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How I Cured Morgellons
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12/18/2016 12:21:36 PM | Good Morning, I woke up this morning thinking how grateful I am to have access to the warm and loving community this forum offers and also for Mel and all the information available on this site. As mentioned in an earlier post, I've been reading and listening for several months now, and have noticed that, to me, some of the most encouraging posts come from those who document their journeys along the way. The more involved I get in reading and listening, the more impressed I am by the dedication and selflessness of Mel and the sheer courage, faith, and strength of all of you who, despite your own level of struggle, still manage to reach out and offer hope and support to so many others. So...in the spirit of those of you who have gone before me, I'd like to I'd like to start today with documenting my own journey. I believe this should start with my backstory. I've touched on it in my previous posts...and as mentioned, it's pretty similar to most others, but I'm going to go ahead and document it here anyway...just to establish a starting point. In May of 2014 I was bitten by something when cleaning out my attic...I think it had to do with a bird's nest on the porch ceiling close to a vent to my attic...then several months of weird itching / crawling that doctors couldn't figure out, but (based on what I now know) those were not M symptoms. Got rid of it by online searching, which led me to the conclusion of colembolla which led me to a strict diet and cleaning, etc. Once abated, I fell back to my old ways of eating and thought that was that and all was good. In the summer of '15, I opened a Space Bag with a cushion in it and immediately felt the crawling / biting again. It got worse this time...so I amped up my offense and went back on my diet and into crazy cleaning mode plus deciding to go for a scorched earth approach and annihilate for good what I believed was original source of what had bitten me. This involved doing the army man crawl through my attic spraying a three round set of pure ammonia, then a mix of three highly toxic insecticides, and then pure ammonia again to finish it off. I did this three times over a period of six weeks. After the last spraying, I started getting very sick. This was in October of '15. The online research I'd done before to figure out what the first "biting" thing was had educated me enough to recognize these symptoms as Morgellons. I was terrified and started going into online information seeking overload. Suffice it to say, I wandered around in the cyber wilderness being pulled one way and then another until I finally decided last April or May to just go ahead and do this protocol. I wish I could say I stuck with it as written...but...I didn't. The siren call of a possible "quick cure" lulled me back into cyber space. I'd still go to other sites and read and read and read. I've ordered so many things (including a pricey computer driven Rife machine that would be challenging to operate even with my cognition working at full throttle...and now hoping I can sell it on ebay), and just about every other hope in a bottle, tube or jar that struck me as a fast cure. I'm now convinced this has prolonged my path to recovery, but...regret serves no purpose, so I will leave that as lesson learned. I started trying to get purely on this protocol toward the end of September, but have struggled mightily with "compliance" over these last three months for reasons mentioned in earlier posts. However, on the stretches of days I do manage to do everything like I'm supposed to, I always notice significant improvement in all areas. My biggest challenge is in taking all the supplements. I have no problem staying on the diet with the exception of not eating enough. I find myself just not very hungry sometimes, and I get so busy at work with my random schedule so that I often miss meals and the supplements that go along with them. Last week I finally decided to just throw in the towel and admit I needed support, so I booked a conference call with Mel and have also email bombed him with a ton of questions, musings, and anxious disclosures about concerns both legitimate and trivial...and repetitive. He's been supportive and kind in his responses, but in retrospect, I've realized some of my questions could have been answered by further reading / listening to the information offered on this site and the Logos site as well. Lol...yes Mel...that IS what you tell us over and again, but some of us take a little longer to get it than others. So...here's where I am today. I'm better than where I was at this time last year. This is due to a number of factors including having a supportive doctor who has prescribed various antibiotics, etc., since my first appointment last January. I know I'm better because of the lab work I have done every two months. And...even though I haven't been on this protocol 100%, I suspect much of my improvement is still a result of those things I've done (albeit intermittently) as recommended by this site including the supplements on the protocol and adherence to the diet. I'm probably painting a worse picture of my compliance to the protocol than is actually accurate...but the more I read, the more I realize it has to be 100% to make it work...and I haven't been at 100%...YET. But...as of today, I have one full day of doing everything I'm supposed to under my belt...hey...it's a start, but my goal is 100% compliance from now on. My symptoms at this point are mostly fatigue at certain times of the day, brain fog (not all the time, but enough to drive me nuts), and some skin issues on my face. Like everyone else, I've exfoliated any number of disturbing things from my skin and over this last year have noticed how these things seem to come in waves, change, and morph around for lack of a better term. The thing that drives me the most crazy is a little place on my chin / jaw bone that has little hard places under it that seem to react and move around when I treat the area with various topical solutions. Various things come out on the rest of my face with this treatment including black specks, white grains, small black fibers about the size and shape of an eye lash, and long white hairs that suddenly surface after rubbing for a few minutes...and of course...the glitter. Mine is pink. The place on my chin has produced the same plus what I now believe is biofilm which looks like sharp little crystal and plastic pieces that really hurt when they come out (though, of course, I'm so glad they're out rather than in). The latest thing that this face adventure has morphed into is what I call tickling as a result of very very fine fibers coming out of that area on my chin in the evening and at night. I've treated this with coconut oil, essential oils, aloe vera juice, papaya powder, MMS, Kleen Green, etc., etc., etc. but they still keep coming. These fibers are so fine that I can barely see them even with my 3.0 reader glasses and an 8X magnified make up mirror. Once they start, I go into make them go away mode with topical solutions, tweezers and occasional screaming because...well...it HURTS when I pull them out...especially when one is close to a hard bump under the skin. These bumps and fibers have a stinging quality to them that's hard to describe. The only thing I can think of to compare it to is like the sensation one has when eating the candy called Hot Rocks, but it's as if I have Hot Rocks crushed into small particles under my skin that intertwine with these fibers and nerve endings and hurt like crazy when removed. Of course, every time I remove them in an area, more pop back up, but if I'm diligent, I can at least make a dent in the volume. I've found a product called Waxolene that's supposed to be a natural based product alternative to Vasoline. After I work on my face , I wash it in peppermint soap (ouch!) and then put on a thick layer of Waxoline. This helps some...unless it's a particularly bad night. The tickling keeps me from sleeping which, of course, is not good. I'm going to try taking Zyrtec tonight to see if that helps any. I hope so. On a more positive note, the purging has become less in volume over the months, though it's still definitely there...but the current pathogen trick of this tickling is just SO annoying. I've noticed the little bumps under the skin on my chin have lessened...but...sigh...it's a very slow process...they only lessen by the smallest increments over a long stretch of time. Ok...that's the state of the union for me at this point on my journey. My plan is to update my progress intermittently in the attempts to reach out for support, track my progress, and hopefully, have some level of positive input for others. I often wonder how many thousands out there are like me...who have been doing this alone...reading this site quietly without joining in...and reaping benefit from all the information. My guess is that there are a LOT of people in that boat. So with this thought in mind, thanks again to all of you who take the time to put yourselves out there and post your journeys, questions, and info for the rest of us who lurk and hope. I've now officially crossed over from lurker to joiner, and am, again, very grateful to be welcomed into this loving community. Blessings, Karen |
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