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How I Cured Morgellons Forum Response

NOTE: This is a discussion list reponse to A Teacher’s Journey: Jamie S.


Karen

8/20/2019
9:22:26 AM
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Jamie,

You said it all so well...your words painted an accurate picture of where education has evolved to date. I don't have the answers...but I DO know that at work AND in life, we absolutely must protect ourselves against negativity. I still work in education, but no longer teach. That doesn't matter...possible litigation looms over all of us for the absolute most ridiculous things.

And this is sad...because almost every teacher I know got into the biz because they really enjoy the actual act of teaching...and because they really like the end user...which is the student. There's nothing like seeing eyes light up with understanding a difficult concept...or seeing that initial moment of..."Hey! I can do this myself!"...or...the spark of excitement when a student has been inspired by a new idea or concept. That's what it's all about...but...unfortunately...there are barriers to being fully engaged in the teaching zone at times. There are so many things to remember to do and not to do...and the authenticity suffers.

What's interesting is that the great majority of parents are just wonderful and so supportive of their children's teachers. They recognize and appreciate when a teacher takes the extra time to get to know a student's interests and then uses that information to make lessons fun and interactive. I've had some of the best parents ever...they are interested in their child learning and appreciative of my efforts...and they are just as frustrated with all the rules and regulations that have come about as a result of a few as we are.

So...Jamie...I'm about to tell you what you already know. You are a phenomenal teacher. You have a lifetime career track record of inspired students and changed lives. You just nod and smile at those inservice meetings and maybe wear a hat to hide some ear buds so you can listen to something enjoyable. Zone out on the negative, and then close your door and teach from your heart just as you have for the last 31 years. You are awesome. Don't cheat your students out of your authentic self...or out of your years of honing your craft. Let this year's students have the full dose of what you can give them and then be proud of yourself for using your God given talents. Fear not and be bold.

I do understand how difficult it is to deflect the negative vibes though...especially when we don't see them coming. As mentioned by me ad nauseum, it's not great for anyone to focus on the negative, but our fragile population weathers that type of thinking worse than most. We experience negative words on a physical level. I think this is a a difficult concept to grasp for those who have never suffered this disease.

And of course it would be. If you've never had this, there's just no explaining it. So it's on us to decide who or what we will allow into our brain space. We struggle with our energy levels and are so absorbed with doing everything we must to get well that sometimes we don't see it coming. Then it's like the new teacher Jamie described...like a punch in the stomach we didn't see coming.

That's why most of us have chosen to downplay our illness to friends and family...or to just outright avoid any conversation about it at all. People are people...they have their opinions, and sometimes the need to be right or to express their opinion blinds them to the idea that as sufferers, their words have a huge impact. It becomes about them being "right" rather than looking outward at the effect their words have on someone who is suffering.

But that's ok. It's OUR responsibility to avoid it, shut it out completely, or to do a quick recovery when we're hit with it without warning. I just try to remember that there is a huge news industry centered around stirring people up...which tells me that a lot of people like to be stirred up by what I call "fear porn." I've never been one to enjoy that type of thing...even when I was well. But the popularity of these type of "news" shows makes me think there's something very stimulating in this type of discourse for many many people.

It's just that once you get a disease like this one you are living in constant fear if you don't make a concerted effort to color your world differently...so added fear is not only useless...it can be powerfully destructive. It's up to us...and we must advocate for ourselves and not allow anything into our world that would have a negative effect on our well being. It's not just a good idea...it's vital.

And so...people who have not experienced this are just doing what they do. We can't fault them. It's just like when we get a friend or family member who "knows best" and tries to advise us about this disease (like we haven't already thought about and done the first ten things they said months or years before). If they ever had to really know that the entity driving the whole thing (CDC) has either purposely suppressed the reality of this disease...OR...is so inept that they can't figure out what's going on despite the enormous numbers of people presenting with symptoms they could study...then...that's REALLY scary. It's scary that those who are supposed to protect us very likely have done the opposite because of personal interests or lack of skill.

We are raised to believe in apple pie, baseball, and the red, white, and blue. We are raised to believe that our country is the best on the planet and leads the world in humanitarianism. We all have our own personal picture of the American Dream in our minds. This does NOT include an organization with huge impact on the very health of our country ignoring a segment of the population that is extremely ill because of either ineptitude or personal interests. Either thought is disturbing and rattles our sense of who we are and how our lives are supposed to be. And we protect our family and friends by not really letting them know what's going on.

To start with, they wouldn't believe it because it is just too disturbing. Then they'd argue with you because rattling their view of the world is like shaking the foundation upon which they stand. So we protect them. And we go within and listen to our own truth, and then it's between us and God.

So my point is...people who don't have this disease will never understand...and it is our responsibility to advocate for ourselves. We must stand up and say..."I don't want to hear this, thank you." and then leave...or discontinue communications. You can be nice about it...but do not be bullied into having to continue to just "listen" to one more minute of a non-suffer's opinions about how you should think or feel. At that point, it becomes about them being "right" and not about the damage they are doing to you as they continue to push forth their opinions.

I've dealt with this in my family, as the readers of this long post can probably tell. I love them all to the moon and back...and it would be hideous if they ever got sick...and I wouldn't wish this on my worst enemy. But...they will not understand...and neither will others who do not suffer as we do. So...we must protect ourselves at all costs.

Love,

Karen