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How I Cured Morgellons
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G 6/20/2009 9:54:00 PM | Dear Suzanne, It may be very difficult for others to understand or believe that this condition exists, yet we all have witnessed it first hand in one form or another. So take heart you have a support group right here! At least until one is found in Fla or you create one. |
susanne 5/26/2009 5:23:10 PM | Thank Mel .. it was great hearing from you. I actually feel quite isolated, and was wondering if we could develop support groups around the country for this disease, all could make friends this way. I have stopped dating because of this disease, be/c no one understands, or they will run away when they find out. I was engaged, my fiance broke up with me be/c of this disease. . and that is what he said when he left, 'the morgellons were the reason'. he said 'because there is no cure'. In fact, he and his mom were the ones who discovered it. She helped me for awhile from a distance. Anyway, it would be nice to have 'morgies' cook-outs, talk groups, being there for each other amongst ourselves. I also go to church, and the church doesnt believe it either . .I think we need to reach out to each other amongst ourselves. If we realize we are not the only one, its not so bad. . for those of us who do not have family, we need each other. Who are Mae and Mary Beth, are those your family? Any way, let me know your thoughts. Susanne |
5/26/2009 2:52:39 PM | Hiya Susanne, Welcome-I don't know who responded to you post in such a gruff manor, they must not be feeling very well. I have asked in the past that if you post please put your name. I will asked John B to respond to the question of diet, as he has helped me change my way of eating. There are some great posts on house cleaning in the forum.I suggest you save the Bactrim until you are under a Doctors care and can use it as part of the protocol. I do not think it will have much effect alone as I memtioned in My Story. As far as a Doctor In florida,We (Mae, Mary Beth and I are researching for doctors Across the country The closest one at this time is in Atlanta,They Do phone consultations. Dr. susan Kolb 770-457-4677 I hope this helps. When you have free time please read the posts on the forum ton's of good information Good luck God bless, mel |
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