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How I Cured Morgellons
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10/14/2019 10:31:32 AM |
I haven’t posted on my thread for a few weeks, so I thought this would be a good day to do so...it is Columbus Day, so most teachers have the day off. Christopher Columbus gets a lot of bad press due to his treatment of Native Americans, but I am sure glad that I was able to sleep in today due to the more positive part of his legacy! This weekend, I went away with one of my close friends to Merrimack, New Hampshire. We went outlet shopping, and it was absolutely necessary because I do not fit in any of my winter pants from last year due to some ongoing GI issues that are now, hopefully, one step closer to being resolved. We only spent one night up there, and I had no issues whatsoever with the hotel room. I never seem to have issues when I travel, which is a blessing. I wouldn’t recommend travel, however, to anyone early along in the journey. I think the experience might be different. I also never miss my supplements when I am away. I pack everything. I also take my own pillow, check underneath mattresses, make sure Kleen Green accompanies me...all the safeguards that make me feel much more comfortable. It is sad that I will never NOT worry about travel again in my life...I never thought about it at all before Lyme/Morgellons. I’m also at the stage where I am experimenting a bit with different foods. It’s definitely more challenging to stick to the diet when you travel...some things are just out of a person’s control, simply because you are not at home. That’s why it is probably better to stay at home in the early stages. Pretty much all of my symptoms are above neckline now, other than some significant GI problems. Mel thinks this is the Lyme, not so much the Morgellons anymore. My hair continues to dance and have a terrible texture. My eyes are a bit better, but I can still tell that there is an issue there. I only have a few lesions left right below my neck, but they are super small. I occasionally get what I fondly call “red blotches” on my face, but they get beaten back easily with eucalyptus essential oil, as I have said before. My fatigue is far less, and I am sleeping better. I have next to no anxiety or depression, except when something big really upsets me. I haven’t been on the forum or calls much because I have taken time to come to terms with the results of my recent endoscopy, which didn’t make me particularly happy. I think the longer-term outcome of the results will be positive, but I have a bit of an unexpected road ahead of me in the upcoming year, which will likely somewhat delay my recovery. Maybe it won’t. Who really knows? The endoscopy revealed the following: I have absolutely horrible levels of acid reflux. They can’t be from my diet...I have eliminated SO many foods for so long now. My PH level was 4, which is terrible. Apparently, reflux is literally spewing—practically nonstop—into my esophagus. So far, I have no esophageal damage, but I do have a chronic cough, pain when I eat that comes and goes, and difficulty swallowing that comes and goes. My new (and really pretty good!) GI doctor believes that I have a faulty esophageal valve...he can think of no other logical explanation for the levels I have. The levels were determined by a BRAVO test, which was part of my recent endoscopic procedure. I probably should have had that test done YEARS ago. Live and learn. The only real remedy to my problem is surgery, the LYNX procedure. Few doctors are trained because the procedure is new (but quite effective), but fortunately two hospitals in New England (Mass General and Boston Medical Center) have trained physicians. My GI doctor is not trained in the procedure, but he plans to find me one who is, and I will also have help from John B. and his GI contacts. I can’t have the surgery, however, right away. No doctor will do the surgery without proof of the faulty valve, so I have to have a specialized test called a manometry at UMass. Then I have to get an appointment with a GI doctor who does the LYNX procedure. Then that person has to review all the evidence and decide that I am a surgical candidate. Then the surgery has to be scheduled and done. I will have to take at least a month’s leave from work unless this stretches all the way to next summer, which I really don’t hope happens. And that’s not all. I also have bile reflux spewing onto my stomach. I don’t have a gall bladder, so my liver produces bile. The bile is not going in the proper direction. That’s because my colon keeps backing up. It happened back in July, and now it has happened again. There isn’t a terribly easy solution to that problem...only pharmaceuticals (which I don’t want to take) or some sort of natural remedy that I haven’t found yet, or regular colon cleanses for the rest of my life (like one every three months or so). Both problems are significant and likely have existed for some time—at least the acid reflux likely has. I’m not sure about the bile reflux. Anyway, the acid reflux HAS to be dealt with, as soon as possible. I have had quite a few abdominal procedures, and I tend to scar badly—internally—which in the past has led to incisional hernias which require surgeries to fix. I’m going to cross my fingers that this upcoming surgery (which apparently requires numerous laser-created incisions) will not end up the same. With Jamie’s incredible bad luck in the health department, who knows. I also have some other personal issues going on that I will keep to myself for now. The upcoming surgery has made me rethink a few decisions that I had recently made, at least for now. Time will tell on that front. Right now, though, I have to focus on stability and getting my GI track to be more functional. I’m not happy about the fact that two of the most corrosive liquids in the body, bile and stomach acid, are not where they are supposed to be inside of me. They have no business in the esophagus or on the stomach. School is plugging along. It’s not really the stress it has been in the past because I am not letting it. I’ve made some really positive changes on that front that have allowed me to avoid bringing work home (at least most of the time) and have made a conscious decision to just enjoy my few remaining years at the school. I plan to see my family at Thanksgiving. I haven’t been to Pittsburgh since last Thanksgiving. My mother has advanced Parkinson’s, and my father has early stage dementia. I don’t have many years left with either of them, I don’t imagine. I need to help out my sister. Because of some legitimate circumstances, my father will unfortunately be alone this Thanksgiving. I will stay with him while I am home so that he will be safe. I will be able to come and go as I please, and staying at his home is very safe. He lives in a house that I fondly refer to as the Taj Mahal. There is definitely NO mold there. I also don’t let my family circumstances both me anymore. I can’t change them. They are what they are. I guess that is probably all I have to report. I hope to be on both calls next weekend. On a final note, though, I just want to say thank you to Mel. He has called me practically every single day in the past month, just to check on me and see if there is anything he can do, even if that just means making me laugh, which he has developed a good deal of expertise at figuring out how to do that. He has been addressing my Lyme symptoms. He has the biggest heart. I don’t know what I would do without him. I keep all of you in my thoughts and prayers. Jamie | |||
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