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How I Cured Morgellons
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5/6/2016 2:05:17 PM | Hello everyone and new people! =) I am glad to see you are all chugging along in great hope, health strides and happiness! It has been almost 6 months since I have updated here. I have gone through MANY downs during that time and small ups. All about those is posted on my personal blog which I will not share here as I've learned over time this site is only for certain information. I came to live in NY in November and the move has been a hard one. I believe I had a relapse in progress over the last 6 months. I believe this is due to my fiancee and I have been struggling extremely financially due to illness robbing me of my ability to work as well as high cost of protocol AND organic food. Though the "move" itself was not stressful- I just packed a suitcase and took a flight for what I thought was only going to be 1 month. While I was here, my roommates in CA were evicted, the condo was sold and me evicted albeit long distance by email! Everything is still in CA (we have left it all there til there is money to recoup). My situation here was still tiring and stressful. Let's see, where am I in the journey? I'm on month 19 of starting this protocol in Sept. 2014. I went up to 22 drops of MMS and sometime in November 2015 I began getting very sick from it (not in the good herxy nausea kinda way, but in the bad vomiting diarrhea way) so I dropped down by drops, then at 14 where I was ok for a while. I am also ELATED to see the split dose accepted into the protocol for daily use! Yay! Well, anyway, then we had stopped being able to afford protocol. We had no money for protocol or anything else and so much was happening besides that that I was feeling hopeless, depressed and suicidal on and off for many months. The food issue with this is extremely difficult for me. It's easier when you think "Oh this will only be for 18 months, such a small committment to my complete wellness" - it's VERY DIFFICULT when you see you aren't getting well and you are thinking "this way of eating is for the rest of my life." Food is everywhere. Depression unfortunately, is also very real side effect of some chronic illnesses. What I have learned from that situation is have NO FEAR warriors, Morgellons will not kill you! Yes, its creepy and uncomfortable. Yes, it's undesirable to have these weird sci-fi things happening to your body and skin. Yes, you will feel like a leper. Yes, the diet recommended IS EXTREMELY HARD, but Morgellons has not and likely will not KILL you. It will however, if you let it, make you want to end the pain ASAP by killing yourself. But don't let it! This illness has no power, except the power you give it! I CAN be stronger! Some people get better real fast. Woohoo! less than a year, gone in 9 months, gone in 18 months. Others of you may strive like I did to be well in 18 months. I wish you the best with that!! That is everyone's goal in the beginning and it's a great goal to have. However, some people are fighting more than just this infection, and for you I warn you, it is A VERY VERY LONG ROAD. I have recently been tested with the ELISA and Western Blot and have learned why I may not be getting well in my 18 months,and "get well soon" doesn't really apply to me anymore, and also why this has been/felt like a MUCH harder fight for me than some others I've seen on here. I didn't understand why I was struggling before, but I do now. I am also infected with Babesia, Bartonella, Mycoplasma, Anaplasmosis AND Borrelia (Lyme Disease) PLUS (our secret) Morgellons. In the interest of honesty and sharing our symptoms like we often do, my symptoms have changed somewhat (there are now new ones) though the older ones are still active. Yes, even after months of the strict diet (great recipes in the diet section!), MMS drops and faithfully as possible sticking to the Logos protocol. Whats up with this body, let's see? Well, I have the random tinglies ( I don't call them crawlies anymore and I found with my bug phobia this helps me mentally deal), the itchy pimplings /sores 2-4 a day. I have random rashes (the blotch ones, the cat scratch-like rashes and the red welts), I have a lot difficulty breathing, recurring fevers, constant sore throat. It makes me sad some days that I've completely lost my ability to sing due to my throat never healing (as I used to be a vocalist), I randomly am unable to move my limbs as well as my hands or feet, some days its difficult to form words, but I can still write! Thankfully! I have random sharp pains in my body, my limbs go numb, 2-3 inch red/blue or white (hey, hey USA!) =) fibers are seen on my pet hair roll, but I dont really know that they are from me - thus far, nothing is seen moving, EVER. =) Also, I try hard not to get caught up in all that specks and fibers stuff, when we do it only serves to give us fear and fear is REALLY NOT necessary here. We're too sick for that. Cortisone low, Keep the "healing ONLINE" as my brother Peter would say. I have no more black specks that I can discern, there have been a few white ones, but they are rare. I have had increased pimpling in my neck area near the lymph and glands for some reason. Also, I have extremely dry and itchy skin (no matter how much coconut oil I use - it's ALWAYS dry) but I have determined with our diet of mainly foods high in Vitamin A only (green vegetables), until I can change/tolerate my diet, I will have certain dryness issues. It is a side effect of too much Vitamin A, but that is all I /we can eat. =) I look forward to the days of quinoa and brown rice, green apples, berries and manuka honey! Some day! What am I doing now in NY to get well? I have begun to look into the path I was so reluctant to take for the last 3 years. Due to my particular fight, I am going to now go the medical route of prescription drugs with a integrative approach of herbs, meditation/prayer, detox and vitamins. I now believe that is the way to MY health and it isn't by ignoring modern (time tested) medicine (yes, there are side effects) but by incorporating them into my fight WITH using the protocol and detox strategies I am studying. Whatever strain of Morgellons (and I do believe that there are successive pathogen generation strains like any other, that become morphed or stronger) I am fighting, I no longer believe for me, that natural is the only way to go. This protocol has gotten me this far and I am still alive, but it hasnt lessened any of my symptoms though it has helped me in many ways in the early months when I was afraid and beginning with no nutrition guidance or knowledge of vitamins. It helped me coming here when didn't know what I was fighting and I believed I had very little immunity. Based on my blood test "numbers" my immune system has NEVER shown to be compromised, but now I know better. The blood test numbers are pretty useless. All along I kept going natural instead of finding a Dr. saying "I dont want to take abx because I dont want kill off all my flora! I dont want to harm the good bacteria." When the reality is I likely killed off my flora YEARS ago with early abx doses as a young adult and IF (a big if) I was able to somehow take just"12 strains" probiotics to completely "rebuild" the millions of strains and biome families in existence in a healthy gut that I lost - I probably killed them again when I got H. pylori BEFORE I even got or knew of Morgellons. Rebuilding immunity has become kind of a inside joke to me now. Truth is, NO ONE has counted someone elses or can count their own gut flora stores. I will never know how much I had then vs. how much I have now, or vs. how many I killed each time. I don't think I ever had that much to begin with. Or I would not have struggled as much with yeast issues in my youth. I didn't even know if the probiotics are working or not. They could be dead inside those pills for all we know. We as a public don't really know that much yet about probiotics and also there are relevant studies that show probiotic yeast infections are becoming common and these have NO cure. These are all the kind of "unknowns" God has taught me to just leave to Him. He knows it all. He has kindly led me to a Dr. who has given me a referral for LLMD I will be paying $600 per visit (insurance does not cover Lyme related care) sussing her out for reliability, honesty, willingness, checking for an opportunistic attitude and finding out how many she has actually healed with no relapses. I plan on doing detox baths, FIR sauna, weekly skin debriding and spot cleaning the pimplings/sores, taking abx, Mel's diet protocol, taking antifungals, antiparasitics AND continue to stay on my "basic" Logos herbs, Thymic, Liver CS, probiotics (*adding in natural greek yogurt and sauerkraut), maginifizyme, maginifical, and silver regimen as well as ramp up prayer and meditation on the positive. It is the still the SUM of the PARTS for me. But with my personal struggle, I have now had to add more "parts". Keep plugging away by following the protocol warriors and diet and most of you will find yourself feeling better and having time to get back to your life. I will keep those of you struggling in prayer! Others have beat this, so there is hope, which serves to hopefully keep our spirits up and keep us fighting. Onward and forward soldiers! We march! |
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