Deborah B
11/18/2012
3:54:15 AM | Teresa,
What a surprise when I arrived here to see the picture of your sweet little boy, your encouraging note concerning his recovery, and Mel's encouraging words. They were much needed just at this time.
I was having a rough day because we have seen some symptoms return for my daughter today and as a family we found ourselves discouraged. Unlike most families dealing with this disease, we've found that my daughter has struggled far more than I have and her recovery has taken longer with more set-backs. Just the same, she has been doing so well for months now.
I know we can reasonably expect some returning symptoms from time to time on the protocol even when we are following it to the letter, but of course when it happens it is easy to panic. Your post was a big encouragement and reminder to focus on the protocol as a marathon and not a sprint.
Best wishes and prayers for continued progress and happy, hopeful times. . . from myself and Carrie to you and Charlie,
Deborah
PS. The other day I walked by my daughter as she was sitting at the kitchen table taking her protocol medications. I had to smile when I heard her quietly repeating to herself 'don't think, just drink. . .' I thought you and Charlie might like to know that your motto made it all the way around the world to the Pacific Northwest of the USA and is now being used by my girl to get through those tough challenges at medication time! |
