else can do this for you and we are all volunteering our time. If others don't respond with what you expect or feel you need, please remember that we do not get paid and we are doing the best we can.
Take care,
Ellen
|
