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How I Cured Morgellons
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2/15/2013 6:21:30 PM | Leah, Hi again! So sorry to have been awhile in responding to your last message. Hope you are doing well today and feeling better. You are so right in one thing you said. . . you are NOT alone! Not only will you be prayed for and supported here, but the Lord is with you in this fight, every moment and every day. I know it feels overwhelming right now, I truly do remember the first weeks and months on the protocol and I CAN relate to the feelings. It might feel like it some days, but it is not hopeless. Each week on the protocol brings improvement and a sense of having more control. My advice to you would be to remember that like any new skill or lifestyle, there is a learning-curve at the beginning. It takes a while to get into the swing of things. I remember so well those early weeks. Reading your post brings it all back and the emotions seem fresh again. I remember conversations with Mel where I blubbered my way through with him saying quietly in the background. . . no, don't cry now, don't cry again.' ;-) But he didn't give up on me and we won't give up on you either, Leah. It's just tough at first. But you sound like you're tough too and you can do it. Here are some thoughts that might help in getting started: 1). Focus first on learning everything you can by reading the forum forward and backward. . . really! That will do more good than you can imagine right now. It arms you with the information you need. Try to schedule at least 30 minutes a day to just read. Don't obsess or beat yourself up, or loose sleep to do it, but be consistent. 2). Next, focus on getting organized with your protocol medications and supplements. Once you get past that hill, things will be better. Find a system that works for you. We purchased a med organizer at Rite Aid that had a row of five covered boxes for different times of day and one for each day of the week. It clips into a bigger frame and so each day's meds can be grabbed quickly to take with you if you must go out. I used a watch that I already had tucked away which has an alarm capacity that can be set for various times throughout the day. I set the alarm for 10:30, 12:30 and 6:00 because those where the times I was most likely to forget my meds. This system helped me lot but you may find something equally effective for you. Whatever you decide on, make it happen quickly and get into the habit of making up your med packets at least weekly or even two weeks at a time so you are less likely to forget or miss something. 3). Simplify! This is going to be your life for awhile, you might as well be comfortable. Turn your kitchen into 'Morgellons Central' ;-) and put away anything that you don't need right now. Any unnecessary items are just dust-catchers for the next 18-months. We finally got rid of a lot of things and those we wanted to save we washed in MMS and put away in plastic boxes in the attic. We won't bring them out again until we are well. We have about three outfits each, not much cotton (sad---I love it!), but we can enjoy it again later. For now we've focused on simple, comfortable clothing that does not gather much lint and we use MMS relentlessly in every load. 10 drops in colored loads (mix in well before adding clothing. MMS can bleach!) and up to 20 drops with sheets, jams and undies. Soak for 45 minutes to an hour. Simplify with the cleaning too. If you have some furniture that you really don't use much, or rooms that are not needed, close off the rooms or store the furniture in the garage. Vacuum carpeted areas daily and wipe down surfaces with a Kleen-Green solution. As time goes on, you'll be able to do a bit less and still stay clean and healthy. For instance, I only have to change sheets every-other day now, and soon may be able to do it twice a week, we'll see. 4). Change your diet as quickly as you can! For the first month or two just eat a simplified diet with the items you know you need most and don't worry about being a Morgellons gourmet :-)! Reading on the forum will give you the basics. Peter's posts were a great help to me in communicating the basics of diet. Everyone has a slightly different approach to food but I personally found that cutting out all fruit and using only Quinoa (really a seed) in place of grain was best for the first three months. We were really strict at first and I believe it paid off. After we stabilized a bit we were able to add some healthy things back in that were still protocol-approved. 5) Focus on the positive and don't give up. You have to closely monitor your children's health and progress but don't succumb to depression over their struggle. This is where I failed the most in the early days of this journey. I would look at my little one's beautiful little face all covered with acne and giant red track marks, her legs and arms scarred and sore and begin to despair and panic. Don't do it. A short six-months later and my daughter's complexion is peaches and cream again. Her scars are slowly fading and if they never do completely. . . well then they will be a subtle reminder to her of how far she has come. . . and to whom she really belongs. We see them as marks of ownership. She belongs to God and His plans for her are for good, to give her a future and a hope. I look forward to having a front-row seat in the coming years to see how He plans to use this for her good. He will do the same for you and for your children. Look forward to it. Bank on it. I really hope this helps a bit. Overall. . . push hard at first to get organized so you can relax more later, but remember to sleep and rest too, no matter what needs to be done. Be kind to yourself and don't obsess about what you didn't do today or didn't do perfectly. You are still learning. You'll get better at this and while you are becoming more skilled at the protocol, you will still be getting healthier. Take heart and God bless you Leah, Deborah B. 'For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future.' Jeremiah 29:11 |
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