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How I Cured Morgellons
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| Original 10/3/2020 Post | |||||||
Miles 10/3/2020 2:17:47 AM |
Backstory.. I began to get lesions on my skin.. at first it was manageable on my arms and legs below the knee, my back sporadically, now to the backs of my hands, my face, above the knee. I had noticed early on a fiber or something, but had written it off as lint. It became so frequent that I now know that my body is producing it. I googled probably what everyone else here did.. and Morgellons was about the only thing that popped up. Which in itself was slightly mortifying, considering how it is hotly contested. Not only that.. I have to give the doc's report to the military.. and someone with a skin picking disorder probably won't be ruled favorably upon. I left some things out of that initial statement. The timeline - Had some spots on my legs, and then eventually my forearms. It got the point where I went to my PCP and he referred me to a dermatologist. That appt was about 30 days out, and in the meantime this began progressing. I finally went to the derma, and she kept asking if I was picking or scratching. I let her know that I was not.. and have gone through leaps and bounds to combat this. So much so, that I began laser hair removal on my arms, legs, and hands. She prescribed doxy, and Mupirocin, and set an appt for another month later. I had called the office, and let them know that the meds prescribed are doing nothing.. was pretty much met with disregard. I went back after the month.. and she mentioned that it looks worse; which I agreed. She questeioned me about picking and/or scratching again. I assured her that I was not.. and that just in case, I wrap my arms and legs with gauze, and then a compression bandage.. I also let her know that I sleep with long sleeve t's and pajama pants. She asked if I wanted a biopsy.. which I most def agreed with doing. It came back inconclusive... her nurse called me and let me know that my lesions were from self inflection and trauma. My heart sank. I'm 37 years old.. If I had a skin picking disorder, it would have been an issue long ago. She prescribed the same thing agan.. doxy and whatever the topical steroid was. I got pissed and went to another derma.. I am/was being hit with the current questioning of picking/scratching. He is also a pathologist, and I signed a medical release form for him to see the original biopsy slides. They produced nothing. He prescribed another steroid topical treatment. I went in this last time, and they seemed shocked that it wasn't working. During that time, I had googled fibers etc, and found Morgellons. It seems that this is a widely debated issue and I had serious insecurities about bringing it up; I did.. not sure how it went (yet). They preformed another biopsy with results awaiting. I routinely find these little hairs coming from my skin.. and more alarming is the black shit coming out... I feel like I'm going out of my mind trying to explain this to anyone. The fiber looking hairs can be so equated to lint that I do sound/look like a crazy person. Covid has been a blessing in disguise as I'm able to work from home.. but soon I have a board meeting with everyone and there is no... and I mean no way, I can or will allow anyone to see my hands like this. I've worn long sleeves the past X amount of months to shield myself from scrutinizing eyes. My moral is low. Physically I look like a drug addict or something. I've gone through some wild measures to try and circumvent this with nil results. Psychologically, this is beginning to take a toll. I won't step outside without a long sleeved T and some type of gloves. The gloves seem to make me appear extra crazy during this CV-19 crap while masked as well. I see alot of glances etc. Summary - I don't know what to do. I've tried everything. I'm lost. I feel hopeless.. and this crap is spreading to other parts of my body that I can't hide. I don't know what to do. | ||||||
| Responses (Newest First) | |||||||
Miles 12/4/2020 8:24:41 AM |
Hadn't posted or been on the calls in awhile. Thought I'd post to update my progress. I def plan on being on this weekends call. The lesions pale in comparison to what they were. Really there isn't any, any longer. Everything is healing. I have minor cyclic type outbreaks here and there, but it's manageable and not too bad. The 2 biggest improvements from just the beginning of Oct is that my mental clarity has mostly been regained and the extreme fatigue are gone for the most part. Early Oct I wasn't able to focus on anything.. to the point that I was questioning if my job was in jeopardy. I still have spells of it.. but not even close to what it was before. I deal a lot with people, employees, construction projects etc.. which typically requires critical thinking and decision making. So the concern was definitely valid. Between that time and today, I was able to secure a $380k grant to build out telecommunications in a rural area. It's a huge win for the company (and me personally) as the area was previously unqualified for funding. It has a very strict and tight deadline that absolutely has to be met. That said... The state and myself have been talking, and the top dog that runs this grant has talked about reallocating funds to fund another small, but impactful project of ours. I submitted the documents Tuesday and will probably get the verdict early next week. From the phone conversations we've had.. I expect it will go through. The deadline remains the same.. so this project will require coordinating 2 contractors to do the work and also getting our guys to do some of the finish work. The other project will run parallel with this one.. so organization and quick thinking are definitely required. There is no way I would have been able to do any of that without everyone here's help and Mel. So truly.. it is appreciated. My daughter turned 16 and was surprised with her first car. She's a rockstar student and daughter. It was well deserved. Needless to say, she loves it. I'd ramble on longer, but there's food in the kitchen calling my name. Happy Thanksgiving everyone. | ||||||
Rockin Robin 11/8/2020 8:49:07 AM |
Dear Miles, Your post is so touching!! Your honesty and openness is so endearing! And, your right , what we share always helps others!! You are a sweetheart to think of them! To answer some of your questions,.....yes, yes, & yes!! My hands and feet are always cold! I have circulation problems in my legs and feet. Moving around helps, but my feet still stay cold. There have been times when I felt a little sick, not often, usually after increasing the WPS, but I am sensitive and using the gentle approach. I have herxed 3 times, once a little and twice not pleasant. Once pretty bad after eating way too many raw pumpkin seeds. The pathogens don't like them and I love them. But, the first time I ate them, I thought they were so good and just kept eating them, little knowing how they would react!! Moderation, slow and steady as Mel says!! He identified the problem right away!! In the beginning, I had some hot flashes, but no longer, just cold a lot! I have muscle spasms in my calves every now and then. Don't know if this is common among us sufferers, so I hope some others chime in, I used to eat bananas, strawberries, and kiwi for this. Bananas have the least and kiwi the most potassium, but we can't have this now, only a few berries a day - 1/4 cup. I do keep a drippy nose and I know everyone usually has this!! Have heard many people mention this on conference calls. Sounds like you hit on a great way to bathe and detox!! I'm sure others may want to try it and see if it works for them. I 'm going to try it on my ankles and feet. So, thanks for sharing that! I hope this info. helps you, just my own circumstances. So glad your here and and what a wonderful "poster" you are!! Your attitude is great and that's half the battle!! Hang in there dear friend, you'll be miles ahead in 6 months!! Hear you on this weekends calls!! In His Love, Rockin Robin | ||||||
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