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How I Cured Morgellons
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| Original 11/15/2017 Post | ||||
Karen 11/15/2017 2:10:10 PM |
Hi Everyone, Last June I started a thread called "Doing a Very Cautious Happy Dance." That was because I was suddenly so much better. I'd had a horrible herx at the end of April / beginning of June that had made me almost feel like life wasn't worth living...it was one of those that pushed me right to the end of my rope. That's when I learned what happens after a big herx...the improvement afterward is equal to the suffering during. That's when I started doing a very cautious happy dance. Not in the 90% club yet at that time...but sort of edging into the 80%...though...as we all know...we get better and then this thing kind of cycles back some until we push through another barrier. Well...amazingly...I've recently broken through a new barrier. Here's what's happened: 1. More energy! Unfortunately, I've discovered this doesn't mean I'm back to my old self where I can drink coffee late at night...only sleep for a couple of hours and then run like the Gingerbread Man all day the next day. Feeling like myself again went straight to my head and I overdid it and paid the price the next day. That scared me because in the past if I'd have messed up like that I'd have paid for it for weeks. However...I got some rest the next night and I was back to feeling good again! Now I'm going to be VERY careful and not overdo it any more. No need to tempt fate. 2. The skin issues in the small area on my chin that drives me crazy is noticeably better...purging has diminished to very little and I'm crossing my fingers this trend continues. The skin in that area is starting to feel like my skin again...and not feel like some kind of alien created synthetic fabric. It's so interesting with this skin thing though. It's hardly visible...a little place right under the ridge of my chin...and no one notices it but me. But it's something I notice constantly...I'm always aware of it like a monkey on my back. How it looks and how it feels are two things that do NOT match. I'm very thankful that I've never had skin lesions...and that my skin issues have been mostly confined to some fairly small areas...but the purging on my face and a little on my back have been creepy and disturbing enough to almost send me over the edge at times. Interestingly I noticed a big improvement in the area on my chin just this week when I started swishing a few times a day with WPS. Mel had told me to gargle with it because I now have a cold and a sore throat (YEA!!!! That means my immune system is kicking in again). I did gargle, but decided I might as well swish too since I'd made a whole glass of it...so I did so several times with each glass. It wasn't bad because I didn't activate it with the citric acid...so it didn't taste like anything. Well...my skin on my chin started making an improvement after all the swishing...maybe it was the proximity of the WPS when swishing to my chin when I swished in my lower teeth. I don't know but I'm going to continue this because it seems like it's a lot of bang for the buck. 3. Here's a REALLY great part. I really think my immune system is starting to work again. It's been a LONG time coming, so anyone who's reading this...please don't give up...it'll eventually happen. My doctor told me the immune system (as measured by the CD57 blood test) will move very slowly for a long time...and then it will suddenly take a big jump when you're close to getting well. I know my immune system is improving because the last time I got a CD 57 blood test, my number was down to a SEVEN...which is awful. That was a year ago this month. I didn't get it tested again until this last September...and it had jumped to a 56! It's supposed to be at least at a 100...and 125 is better. Two hundred is ideal...but...my doctor said once it gets to 75 it'll start moving up pretty fast. That's great...because my number had lingered in the twenties and below for over a year. Ok...that test was in September...but I KNOW my number must be even higher now. I'm going to wait until the new year to get it tested again, but I imagine I'll see a great improvement because...of my finger nails! Up until about a month ago, my finger nails were brittle and would break off. When I was at my worst, I couldn't even turn a page or pick up a coin. But...suddenly...just in the last month or so, my nails are BACK! They are long and even stronger than BEFORE I got sick. I've been taking Colostrum again for about a month, and that's supposed to help with the immune system. I take it intermittently every few months, but this time...what a difference! I think it's the combination of everything though...and the Colostrum is the cherry on the cake. So...I'm looking so forward to getting well now. I've always believed it was possible...but there have definitely been times when I've been very discouraged...but...now I can actually SEE it coming. I'm so inspired and so excited! I just have to be careful and not let the combination of this happiness and the proximity of fun holiday food collide. I need encouragement to not fall off the diet wagon from just the sheer joy of feeling quasi "normal" again. Ok...yet another looooooong post...but this is a happy one. I hope anyone reading this who has been discouraged can now see that it can actually happen. We hear it takes a long time...and boy does it ever. I actually ordered my first protocol in the spring of 2016, but I didn't get good at taking it until last December of 2016. That's when I "met" Mel...I'd been stalking the site for a year and finally made contact with him when he started one on one coaching. The rest is history. I love him to the moon and back...and not just because he shined the light on the trail to wellness. He's a great cook too! Lol...ok Mel...more reasons than that...but please don't ever stop cooking for me. I'm emailing Mel a pic of my newly healthy, long and strong finger nails...and I hope he has a chance to put that pic in this post. Love, Karen | |||
| Responses (Newest First) | ||||
Karen 11/22/2017 8:11:31 AM edit upload | Thank you Laura. You never fail to offer the kindest of words and encouragement to all who post. You are a beacon of light to others, and such a blessing as well. I hope you and everyone who reads this post has a Thanksgiving this year of peace and contentment. I know it's hard to navigate this type of a food holiday with MD...but I hope every one of you tries to do something wonderful for yourselves if possible. You're right...life is full of peaks and valleys...and at the end of the day, we all want the same things...to love and be loved...to laugh often...and to share the beauty of life with those around us when we can. However...there are always two sides to a coin. We cannot appreciate the sunshine unless we've shivered in the shadows...otherwise we'd have no appreciation for the sun's warmth and light. To me...that speaks volumes about perspective...and it occurs to me that differing perspectives can lead to so many creations and beauty in this world...but this can also lead to many or our misunderstandings in life. This is so evident when we attempt to explain our MD experiences to others. We often find it difficult to impossible to convey our reality to someone who's mind is closed toward anything except what they've already decided is accurate or not. The same is true for anything else in life as well...we struggle so much to attempt to share our perspectives...and because we all have differences in this area, our perceptions can sometimes collide. This can create so much internal conflict in those of us with this disease...and with this holiday, we may find ourselves in the position of attempting to explain why we are eating differently than those around us. If so...then just take a deep breath and try to say the least possible in a "breezy" way. I've been reading quite a bit in the last couple of days about conflict and estrangement...and one expert said that when people ask you probing questions you'd rather not answer to not get caught up in giving a lot of explanation...just be very casual and "breezy" in your answer...and give the least possible bit of information...and then change the subject. This can be difficult for some of us though...because we have all been so disenfranchized from the main stream with this disease in every aspect of our lives. I believe this estrangement from our old reality and the subsequent isolation can have quite an impact our social skills and leave us more vulnerable and open to hurt and criticism. It can leave us more emotionally fragile and easily rattled. Because of this we may be at risk for some hurt on these holidays just from the dynamics that occur when so many people get together. We all have our hopes and dreams...and we have to filter reality through our expectations. That is sometimes not easy to do. Norman Rockwell doesn't always show up...and this can lead to lots of internal stress that we don't need. These are just a few thoughts...things we might experience over the holidays while dealing with MD. To me...having a realistic mindset is always helpful, and I love this quote from Ralph Waldo Emerson: “Finish each day and be done with it. You have done what you could. Some blunders and absurdities no doubt crept in; forget them as soon as you can. Tomorrow is a new day. You shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.” The phrase "blunders and absurdities" has always stood out to me. It captures what so often happens in our lives that is difficult to understand or explain...and it seems that these types of things are always triggered by the smallest of things. Sometimes there's a domino effect...and this can bring us so much confusion and stress...not to mention hurt feelings and difficult thoughts...but we can navigate these rough waters by calming our minds through prayer and reflection ahead of time...during...and after. And speaking of absurdities, MD is a huge "absurdity"...and if we've been able to manage it, then I guess the rest of it is small stuff. However...let's all agree to NOT invite MD to our Thanksgiving dinner. Let's plan to leave those heavy thoughts locked in a closet and escape from them for at least a little while. Some of you may have a place to go...and some may not. In any case, I think we all should try to make that day special by focusing on what we have to be thankful for. And...I for one, am extremely thankful for this site where so many of us are getting well. Warmth and love to all, Karen | |||
Laura (aunt) 11/21/2017 8:49:50 AM edit upload | Dear Karen, Thank you for taking the time to share your heart with us. This was so beautifully written and the message will touch the hearts of all who read it. As you stated, we will never be the same person we once were. This disease has forever changed our lives. I agree with dysfunctional being the norm in families. Family life is full of peaks and valley's but we live through it with love. Each one of us love differently but we still love. Thank you for sharing the cookbook memories. My fondest childhood memories are of Thanksgiving when my parents would start cooking the turkey at 2:00 in the morning. I can still smell the aroma of turkey cooking during the night and still hear my parents downstairs laughing while basting the turkey. I am blessed to have such great Holiday memories. In life we must move from one stage to the next. Some stages good, some not so good. I look forward to the day when I look back on this and recall the many wonderful people who helped me get through MD. I look forward to the day when I can say thank you God because He brought me through this disease while teaching the profound truth about His word. I look forward to the day when I can begin building new memories with my children and grandchildren. In the midst of looking forward to my better future; I will never forget the past days or people who became family during my battle with MD. God Bless you Karen for your beautiful spirit and God Bless all the amazing people in the community. I pray for your light to shine as you overcome this disease. Do not give up hope and then have the faith in God; believing you will overcome this in time. Please know we are here for one another and God has truly made us family. "We ought always to thank God for you, brothers and sisters, and rightly so, because your faith is growing more and more, and the love all of you have for one another is increasing." 2 Thessalonians 1:3 In Christ Love, Laura | |||
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