Teresa
11/12/2012
3:28:54 AM | Hi Mulya,
In answer to your question about doctors - I have not really found any who were helpful with this disease. In fact, misinformation and wrong diagnoses from doctors resulted in my condition not being identified or treated for many years - I got sicker instead of better. This is just my experience, though - and I don't live in the US.
There are doctors in the US who have been very helpful to Mel and others. You may be lucky to find a good doctor who can help you.
I do believe, though, that this disease is mostly unrecognised by the medical establishment, and that is why there are lots of people who come to this website - to share their knowledge and help others.
I wish you all the best Mulya
Regards
Teresa |
