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1/10/2014 11:06:17 AM | Hi Everyone! So I am new at this & still have so much to learn, so bare with me please. At the beginning of this week I saw what I believed to be an extremely small black bug crawling up my daughter’s back. As I put my finger over it, it seemed to disappear as if it burrowed into her skin. A little bit later I saw one on myself and it did the same thing. I immediately knew something was wrong. I realized after looking at my skin that I had very small little fibers sticking out of my skin in different places and have been experiencing a myriad of issues with my health for 3 years. 3 years ago I was 8 months pregnant with my daughter and I had moved into a new apartment. I noticed over the next few months that there was significant mold in many different places and began to experience health issues to the point that I was unable to go back to work. I’ve lost most of my teeth, my skin is red - especially on my face - with lesions, and marks that never heal right, i am always tired & fatigued to the point that its interferred with my everyday life significantly, have developed significant depression & anxiety, and have felt itching on many different parts of my body. My bones have also seemed brittle & inflammed & I am only 30 years old! I also had a very severe seizure a few months ago for no apparent reason. But the worst thing for me is that I break out (esp on my face & back) into intense sweats for no reason and have a hard time even going to the grocery store. I’ve seen a couple of doctors and was told (alternately) that I had severe dematitis, exzema, and lupus. After I noticed these fibers all over me this week I immediately thought that I had scabies. My skin issues started to get very bad with intense itching. I tried to show and tell my husband what was happening he looked at me and thought I was crazy and loosing my mind. All these issues have interfered with my marriage. Then I looked at my daughters skin & noticed a couple red marks (nothing like what I have) and a small amount of blackish spots or residue around her wrists and hands. She is 3 years old. When I found that on my daughter I broke down bawling and have never felt as low as I did at that point....that is until I went to urgent care yesterday with my husband and daughter. I broke out into a sweat so bad that my clothes stuck to my body and you couldnt determine that there was a difference between the fibers coming out of my body & the ones from my clothes. She very gently told me that I didnt appear to have scabies and opined that I must be very stressed out and may need to see a psychiatrist because "sometimes the mind can play tricks on itself". Ive NEVER felt as low as I did yesterday. It was devestating that I was being passed off as a headcase ane more devastating knowing that my daughter may have this too. (my husband doesnt seem to be experiencing anything) My heart just sank and I came home with my husbans berating me for"seeing things" & "being crazy". I felt so helpless and hopeless...Until I did some more research and realized that I didnt hav scabies after all, but instead came across morgellons info and matched EVERY critera - I felt then that I *finally* had a name for it AND could finally be able to tackle whats happening. So thats where I am right now - after a few more tears - Ive brushed myself off & I need to get started for my own sanity and well mostly for my daughters health. So thats where I am at. I dont know where to even start; like should I make an appointment with a dermatologist or internal medicine or family practice dr? and does anyone have a small child that is going through this? I am wondering how I can get help for her. And clearly I need to get the hell out of my apartment but until my lease is up I am stuck here and would like to know what things to do to make my home safer. And is anyone on disability because of this diseases' effect? Ive needed to be on disability for a long time now, but could never put my finger on what is wrong with me. I hope this post isnt too long to post or too depressing - I just need support and understanding - something that is severely lacking right now. |
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