Linda
6/24/2013
6:40:35 PM | Hi Ruth and all,
I've been reading a lot of great advice on the forum and started listening to conference calls. It is going on 7 years this summer since we have lived with this affliction. I have done a lot of thinking since I found this site and all of you. I am so amazed at the commitment, caring and love here. I realize that since I've heard there is hope I don't want my little one or myself to be ill any longer. I find that we are much worse when the hot weather and humidity hit. I work full time and have just been doing what I can and have to do survive. I want to fight this. I'm open to getting emails from any moms with any advice. I've been talking to my granddaughter about our diet and lifestyle changes (no sugar). My little one is 9 and she doesn't know what is going on because I don't want her to be scared, although people ask her what is wrong when they see the skin..
Thank you all for sharing your stories. Blessings to you, Linda |
