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How I Cured Morgellons
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12/11/2019 8:39:51 AM |
It was about time for me to post an update on my thread. I am actively looking for a solution for my migraines, so I have been working with John B. I was taking guarana powder, a natural caffeine, but keeping a detailed, daily log suggested to me that I probably should stop taking it. Some skin symptoms had returned, and I was able to put two and two together, at least the best I could. Guarana absolutely stopped my headaches, which is unfortunate...I thought I had a viable solution. The guarana appears to work by dilating blood vessels, just like caffeine. So I was back to the drawing board. Tea had told me about butterbur, and a number of years ago, a neurologist had suggested that same supplement to me when I first began to suspect that Excedrine migraine was not a good over-the-counter medication to take because it slowly but surely destroys the gut. That medication worked, too, but I had to go off of it, cold turkey, and I did. I had also read that feverfew was good for migraines. I then learned, through John B. and a very knowledgeable woman at a local health food store that B2 (riboflavin) and magnesium are also great for migraines. So, I am currently on a quest to find the best supplement with some or all of the possibilities listed above. It’s not as easy as it seems it should be. I must stress that no one should start taking anything I have mentioned without consulting with Mel and John B. Everyone’s body is different. I am just recording my journey and what I have found out recently. I definitely need to find a supplement to try soon, though, because my migraines are frequent (1-2 per week), and they always happen in the middle of the night, never during the day. Therefore, they disrupt my sleep cycle and make work the next day challenging, although I gut through it. Thank goodness for Cheryl!!! Cheryl and I keep in touch, and she goes to bed extremely early and is often up in the middle of the night to start her day when most people are still snoozing away. Several times recently, Cheryl has been awake when I have awakened due to a headache, and we have texted until I had to get ready for work. There was one night when we texted from 1:30 am until 5 am! She is such a wonderful person, and we shared pictures of our families and chatted up a storm! Women can certainly talk, that’s for sure! I have also decided not to have a third endoscopy. Instead, I am seeing a naturopath that I know well and trust (she happens to be my former student, too). Back at the beginning of my Morgellons/Lyme storm in 2016, I had been going to her periodically for a number of years. When I started itching, stinging, and burning, she was very persistent with testing, but she didn’t get the diagnosis correct—most doctors don’t—but she came darn close. She thought I had a histamine intolerance, which makes logical sense based on the symptoms I had. When I recently revealed to her that I had Morgellons, she was shocked. I plan to meet with her to get her take on the situation with my stomach (acid & bile reflux). If she cannot help me, I plan to ask her if she knows of a naturopathic GI. I don’t want to take supplements that aren’t going to help me heal my gut, and it’s complicated due to being on the protocol and my lack or a gall bladder and my celiac disease. I don’t want to take anything that might harm my gut’s ability to heal. I haven’t updated all of you on the two Nicholes recently, either. My informally adopted daughter Nichole (who was also my former student) had suffered back-to-back strokes many months ago now. She has gone to countless doctors, but they have been unable to establish the cause. She is only in her thirties. I don’t think she will ever be able to return to her employment as a social worker. The stroke has somewhat changed her personality, and she has definitely suffered some cognitive losses, but she is able to function fairly well, definitely well enough to raise her pre-teen daughter Claire, my “grand baby.” The other Nichole, who went suddenly blind in one eye and then partially in the other near the end of her senior year at my school, has been through hell this past year. She has been passed from doctor to doctor, misdiagnosis after misdiagnosis. Her eyesight is no better, and she can’t really work or go to college. However, about a week ago, she landed in a doctor’s office again, and this one seems like he might be able to help. He’s pretty sure (and so am I) that she has some sort of autoimmune issue because she has systemic problems in addition to the blindness. I certainly hope he can find out what is wrong with her. I suspect it might be MS, which happens to run in her family, but I am not a doctor. Despite the fact that I have reservations about this, I plan to go home to Pittsburgh for Christmas, from Christmas Day to New Year’s Eve. My dad has dementia, and my sister (who is a nurse) basically told me that I had best come home because my father isn’t likely to know who I am by next Christmas. I also have a mother with advanced Parkinson’s, and I have no idea how long she will live, either—she’s been sick for the past 20 years with it. I am actually surprised that she has held on for so long, but she is a tough old bird, just like her daughter! I have traveled before, and I usually survive the experience with few ill effects. Part of that has to do with the fact that I take my supplements religiously, and I don’t cheat on the diet. The first semester of my 32nd year of teaching is almost over. It’s fair to say that I survived the new course that I was given with all of those post-graduate basketball players (who proved to be more challenging than I originally thought they would be) and a lovely class of honors sophomores. Next semester, I have two junior classes (a preparation that I have taught more than any other in my career) and another class of honors sophomores. Nothing will be new, which is good. Hopefully, I won’t have too many students and that the workload won’t make me crazy. I am seriously trying to determine if I can retire at the end of the year. I’m tired, and would like to move on and do something a lot less stressful, which might be: (1) subbing (2) tutoring (SAT prep or helping students with college application materials or helping young professionals with resumes and cover letters or something else that remains to be determined) (3) adult education (there are a lot of short-term gigs out there that pay pretty well) (4) working in a jewelry store...I am diamond certified due to a part-time job I had at a major retail jewelry chain for four years while I was teaching full-time (and I wonder how I managed to become sick? LOL!) That is more than enough. If anyone is still reading, kudos to you! I keep all of you in my thoughts and prayers. Welcome to anyone who is new to the forum. Jamie | |||
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