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Original 1/28/2019 Post | ||||
Jamie S 1/28/2019 6:50:48 PM |
Hello, everyone! God love Mel. At his suggestion, I am becoming more active online and have decided to start my own thread. I’m normally a very private person, but it hasn’t been doing me much good in my battle with Lyme & Morgellons. If nothing else, this will allow me to chronicle my own journey and hopefully help others in the process. Although I think I have probably had Lyme (and maybe Morgellons) for a lot longer, my life changed, seemingly overnight, in February of 2016. I won’t go into any of the gory details (after all, it’s not like I’d be telling any of you about anything you haven’t already experienced!), but I will share that the significant hair loss and texture change has been a challenge from the very start. I can be somewhat vain (although this illness has just about eradicated that personality trait—which I am sure God is fairly happy about!), so I spent far too much time crying and crying and crying. Fortunately, I don’t have too many lesions (even when I have been at my worst), but the threat of more or them has more than once brought me to my knees. I’ve also battled serious anxiety and depression, although not enough to impede me from working full-time. The systemic nature of Lyme/Morgellons makes life very challenging. As my husband tends to say, “It’s always something.” For the past 31 years, I have been a high school English teacher in New England, all at the same school. Although working full-time makes battling this illness even more difficult at times, being a teacher has brought me the greatest joys of my life. Even when I don’t want to get out of bed, I remember that I need to get my sorry self to school and do what I love. I need to show my students what it means to survive. Although they don’t know that I have Morgellons, I invariably am forced to share that I have Lyme disease (which, in New England, EVERYONE knows about...and so many of my students and colleagues know at least one person who suffers from chronic Lyme). Since I have to take so many of my protocol supplements while I am at school (at least 3-4 of the 8 “doses” per day), I certainly don’t want them to think that their teacher is doing anything she shouldn’t be! LOL! High school students aren’t as bad as everyone thinks. I promise to post some humorous remarks and anecdotes as I update you on my progress. Kids say and do the darndest things! I will end with a tip from my minister. He suggested that whenever I get down and turn to the Bible, there is a little trick to help personalize the Bible verses that I read. Here is an example: Luke 18:1 reads: “And he told them a parable to the effect that they ought always to pray and not lose heart.” Bernie, my minister, told me to engage in “pronoun replacement” whenever I need high-powered support. Look at the difference: “And he told JAMIE a parable to the effect that SHE ought always to pray and not lose heart.” Even typing that made me feel about 1,000 times better. Thanks to everyone on this forum. I will keep all of you in my prayers. A special thanks to Mel and John B. for all their unconditional support over the past year. Jamie S. | |||
Responses (Newest First) | ||||
Jamie 6/28/2020 9:29:06 AM |
Hello, everyone. It has been a long time since I posted in my own thread, other than in response to someone else. I am enjoying my “summer vacation” from teaching because it is so permanent! Retirement has allowed me to get more restorative sleep (I have even begun to dream again, which means I am experiencing deeper levels of sleep instead of insomnia). I am hydrating myself better from the time I get up until the time I start to wind down for the night. My stress level is way down. I have refused to allow my mind to become stressed over my upcoming move to North Carolina...or anything/anyone else, for that matter. I absolutely cannot follow a strict keto diet without a gall bladder, so I am working very hard to eat in a way that is plant-based and gut-healing. It’s a process. All of my issues started in my gut a long time ago. It’s time to finally resolve them. I have had some students reach out to me already. I guess they miss their teacher a little bit! It’s really nice to hear from them. It tells me that I made a huge difference. Even though I made a lot of bad decisions for myself related to my health over the course of my 32-year career, I absolutely did not make a mistake about teaching adolescents. I have so many incredible and positive memories that keep me going when this illness brings me down. I’m also working very hard at staying calm and positive. I am finally reading the Bible from start to finish. I read every day: sometimes a lot, sometimes just a little. I have made my way through Genesis, Exodus, and Leviticus (oh, Leviticus was a tough read!), and have now started Numbers. I pray every day. Interestingly, I hear God talking to me a lot more. Perhaps I just needed my life to be quiet enough to hear Him. I keep all of you in my thoughts and prayers. God bless you all! Jamie | |||
Jamie 6/16/2020 10:50:24 AM |
Hi, Linda! I hope you and Mackenzie are doing well! Retirement is already wonderful! I need to get the hurdle of moving done next. I hate packing boxes, I really do. Karen and I are gluttons for punishment, in more ways than one. I hope your stomach is better! Love you, girl! | |||
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